daughtersrus
DIS Veteran
- Joined
- Feb 26, 2002
- Messages
- 6,658
I'm hoping that someone can explain how an EEG is read.
My DD was diagnosed several years ago with epilepsy. (it's a symptom of the genetic disease that she has). This was done with a 24hour EEG. We went to the hospital for it to be put on and then went home. We had to push the button on the unit every time we thought that she was having a seizure.
Sure enough, we were told that there was "activity" with each of these. We were told that she has "absence" seizures. Her eye go up and she stares. When she comes out of it, she usually smiles and looks surprise that we are there.
The Ped Neuro later said that they are "complex partial" seizures as she doesn't completely stop what she's doing but it's in very slow motion.
Recently the Ped Neuro noticed that her eyes "flutter". They float up very quickly and come back down just as fast. It's been years since the last EEG so he wanted a 24 video EEG in the hospital. He didn't think that they were seizures but wanted to be sure.
We went to Comer Children's Hospital at the U of Chicago a few weeks ago. While we were there, DD had a few of the longer spells that we always thought were seizures. I pushed the button for those as well as all of the "fluttering".
Our Ped Neuro was on medical leave so a different doctor read the report. was on a low dose. Our doctor just returned and called to say that no seizure activity was noted with any of the button pushes including what we always thought were seizures. He did say that the EEG also shows that she is "predisposed" to seizures. I asked him a few questions but I still don't understand it.
Can some please explain to me in "layman's" terms how an EEG is read? The long spells that she's having now look exactly like the ones that she had before we got the diagnosis of epilepsy but now we're being told that they're not seizures. I should also mention that we've never been able to completely eliminate these spells. She went from having them probably 20-30 times a day to 5-10.
My DD was diagnosed several years ago with epilepsy. (it's a symptom of the genetic disease that she has). This was done with a 24hour EEG. We went to the hospital for it to be put on and then went home. We had to push the button on the unit every time we thought that she was having a seizure.
Sure enough, we were told that there was "activity" with each of these. We were told that she has "absence" seizures. Her eye go up and she stares. When she comes out of it, she usually smiles and looks surprise that we are there.
The Ped Neuro later said that they are "complex partial" seizures as she doesn't completely stop what she's doing but it's in very slow motion.
Recently the Ped Neuro noticed that her eyes "flutter". They float up very quickly and come back down just as fast. It's been years since the last EEG so he wanted a 24 video EEG in the hospital. He didn't think that they were seizures but wanted to be sure.
We went to Comer Children's Hospital at the U of Chicago a few weeks ago. While we were there, DD had a few of the longer spells that we always thought were seizures. I pushed the button for those as well as all of the "fluttering".
Our Ped Neuro was on medical leave so a different doctor read the report. was on a low dose. Our doctor just returned and called to say that no seizure activity was noted with any of the button pushes including what we always thought were seizures. He did say that the EEG also shows that she is "predisposed" to seizures. I asked him a few questions but I still don't understand it.
Can some please explain to me in "layman's" terms how an EEG is read? The long spells that she's having now look exactly like the ones that she had before we got the diagnosis of epilepsy but now we're being told that they're not seizures. I should also mention that we've never been able to completely eliminate these spells. She went from having them probably 20-30 times a day to 5-10.
