Fibromyalgia Thread

[tiggspring]

Good to see you bright!!!

Sorry you have been so tired seems like the mo for most of us right now.

My DD12 was in an interscholastic reading compitition. Her team came in 1st out of 48!!!

As for me DS is home sick, I'm tired..nuff said


sending pain free vibes and pixie dust to all

 

[brighteyes]

Good to see you bright!!!

Sorry you have been so tired seems like the mo for most of us right now.

My DD12 was in an interscholastic reading compitition. Her team came in 1st out of 48!!!

As for me DS is home sick, I'm tired..nuff said


sending pain free vibes and pixie dust to all

Way to go for your DD Tigg! I hope your DS feels better soon. My DS is still recovering from his infection, I feel your pain

 

[tiggspring]

Cfds treatment protocall.. I didnt find this too helpful but for those new to the Fibromyalgia/ chronic fatigue world it may be helpful.


http://www.endfatigue.com/treatment_options/Shine_treatment_protocol.html

 

[tiggspring]

tired tired tired

How is everyone else doing?

Painfree vibesand pixie dust to all

 

[EDuke98080]

tired tired tired

How is everyone else doing?

Painfree vibesand pixie dust to all

I think it is the weather. I felt amazing in FLA last week with the sun and warm weather. Not so much now that I am back home... ache everywhere again.

Hope everyone else is doing well! Spring, hurry up and arrive!!!!!

 

[tiggspring]

I think it is the weather. I felt amazing in FLA last week with the sun and warm weather. Not so much now that I am back home... ache everywhere again.

Hope everyone else is doing well! Spring, hurry up and arrive!!!!!

You were in Fla last week? How bad was the construction at WDW? The pictures look quite distracting. I physically couldnt do WDW this year but not sure I would be able to ignore that much construction anyway.

 

[EDuke98080]

You were in Fla last week? How bad was the construction at WDW? The pictures look quite distracting. I physically couldnt do WDW this year but not sure I would be able to ignore that much construction anyway.

My son wanted to take a friend for his graduation trip so we went down for a week. The two 17 year olds did parks every day but my DH & I only did one afternoon at Hollywood Studios on Monday and then EPCOT on Friday. The days in between were really mellow so I got rest this trip! There is alot of construction at DTD with lots of ugly walls, didn't enjoy that. One thing I noticed is that the stores have lots of space in them and way less merchandise than they used to. Everywhere I went I noticed this, it was strange especially in EPCOT in the countries. It was wierd to me not to go to MK when we were there but I wasn't up to parks everyday and I did enjoy the days I did and came home feeling well. The sun really helped I think but I am back to the aches and pains that are New England . I love FLA!!!!

 

[tiggspring]

My son wanted to take a friend for his graduation trip so we went down for a week. The two 17 year olds did parks every day but my DH & I only did one afternoon at Hollywood Studios on Monday and then EPCOT on Friday. The days in between were really mellow so I got rest this trip! There is alot of construction at DTD with lots of ugly walls, didn't enjoy that. One thing I noticed is that the stores have lots of space in them and way less merchandise than they used to. Everywhere I went I noticed this, it was strange especially in EPCOT in the countries. It was wierd to me not to go to MK when we were there but I wasn't up to parks everyday and I did enjoy the days I did and came home feeling well. The sun really helped I think but I am back to the aches and pains that are New England . I love FLA!!!!

I cant imagine the stores not brimming with merchandise. I'm not a huge shopper but I do like alot of variety to chose from. If you dont like those ugly walls you should be glad you missed the MK. The pictures I have seen have been of very extensive walls in FL, tenting on the Castle and tenting around the entrace where the custom hat store is...so much so that they built a wooden tunnel walkway on the right side of mainstreet down a store or two. No pictures of the castle with the statue in frount unless you like pictures of construction too. Dont get me wrong they do a great job dealing with the construction but for what we have to sacrifice to go I will wait until our 20 anv in 2014 to go again.

Glad you felt better. tomorrow its suposed to be 65. I was comatosed today and in bed until 130 got kids to school then passed out. Hope thats just a sign that the weather is changing for the better.

 

[tiggspring]

Boy its been really quiet. hope eveyone is starting to feel better.

Well I finally gave in and had a houskeeper come for a day. low and behold my kids are now pitching in. DD12 asked to go to mcdonolds the night that the housekeeper came and I said no we dont have the money. A houskeeper for a few hours a week cost what we spend on two meals out. So we wont be doing that much anymore. She thenwas home when i was dealing with some banking issues and I think she realized that this was a stretch for us and could mean no dinners out or vaca this year. I came up with the idea of doing laundry as family. We have tried this before actually several times over the past three years. My two younger children get excited to do it together with a new movie DD12 keeps worrying that she may have folded one more shirt than anyone else and it always turns into a big drama.
This time we just folded laundry in 40 min then watched the movie DS9 and DD12 can alternate dishes if the laundry is done by us all. Then the two younger ones finally cleaned their rooms that were literally knee deep in stuff. It all started when i had so many days in bed and just got worse the past 5 months. Well 6 lawn and leaf bags later their rooms are clean

Maybe just maybe now that DD12 sees the effect of not helping on our $ and DS9 can now do most of the chores too we can get past the jelousy and work as a team. I wish my DD could just stop worrying she is getting cheated or asked to do to much. She is going to be perpetualy annoyed with the world if she is always looking for that one person that has more than her.

