Fibromyalgia Thread

[EDuke98080]

Tigg, Happy Trip!!!!!!!! Think of us and ride the Pooh ride for me!

Bright, I am so MAD for you about all this stealing of your work. After all you have gone through to accomplish a job well done you don't need this! I hope your prof takes care of things.

My daughter who is 21 and has Celiac Disease is showing signs of fibro too. She complains about her ankles and knees aching when she hasn't gotten enough sleep. UGH! Don't want her to have to deal with something else on top of the Celiac. Unfortunatly I know that all these autoimmune things go hand in hand.....

How long do you guys wait with a new "pain" until you head to the Dr.? I always wait and never know what to pay attention to and what to ignore. This disease is the pits .

Hope you are all pain free and enjoy Spring!

Erika

 

[EDuke98080]

This is the place to rant , totally ok!

Do you have any problems with your back? I get pain like you describe in my leg on the right side but it is directly related to 2 herniated disks. Sometimes it's only my foot and sometimes it's all the way up my leg, depending on what I have been doing. Do you have any swelling or discoloration along with the pain?

Hope it gets better soon!

 

[brighteyes]

I do have back pain intermittently from my whiplash two years ago. But when I have had this problem with my legs and feet my back does not hurt when this happens.

My feet and legs do get pins and needles at various times. but when I am going up or down stairs when I put pressure on my foot to go up or down when my foot hits the stair the tingling starts in my foot and works it way up my leg. When my foot lifts as my other foot hits the stair the same thing happens with that foot.

 

[brighteyes]

Tigg, Happy Trip!!!!!!!! Think of us and ride the Pooh ride for me!

Bright, I am so MAD for you about all this stealing of your work. After all you have gone through to accomplish a job well done you don't need this! I hope your prof takes care of things.

My daughter who is 21 and has Celiac Disease is showing signs of fibro too. She complains about her ankles and knees aching when she hasn't gotten enough sleep. UGH! Don't want her to have to deal with something else on top of the Celiac. Unfortunatly I know that all these autoimmune things go hand in hand.....

How long do you guys wait with a new "pain" until you head to the Dr.? I always wait and never know what to pay attention to and what to ignore. This disease is the pits .

Hope you are all pain free and enjoy Spring!

Erika

Thanks Eduke! I am not very confident that the prof will act on anything since there is no proof. Additionally, other unethical things have happened in this program and have not been dealthiwth accordingly. So I am not confident.

Additionally, the prof really likes this student. But if it is not dealt with I may go higher.

That is too bad about your daughter I hope she does not have to deal with fibro.

Umm, I typically wait a long time to go to the dr. as you know. lol

I have had more frequent and larger areas of burning skin and this issue with the tingling and have had more pain lately. Have not really told her about it. I also have had problems with spasms with my legs. NOt restless leg syndrome, just my legs jerking or my whole body jerking as I fall asleep.


I am having new symptoms about every few months but haven't been to the dr in a few years aside from t he heart issue. I still have not, however had my ultrasound for my gallbladder yet. I also am supposed to have bloodwork done to test for diabetes. I have had stomach issues for about 4 yrs that i have not talked to the dr about yet. Im bad.

 

[Tinker'n'Fun]

 

[steph124ny]

Just happened to click on this thread by accident and wanted to tell you that your DD, and her prom dress, are beautiful!!! Such a far cry from the poofy, lacy things we wore that resembled our living room curtains!!!

 

[brighteyes]

Hey TInker,

What a beautiful DD you have and yes she looks beautiful in her dress!! What an exciting time for her.

About the lace poufy things, I used to have one all ruflles and lace and black complete with a huge bow on the breast with a very large rhinestone setting lol I think I even had lace gloves to go with. It was very MADONNA like. he he

No I don't think I have been sitting more than normal, but yes I know if I sit the wrong way or lay the wrong way my whole leg will go numb. This is just when I am at placement going up or down the stairs.

I am glad your trip to Disney was a sucess. My last trip was very slow compared to my first one, but I didn't mind.

Steph

 

[Tinker'n'Fun]

 

[Tinker'n'Fun]

 

[brighteyes]

Very California -y - (not a word either) lol and elegant! Elegant yet simple. A perfect example of why less is more.

 

[tiggspring]

So as you can see I am back from Florida/Disney. I enjoyed myself very much and didn't have too many problems while there. It is now confirmed though that long bus rides are out of future trips. The stress on my body has been horrible this week. My rib cages and collarbone area are very inflammed and the flare is almost unbearable. I am resting this week in the hopes of getting back to somewhat normal.

