Doing Disney with Jeuvenile Diabetic???

Melissa2480

Mouseketeer
Joined
Apr 3, 2007
Messages
138
Hi,

My daughter has Type I diabetes and just wondering if there are any other parents who dealt with this while at Disney. My biggest nightmare would be her catching a low while on a ride. I am considering just letting her run on the high side for the more active days. I figure that would be better than the nightmare!!

Any suggestions, advise, input?

Thanks, Melissa
 
DH is Type I, has been since he was 9 (now 44)... I don't know that I would want her to run high all week either. I would check her blood sugar more often than at home and before she gets on rides, especially.

How long has she been diagnosed?
 
My DH is Type 1 as well... he has an insulin pump, which makes everything (including WDW I'm sure) a little simpler. I'm guessing that his blood sugar will be a little low due to all of the activity... not to mention the heat! My only advice would be to check it often, maybe like every 1-2 hours, and have snacks with you at all times (lifesavers, fruit snacks, you know the drill).

The thing I was wondering about yesterday is if diabetes would qualify for a medically-necessary refrigerator in the resorts. Heat can really pose problems for insulin (rendering it ineffective, really), so it would be nice to have a fridge to leave the extra in during the day.

I think I also read once where you should pack TWICE the supplies you think you'll need - so twice the syringes/pump supplies, lancets, test strips, etc. because you definitely don't want to run out.

Good luck - it's a difficult disease and I'm so sorry your child has to deal with it.
 
DH has the insulin pump too! We love it. Gave him a new lease on life, actually. We also have anti-rejection meds, etc. to deal with because he got a kidney transplant 15 years ago.

Anyway, yes being a diabetic will allow you to get a fridge in your room for free. That's what we are doing. We don't always keep it in the fridge at home, but always in a controlled temperature; however, with the increased heat and humidity in FL, we decided better to be safe than sorry.
 

Head over to allearsnet.com and check out this link:

http://allearsnet.com/pl/diabetes.htm

This is a family of DISers, who are wonderful, warm, funny, and super cool. They also happen to have major experience with Type 1, and WDW.
 
Thanks everyone for your responses. DD does not have the pump yet. She is on carb ratio with a sliding scale which is great for her since she has more options when it comes to eating ..but with injections.

I don't intend for her to run HIGH just on a higher level than usual. I'm thinking maybe letting her go closer to the 200's instead of pushing for those tight numbers on our more active days. Checking BS more often will definitely be a plus at a time like this. We'll be seeing her doc next month and I'll be discussing with them.
 
Ok, I went to WDW last Aug with my dd (then six), just eight months after she was diagnosed with Type 1 diabetes. I was very nervous, but really we didn't have any big problems. A few lows, but no major ones, no real highs either.

I highly recommend the page linked above by the Badshoes. Great info and they are entertaining too! Like they say, it's very important to test, test, test. That's my motto for dd at any time, but especially at WDW.

One thing that helped us which I'm afraid wouldn't work for you as it appears your dd is 10 was a stroller. At that age I probably wouldn't have bothered, but with the diabetes and dd's penchant for lows, I'm so glad we did. I think you guys will just have to make sure to take extra breaks etc.

DD is also not on a pump (Lantus and Novolog). I packed doubles/triples of everything we would need. I packed WAY too many snacks lol. But you never know. I brought two vials of each of her insulins. You can get a fridge at no cost at WDW resorts because of the need to refrigerate insulin. But mods and deluxes have them anyway. At values for medical reasons, they may only give you a teensy one, smaller even than dorm size. When you check in, check the setting of the refrigerator. I hear they often jack them up before people check in to make sure they are very cold. Unfortunately sometimes that results in people not noticing the temp and medications/food freezing. You don't want that to happen to the insulin!

Any way, I carried one vial of the Novolog with us throughout the day (in a Frio pack) and left the extra Novolog and both vials of Lantus in the fridge. I also had a huge fanny pack (yes, I looked like a pack mule lol) with the insulin (in Frio pack), meter kit, glucose tabs, cake gel, glucagon kit, syringes, glucose tabs and some fruit roll ups and crackers. I also had Lia wear her own mini fanny pack with another meter kit, glucagon kit, cake gel, glucose tabs and a fruit roll up. That way if she went with grandma or my sister on a ride without me, they were covered for an emergency. Of course she also wore her medical bracelet which has my cell phone number engraved, that way if she got lost, I told her to immediately go to a WDW CM and show them that. We wore our fanny packs on the rides, because me being a nervous nelly was just sure a ride would break down and we'd be stuck and Lia would go low. Well, you never know! Didn't happen though thankfully!

Honestly I was prepared for just about every scenario I think and it went very smoothly. Lia's ratio is still very low 1:60 so she's extremely sensitive to even the smallest amounts of insulin and it's hard to dose those miniscule amounts. So for her I found just dosing less or even none at all at meal times and then letting her have a slushie or ice cream bar uncovered, worked very well.
Heck, she probably had more junk food than she would have had without having diabetes! It's ironic. I very rarely let her have juice before, now since diagnosis, she gets lots of juice and fruit roll ups (NEVER had those before). Go figure...

Good luck. Just be prepared for everything, test, test, test and take extra breaks in the heat and it should go well.
 
I hadn't thought about glucagon, but that is a wonderful idea. My DH doesn't ususally carry it, but it would be important to have at WDW, especially in the heat. Glucagon saved the life of my friend at my sister's wedding, so I can attest to how important it is! Thanks for the reminder.
 

New Posts


Disney Vacation Planning. Free. Done for You.
Our Authorized Disney Vacation Planners are here to provide personalized, expert advice, answer every question, and uncover the best discounts. Let Dreams Unlimited Travel take care of all the details, so you can sit back, relax, and enjoy a stress-free vacation.
Start Your Disney Vacation
Disney EarMarked Producer






DIS Facebook DIS youtube DIS Instagram DIS Pinterest DIS Tiktok DIS Twitter

Add as a preferred source on Google

Back
Top Bottom