Im very hopeful I can get back on my feet with the weather improving and the kids helping. Now I just gotta make and appointment with the Dr who
I hear will treat pts who need long term antibiotic for people with diseases like lyme.


well thats all for now.

Sending painfree vibes and pixie dust for all

 

[onnawufei]

Wow, I was just getting ready to say something about being MIA too, so I guess it's good to see I'm not alone.

I've just been a big ball of WTFery lately. I was on Savella and Lyrica for my fibro, but I'm now off the Savella. The Lyrica seems to be doing okay but my brain has decided that now is a good time for my depression to stand up and say hi. So as soon as I got off the Savella I started taking Wellbutrin for that. I'm told it can take 6 - 8 weeks to see results so I'm still waiting. Y'know, in between crying for no apparent reason.

And yup, the Lyrica caused me to gain weight. At least one person in this thread warned me about that. I've put on ten pounds, which has caused me to be upset about my weight on top of everything else. It's a never ending cycle!

So right now I'm just looking forward to my birthday first, since we're going to Atlanta to see the aquarium and zoo (this is how I chose to spend my 30th birthday. With animals.) but then Disney. We have our December trip booked and my best friend is coming along with us. We're a little worried about how it'll go with rides that only fit two people, since no matter what someone will be alone, but that's my only Disney related concern. And I like it that way.


tiggspring Reading about your children really makes me think of me and my siblings when we were younger. There were five of us so doing anything together as a group was chore. And I admit, I was the one who was just soooo concerned that I was doing more than my siblings. The good news is that I grew out of it at least!

I do however, think that the five of us doing anything together would still end in drama.

 

[tiggspring]

Wow, I was just getting ready to say something about being MIA too, so I guess it's good to see I'm not alone.

I've just been a big ball of WTFery lately. I was on Savella and Lyrica for my fibro, but I'm now off the Savella. The Lyrica seems to be doing okay but my brain has decided that now is a good time for my depression to stand up and say hi. So as soon as I got off the Savella I started taking Wellbutrin for that. I'm told it can take 6 - 8 weeks to see results so I'm still waiting. Y'know, in between crying for no apparent reason.

And yup, the Lyrica caused me to gain weight. At least one person in this thread warned me about that. I've put on ten pounds, which has caused me to be upset about my weight on top of everything else. It's a never ending cycle!

So right now I'm just looking forward to my birthday first, since we're going to Atlanta to see the aquarium and zoo (this is how I chose to spend my 30th birthday. With animals.) but then Disney. We have our December trip booked and my best friend is coming along with us. We're a little worried about how it'll go with rides that only fit two people, since no matter what someone will be alone, but that's my only Disney related concern. And I like it that way.


tiggspring Reading about your children really makes me think of me and my siblings when we were younger. There were five of us so doing anything together as a group was chore. And I admit, I was the one who was just soooo concerned that I was doing more than my siblings. The good news is that I grew out of it at least!

I do however, think that the five of us doing anything together would still end in drama.

So Glad to see you! I would to go with you on your Bday. Sounds like FUN l'm Sorry about the weight. I have gained 40+lbs since we got back from wdw last may I HATE FATIGUE CYCLES

Today I am soooo excited I took vicoden,ativan and excedrin and it didnt even touch my pain....ok your wondering what the heck is she happy about. I think this means that I may be easing out of my fatigue dominate cycle to my pain dominant and hense weight loss and more active life. It will take me a few weeks to adjust and I'm sure there will be days with tears but the fact is that I can mentaly control my pain to some extent..guess I learned that playing varsity ball hurt for a year. So with meds, visualization ,lots of hot showers and heating pads and pacing I might get some of my life back. I have not figued out how to effectivly control the fatigue and the dam weight that just piles on for no good reason

well hope you are all getting back on your feet!

Sending pain free vibes and pixie dust

 

[DisneysPixie464]

Hey all I hope that everyone it doing alright with the weather changes as we enter spring.

Tiggspring its good to hear that you are having more energy I'm sure it helps with everything.

Unfortunately things are getting worse on my end, I am going to the doctor to get things checked out soon. How do you guys deal with the leg pain? when it is anywhere else I can deal with it by not moving it or just taking it easy but with school and everything it very hard not to walk. The knee braces help and so do hot baths but i was wondering if you all had anymore helpful tips on what helps with your pain, I know not all fibro patients are the same but a starting point is nice .

Hope everyone is doing well and pushing through, Im thinking about you all

 

[tiggspring]

Hey all I hope that everyone it doing alright with the weather changes as we enter spring.

Tiggspring its good to hear that you are having more energy I'm sure it helps with everything.

