hey gang!
so overwhelmed by the people on this thread. i already feel like you all really want to know about evan and his trip,just like i want to know about your kiddos. it gives me the warme fuzzies
i thought tonight i would post a few more things i am planning, as well as some questions or issues iam looking for help/advice about.
*has anyone been to or planning on going to the fireworks dessert party at magic kingdom. my mom is a HUGE dessert person, and i thought it would be nice for ev o get a good view. is it really worth the cost? or does anyone have a good suggestion on where he could see wll from his chair while eating a treat from the confectionary?
I have been! The desserts are AWESOME! But I am not sure about the view...There is a wall there, so it depends on how high he can get - he may have a much better view from the Wheelchair Section in the HUB (the Hub is the circle in the street right in front of the castle)...the wheelchair section for parades is on the right side as you are facing the castle and any CM can direct you there. The earlier you get there, the better, so that he can sit up right at the rope and see all the characters in the parade.
I would do this for the night parade.
Then you can move over just a little into the street for the fireworks and see them right from the castle. The trick here is to find some place that doesn't have people standing up right in front of him - that is tricky because it can be packed with people.
So...I am almost talking myself right into the dessert party since you can at least step back so he can see the fireworks. The fireworks will be a little off center from the dessert spot, though. But he can see Tinkerbell fly very well!
* my plan is to tote ev around the park in his wheelchair. but i am concerned because it doesn't have much storage in his wheelchair backpack and because it doesn't have any sunshade on it. if i were to decide i would rather
rent a stroller for him, would they still acknowledge his mobility problems? and i guess a more imprtant question is do the strollers fit a 44 inch tall kiddo and can he see well from there. also, do the strollers have straps that can be buckled?
I would rent from an offsite company like Tracy said and get the red sticker that says "Stroller as a Wheelchair" - I would get two stickers so that they can be easily seen by CM's. I would get a special needs stroller. Let them know you are on a wish trip from Sunshine Foundation and they may be able to cut you a break on the cost. It will be cheaper than renting in the parks anyway.
* we will recieve 3 single day tickets from sunshine foundation. i am thinking that a mid day nap and lunch at the village will save money and let ev enjoy more. but with that kind of pass are you allowed to leave and come back? i have always used a park hopper, so i don't know about this.
Yes! You can leave that park and come back to that park - you just can't hop to a new park.
*do you think it would be worth the time and expense to order or make tshirts for us to wear saying that we are on a wish trip? it looks like GKTW provides special shirts that help folks know that the kiddo is "special". to my knowledge, sunshine does not. i wondered if you thought evan might get the (as you say in this thread) "pixie dust" experience if he doesn't have that. if you think i should do it, do i need to put anything special. i am sure lots of families/groups do shirts, so they may have to really stand out to be noticed.
Go down to the DISigns part of the DIS and someone there may be able to tweak a design from the Wish Trippers that are through MAW so that it says Sunshine Foundation and you can make several of those.
*i am having a real dilemma over whether to take my good camera (did i mention i have been trying to do photography on the side for families/friends with special needs kids for the last year??) or just an okay camera. my good camera is awesome, but it is heavy, and it cost a lot and i can't afford to replace it. my mom has a tiny nikkon that take decent pictures. i think it will be a lot easier to take with us. will i regret not taking the good camera. i do have photoshop, so i can tinker with the nikkon pics.
I would take the "just ok" camera. Set it on the highest setting to get the highest resolution and maybe get an SD card that can hold a LOT of pictures! I also use "continuous" setting so that it will take shots every second or something and I can take a bunch of pictures at once and just delete all but the best one. It is a different type of photography, but should work great!
* i am also going to take my little flipcam. but i don't know whether to take the laptop so i can store videos on it if it gets full. i want to take as little as possible, but i want to make sure i have enough storage to save all our memories. btw, i plan to set up a youtube channel so i can share videos with family of evan's trip. i will be sure to share it here
I would bring your computer...because you can download your pictures off your camera SD card, too and maybe not have to buy a bigger card?? There is nothing better than awesome pics of your child enjoying this trip!
*lastly, for tonight, i was wondering about suggestions for dinner at hollywood studios. i had done the primetime cafe once. i just wonder if there is a kid friendly place. i was actually considering just doing Pizza Planet. if it is anything like the movie, ev would love it.
Pizza Planet will be perfect!! 
thanks again for your help. looking foward to some good adivice
You are a great mommy, and yes- he def picked the right mommy! I'm not sure if I will be too much help in the planning and such, but I love your ideas so far. 
I think that may be it for now.