No matter what, I will start exercising on Monday. I need to work on this religiously as I really feel a drop of 30 pounds before my October trip is a must. This is going to be hard, but I am so glad fresh veggies will be out within a month or so around here.

I did not rent an ECV. I did okay. Definetely followed a slower pace, but I think I enjoyed it. Next time, I am going to concentrate on photography, and speaking of photography, please let me mommy-brag, DD at her Senior Prom. Thanks, Diane.

What a beautiful pic! Your neighborhood reminds me of one I lived in in ri. Sometimes I do miss it up there (then I think of house prices lol).

I'm so glad you had a good trip!!!! I know things were a little rough before you left and I was hoping it wouldn't trigger a bad flare. I'm with you busses are out. We stay monorail resort precisly because I don't see how I can add any extra steps, long ride or constant transitioning in/out of our van without risking the trip. Sounds so slly to many but I know you know what I mean, sometimes the smallest thing is the last straw

As you can see I'm awake at 5am just been very stressful with dh last few days of phd papers and multiple, crazy expensive auto repairs . We are all majory on each others nerves. Seems like none of us can be in the same room without some sort of turmoil. Everytime I think we shouldn't go to wdw within minutes dh gets a lead for a new leagal case or I see something terrible like a bad car accident I passed this afternoon. I'm taking that as gods way of saying life is too short and when a door closes a window opens so stop worrying.

I was very happy that somehow I did manage to review his papers a few pages at a time. So I was helpful this semester. It did remind me that I had planned to finish graduate school someday but it is obvious that is not going to happen without major breakthough.

Bright IMHO if you can physically take it, you need to go much higher up. It is in the proffs best interest to cover this up. It reflects badly on the program and will create lots of work re: an investigation. Something they do not want to do over the summer. I would do something high up and fast or nothing will be done. You can prove it was yours if it was used in the program before 1st year student arrived than obviously he didn't create it.

Well should try to get to sleep.

Sending pixie dust to all!

 

[EDuke98080]

First never apologizes, that is why we are hear. As for the pins nad needles, have you been sitting more than normal. It sounds as if you may have some nerve discomfort causing them. I know that if I have a certain sitting position, that this is my problem. Hope it susidzed quickly for you...


So as you can see I am back from Florida/Disney. I enjoyed myself very much and didn't have too many problems while there. It is now confirmed though that long bus rides are out of future trips. The stress on my body has been horrible this week. My rib cages and collarbone area are very inflammed and the flare is almost unbearable. I am resting this week in the hopes of getting back to somewhat normal.

No matter what, I will start exercising on Monday. I need to work on this religiously as I really feel a drop of 30 pounds before my October trip is a must. This is going to be hard, but I am so glad fresh veggies will be out within a month or so around here.

I did not rent an ECV. I did okay. Definetely followed a slower pace, but I think I enjoyed it. Next time, I am going to concentrate on photography, and speaking of photography, please let me mommy-brag, DD at her Senior Prom. Thanks, Diane.

Glad your trip was good. Start slow with the exercise so you can increase gradually and keep at it. GORGEOUS DD!

 

[brighteyes]

Guys,

This is my first day with only one dose of Lyrica and no amitriptilyne. I am already in pain today and am scared for tomorrow.

I had a meeting iwth my prof and he said he didn't think that she would do that. Gee how did I know he would say that. He said that she might have done it if he asked her to thinking it was ok since he was her boss (which he wasn't - she just chummed around with him). And further, OUR supervisor said it wasn't ok to take something off her computer with out her permission. I told my prof that I am sure she is smart enough to know you don't access someone else's computer and print stuff off without that person's permission.

Further my prof said that if it was the student then why didn't the CYW blamer her for it? She was done her placement so he could have thrown her under the bus. So my prof thinks it was the CYW of the school that I was at that did this on his own. Could have been. So he said he would ask the other student and tell me what she said. Like seriously?

He also said this is not the first time this has happened that agencies steal students work and use them as groups, etc. And that eventually I will get to a point where I am just proud of my job and if people want to be like that it won't bother me??? Does this guy NOT listen to what he teaches us in ethics and values class. Like seriously.

I said then maybe he shouldn't be having his students create groups so big agencies can steal it and market it as their own?????

Swear to GOd this makes me sick. Sicker actually.

 

[tiggspring]

Guys,

This is my first day with only one dose of Lyrica and no amitriptilyne. I am already in pain today and am scared for tomorrow.

I had a meeting iwth my prof and he said he didn't think that she would do that. Gee how did I know he would say that. He said that she might have done it if he asked her to thinking it was ok since he was her boss (which he wasn't - she just chummed around with him). And further, OUR supervisor said it wasn't ok to take something off her computer with out her permission. I told my prof that I am sure she is smart enough to know you don't access someone else's computer and print stuff off without that person's permission.