Unfortunately things are getting worse on my end, I am going to the doctor to get things checked out soon. How do you guys deal with the leg pain? when it is anywhere else I can deal with it by not moving it or just taking it easy but with school and everything it very hard not to walk. The knee braces help and so do hot baths but i was wondering if you all had anymore helpful tips on what helps with your pain, I know not all fibro patients are the same but a starting point is nice .

Hope everyone is doing well and pushing through, Im thinking about you all

I dont get knee pain much but if you are talking about calf pain I get that often...have it right now. Besides what you are doing I use ben gay which I find does better than the others. Also if you have tight arches the pain will go right up your leg. Good stretching... pointing toes then pulling toward you, rubbing arches. rolling ancles in circles and using foot rollers can help. walking on heels then tipy toes too. when my DD had leg pain they had her stand facing the steps and lower her heels down the step. Warning this may hurt alot before you work out the kinks. My daughter often asks why i stretch when it hurts so much and my ancles snap-crackle-pop But I do feel better after. maybe its the grunting n groanng I do while I stretch not the streaching its self that makes me feel better

 

[tiggspring]

How's everyone doing?



Sending pain free vibes and pixie dust to all

 

[LauraAnn630]

Rain, rain, rain go away! Endless spring showers with the temps in the 40's and 50's makes me ache all over!

Im going to Cali in a few week and I hope to get to go to Disneyland and California Adventure. I dont know if I will be able to do as much as I used to.

I hope to feel better when the temp rises! In Ohio that may not be till mid June. I like it to be at least 78.

I hope everyone is or will be feeling better soon!

 

[tiggspring]

Rain, rain, rain go away! Endless spring showers with the temps in the 40's and 50's makes me ache all over!

Im going to Cali in a few week and I hope to get to go to Disneyland and California Adventure. I dont know if I will be able to do as much as I used to.

I hope to feel better when the temp rises! In Ohio that may not be till mid June. I like it to be at least 78.

I hope everyone is or will be feeling better soon!

LauraAnn so nice to see you!

I feel your pain.....literaly Western Pa weather has been so bad!! We had a tornado blow through here two weeks ago. One of our neighbors saw the funnel cloud and we had golf ball size hail and WIND but luckily the tornado or two (not sure if it touched down twice or if there were two) touched down 10miles from here. Which is too close when a storm moves at like 50mph It also dropped our temp from the mid 60's to the 30's in an hour. Cant wait for this midwest weather to get warm. 20 below the norm for months on end is not funny . Are you warming up tomorrow? they say we are going from the 40's today to 79 tomorrow!!



Hope you have a great trip..really rest up so you can make the most of it. Sending lots of pixie dust your way

 

[tiggspring]

I thin k I have found a better way for all of us to keep up with the latest reasearch

There is a new palyer in thre Fibro/CFIDS foundations the International ME association founded this year. ME is for Myalgic Encephalomyietis a term used in other countries for CFIDS. Here is their Web paig.

http://www.imeassoc.com/Home_Page.html

Their facebook page is linked to many FMS/CFDS communities. If you are on faebook this is probably the the best way to find out what is going on out there

http://www.facebook.com/pages/Inter...tional-ME-Association/191236810908355?sk=info

 

[tiggspring]

ROLL CALL!

How is Everybody?

As you can see by my Ticker we are going on the Dream June 2012. I cant beleive I had to book swoooo far in advance. I waited 6 weeks to book and prices went up 20% My TA said some date in April 2012 were almost sold out...crazy, crazy .

We had a beautiful day sunday and I got sooo much done. today is gloomy and very cool compaired to 78 this weekend but its nice to not have the heat on. I'm hoping the weather and my new pain cycle mean I can start to lose weight..so far I continue to gain a lb a week. Have been since last May so that 40lbs+. It is so frustraiting to go from lowest I've been in 6 years to highest ever (not pregnant) with no change in diet

sending pain free vibesand pixie dust to all!

 

[EDuke98080]

ROLL CALL!

How is Everybody?

As you can see by my Ticker we are going on the Dream June 2012. I cant beleive I had to book swoooo far in advance. I waited 6 weeks to book and prices went up 20% My TA said some date in April 2012 were almost sold out...crazy, crazy .

We had a beautiful day sunday and I got sooo much done. today is gloomy and very cool compaired to 78 this weekend but its nice to not have the heat on. I'm hoping the weather and my new pain cycle mean I can start to lose weight..so far I continue to gain a lb a week. Have been since last May so that 40lbs+. It is so frustraiting to go from lowest I've been in 6 years to highest ever (not pregnant) with no change in diet

sending pain free vibesand pixie dust to all!

I am still alive! I hope everyone is doing well. Hate to complain but I have so much to do and no energy to do it. Last week I tried to rest and this week I will do the same. Working on planning for my DS's graduation and graduation party in May and my annual Mothers Day cookout before that. The weather has been miserable and not helping at all. Lots of aches and pains but I am still plugging along.

Sending pain free energy filled vibes to all!

Erika

 

[chell]

Saturday I arrive at the World. This will be my first trip using a scooter. I'm a bit nervous and afraid of what people will think. Then I remind myself how good I'm going to feel at the end of the day.