goofyandmore
Mouseketeer
- Joined
- Feb 3, 2001
- Messages
- 475
A month ago or so, I posted a thread asking for help in flying with my 9 year old daughter with PVL (appears like an autistic child, typically no words just lots of sounds that seem like a foreign language, SI, not potty trained, a lot of constipation issues, seizures about twice a year from fever).
Well, after much debate, my husband really wants to try driving down instead of flying since we were worried about whether my daughter would be ok in a plane. Last time flying was a few years ago, and it was a real challenge. Now she is stronger and also more determined to get her way-so sitting in one seat for 2 and 1/2 hours might not work.
Now, she does like to be in the car, but I'm not sure if this length of time will matter much. I have two other children, ages 17 and 13, both typically developing.
I had hoped to go when it was cooler, week before Easter, but couldn't get Polynesian conceriage which my husband really wants. So, now it looks like we have to wait for the kids' to finish school in June.
My husband thinks driving with as little stops is best, instead of staying overnight anywhere. I am guessing that we would be really exhausted upon getting to Disney, but maybe I'm wrong.
Any tips? Also, since my daughter can't be in the really bad heat too long without the risk of a seizure, I am wondering what to do during the day, since now we are looking at going in June. She has the functioning level cognitively as a toddler. She does love rides, epecially those she sees on the Disney singalongs, but hates the crowds. She can't stay in lines and even being in a stroller is challenging because sooner or later she tries to get out of it.
Thanks! Carolyn
Well, after much debate, my husband really wants to try driving down instead of flying since we were worried about whether my daughter would be ok in a plane. Last time flying was a few years ago, and it was a real challenge. Now she is stronger and also more determined to get her way-so sitting in one seat for 2 and 1/2 hours might not work.
Now, she does like to be in the car, but I'm not sure if this length of time will matter much. I have two other children, ages 17 and 13, both typically developing.
I had hoped to go when it was cooler, week before Easter, but couldn't get Polynesian conceriage which my husband really wants. So, now it looks like we have to wait for the kids' to finish school in June.
My husband thinks driving with as little stops is best, instead of staying overnight anywhere. I am guessing that we would be really exhausted upon getting to Disney, but maybe I'm wrong.
Any tips? Also, since my daughter can't be in the really bad heat too long without the risk of a seizure, I am wondering what to do during the day, since now we are looking at going in June. She has the functioning level cognitively as a toddler. She does love rides, epecially those she sees on the Disney singalongs, but hates the crowds. She can't stay in lines and even being in a stroller is challenging because sooner or later she tries to get out of it.
Thanks! Carolyn


I still have hesitations about going and am thinking of my husband going down with just the boys because if we are just given the pass that allows you to use strollers, that will not help at all. When we were there in 2003, I actually was very nice to the person at guest relations and again when I returned at the urging of the CM at the Pirates of the Caribbean ride, to explain that advised me to ask for a different card. The woman looked at my daughter, who again, looks wise, appears typically developing, and didn't say a word, just got the new card and dropped it at me. I just walked away and didn't say a word. My time is better concentrated on my daughter and trying to keep her from having a meltdown, then fighting with anyone. So, I agree that you get more bees with honey, but sometimes, you just don't know what the other person is thinking.