Further my prof said that if it was the student then why didn't the CYW blamer her for it? She was done her placement so he could have thrown her under the bus. So my prof thinks it was the CYW of the school that I was at that did this on his own. Could have been. So he said he would ask the other student and tell me what she said. Like seriously?

He also said this is not the first time this has happened that agencies steal students work and use them as groups, etc. And that eventually I will get to a point where I am just proud of my job and if people want to be like that it won't bother me??? Does this guy NOT listen to what he teaches us in ethics and values class. Like seriously.

I said then maybe he shouldn't be having his students create groups so big agencies can steal it and market it as their own?????

Swear to GOd this makes me sick. Sicker actually.

Bright all I can say is GRRRRRR! I'm so sorry this I happening to you before your career even starts. This seems like a systemic problem and I think they are counting on your illness to keep their secret. You will only find a solution through the dean. Placements can lose there ability to train students (ie free help) for this sort of thing. Be aware that there will be a politcal price to pay if you tell (ie possible job costs) and a price to pay if you don't (ie thinking your a pushover may bring issues latter on). Social work is a very small community that tends to like to discuss everything especially their colleages....Ahh the political life of a social worker .... we have got burned a few time for our ethics.......stinks huh?

 

[brighteyes]

Well the way I look at it is, I did a good job, and I am so over it by this point. I am just trying to stay awake for more than 4 -6 hours at a time. I am sure that people know what he is like, or know his record or will in the future.

The same as the first year student. Even if my prof does not realize, that is "not my problem" as he used to say. He has had a lot of people pull the wool over his eyes and if he can't see the good ones then that is his problem.

I am just going to worry about myself, getting better, getting my house clean, enjoying my summer.

To market this group is going to take a lot more work, like proving reliability, statistics, and stuff my prof told me that I don't even get. All of which I would do if I were to partner with this jerk of a cyw to market this. He has had no formal training so he wouldn't have a clue. So if he were to try to steal it and market it and sell it:

1). They wouldn't buy because it is just an idea, no results of sucess or stats or measurable results, nothing to show how he would measure results. That is all in my research paper, which he does NOT have, and not a clue how to do!

2) So, they would turn him down and tell him he is not prepared, (He is too lazy to do all that work, even if he knew how)

3) Or, they would steal the concept from him and use it as their own after he presented the idea.

So he will either get nowhere without me doing all the work, or he will get screwed like he tried to do to me. I'm fine with either. lol I'm not picky

I'm going to worry about myself for now and trying to get on the EA and CYW supply list and work a little bit before school is out, try to rest and enjoy the summer with my son, and if I have energy to worry about this later. A lot worse has happened in our program before and I have jumped on the bandwagon before but I just want to concentrate on my career.


I really never have to see this guy again if I don't want to. My placement is over at this school, and unless I supply there I won't see him. So I am not really worried about him.

Thanks for all your support guys. I really appreciate it

I WISH I WAS GOING TO DISNEY

 

[brighteyes]

EDuke,

To answer your question I went to the dr. today about my numbness. I was trying to describe the level of pain I have when these pins and needles set it and she said it could be nerve damage in my feet/legs. So back I am going to the neurologist.

I also was trying to describe the level of fatigue and exhaustion I feel even when doing nothing. I told her about the days I sleep until 5:30 pm and how after I am awake 4 hours I have to fight to keep my eyes open. I also have swollen glands too. She thinks I may also have Chronic Fatigue.

I am about to start my cymbalta tomorrow because after two days of only lowering my other meds, I can't take the pain.

So Eduke, I finally went to the dr. about all of the above. I still never told her about my chronic tummy problems.

 

[tiggspring]

EDuke,

To answer your question I went to the dr. today about my numbness. I was trying to describe the level of pain I have when these pins and needles set it and she said it could be nerve damage in my feet/legs. So back I am going to the neurologist.

I also was trying to describe the level of fatigue and exhaustion I feel even when doing nothing. I told her about the days I sleep until 5:30 pm and how after I am awake 4 hours I have to fight to keep my eyes open. I also have swollen glands too. She thinks I may also have Chronic Fatigue.

I am about to start my cymbalta tomorrow because after two days of only lowering my other meds, I can't take the pain.

So Eduke, I finally went to the dr. about all of the above. I still never told her about my chronic tummy problems.

Sorry your in so much pain-my chronic fatigue and migraines are really what dabilitate me. I can mostly suck up pain but not fatigue! You've had a rough week

I had stomach problems for two years taking 3x reg dose of zantac but nothing worked. Then I tried garlic suppliments gel type w parsley for smell. After 2 month my pain was gone!!! I haven't had those problems for 13yrs now. Helps with constipation too. This is what got me using suppliments. You might also want to try yo plus. My dd and dh have stomach issues and tried activia with no luck but yo plus works great. Definatly tell your dr asap but these things might help and shouldn't do any harm.

 

[brighteyes]

Hi Tigg,

I hope your week is going better! I don't have constipation issues, more like the other type of tummy problem.

I have just tried to make my dr understand how friggin tired I am, my whole life is about sleep, sleep whenever I don't have to be somewhere or just try to stay awake until bedtime. It's been this way for at least three years but way worse this last year, and I didn't even work this year.

Ah well, I am going to try to sleep now. Tigg, when do u go on your trip. Or did I miss it that you went already? Sorry, I am just not with it these days? I know you had company before, right?

 

[EDuke98080]

EDuke,

To answer your question I went to the dr. today about my numbness. I was trying to describe the level of pain I have when these pins and needles set it and she said it could be nerve damage in my feet/legs. So back I am going to the neurologist.

I also was trying to describe the level of fatigue and exhaustion I feel even when doing nothing. I told her about the days I sleep until 5:30 pm and how after I am awake 4 hours I have to fight to keep my eyes open. I also have swollen glands too. She thinks I may also have Chronic Fatigue.

I am about to start my cymbalta tomorrow because after two days of only lowering my other meds, I can't take the pain.

So Eduke, I finally went to the dr. about all of the above. I still never told her about my chronic tummy problems.

I am sorry you are having so much pain but I am glad you went to get those things checked out. I am always tired too but nothing like you describe. I am on that rotten sleep pattern again though and slept until 1 yesterday. I have been sick 2.5 weeks with an aweful cold, cough, fever thing. I am getting better every day but kinda "crashy". I have been so emotional lately too. Not sure what that is about unless it perimenepause stuff. Idk but my family is having a terrible time dealing with my crabbiness. I hate feeling this way! I also have tummy problems. I take 2 Prilosec OTC a day and don't eat gluten. The removal of the gluten has helped but the other pain comes and goes. I am afraid to do the endosopy so I suffer with it. Maybe I will have to try those supplements tigg talks about. I hope the cymbalta works for your pain. I am glad you are moving forward on your school issue too as I truely believe that people get what is coming to them eventually. So they will get theirs no matter what! I have good news - my DD got into grad school! She is so happy and I am happy for her. Do any of you live with a snorer? Sometimes half my sleep problem is beside me in the bed! Can't stand it! Ok , enough of my ramblings for tonight. Thanks for "listening"

Pixie Dust for pain free days!

~Erika

 

[brighteyes]

I am sorry you are having so much pain but I am glad you went to get those things checked out. I am always tired too but nothing like you describe. I am on that rotten sleep pattern again though and slept until 1 yesterday. I have been sick 2.5 weeks with an aweful cold, cough, fever thing. I am getting better every day but kinda "crashy". I have been so emotional lately too. Not sure what that is about unless it perimenepause stuff. Idk but my family is having a terrible time dealing with my crabbiness. I hate feeling this way! I also have tummy problems. I take 2 Prilosec OTC a day and don't eat gluten. The removal of the gluten has helped but the other pain comes and goes. I am afraid to do the endosopy so I suffer with it. Maybe I will have to try those supplements tigg talks about. I hope the cymbalta works for your pain. I am glad you are moving forward on your school issue too as I truely believe that people get what is coming to them eventually. So they will get theirs no matter what! I have good news - my DD got into grad school! She is so happy and I am happy for her. Do any of you live with a snorer? Sometimes half my sleep problem is beside me in the bed! Can't stand it! Ok , enough of my ramblings for tonight. Thanks for "listening"

Pixie Dust for pain free days!

~Erika

I haven't lived with a snorer for years. Matter of fact, I haven't lived with anyone for years. But I used to and I hated it! I am apparently a snorer but I don't hear myself. I do, however, wake myself up by making some sort of grunting noise because I fall asleep too fast, my dr. says my muscles are relaxing too fast which makes a noise I wake myself up when I do that.

Congrats on your DD getting into grad school! WOW that is an accomplishment to be proud of!!

I always find that any other kind of illness can exasperate our fibro - I think I have been in a crash for the last three months and can't get out of it. I hope you feel a lot better soon.

The gluten thing has bben mentioned before - I will research it when I get some more energy. Although I think there is something to it for sure.

What do you think about this research on fibro and cfs being caused by a retro virus?