Dissociative Identity Disorder, C-PTSD, etc.

BethCPTSD

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Mar 4, 2016
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Any experience with these in the park, when you're highly symptomatic? And please say what is "highly symptomatic" for you and how you would advise dealing with it. I'm very used to Disneyland, but not WDW, where we are going next year. Trip dates. Jan 2, for two weeks. Any advice would be appreciated. Anything at all.

Thank you,
BethCPTSD
 
I would say if you have done disney land you should have a good idea of what you need at disney world. and that should help you out when planing it looks like you will be there for a slower part besides the first few days so that should help

what kinds of things help you out at disney land and what do you find hard to do will help us out in helping you
 
Hi,
Thanks, Gap. Some of the issues are that Disneyland has always been a day trip thing, because I had passes growing up, living so close. This time it's more complicated, by staying two weeks, traveling back and forth to the resorts and all that entails, and the constant stimulation, such as the constant noise level, which can very much replicate the noise at times, in my head. Also, my husband will be along, who we need to be there, but sometimes causes a great deal more stress due to his own coping and having a difficult personality disorder. That aside, my disorders evolve greatly from moment to moment but also over the long term as well. In some ways they feel worse than ever, but it's really because I'm working on things in therapy and protective coping mechanisms kick higher and higher into gear to avoid the therapy issues, if that makes any sense.

All that to say, at this point my symptoms have been extremely severe in a way that I am more and more "aware of" everyday, which may be harder to deal with than the times in the past I've been at Disneyland (last time was several years ago now, because I moved across the country.) I have visual and audio hallucinations with my flashbacks, I also often cannot tolerate being touched, and if I am, cannot "undo" the feeling, and instead feel like someone is holding down/confining me and I cannot get away. My flashbacks are constant, and cause hyperventilating and confusion. I also am in another level of confusion because certain "groups" of inside parts are experiencing some of the things while others are not, some of the time... so distraction can help partially, as long as the ones reliving traumas can be addressed too, re-oriented and reminded where they are, who is there and what is going on. I do have the added benefit of being able to email my psychiatrist from my phone anytime of day, and he generally gets back to me once or twice in the evening, and that assurance can help parts manage a little better knowing that he'll get back to us.

I will have my large, goldendoodle service dog at that time, next year, which also should help. He's being trained mostly for my trauma disorders, but also mobility issues caused by my DID. I just won't get him till next Fall, so it's a little bit of an unknown right now.

I'm thinking things like taking afternoon breaks (esp. If it's busy), eating meals at off times, avoiding fireworks as much as possible, attending to the needs/wants of "child parts" may all be helpful. Some people have mentioned they bring noise-cancelling headphones or iPod, also a tablet for passing time and I wonder if these things could help me.

All the switching I do between parts, I do wish someone who knows it could advise on, and what kind of problems this may cause in the park, but I understand if no one has experience here with that.

Are there other things I should bring with me to calm nerves? I'm thinking of changing one anti-psychotic med to being something I take spread out throughout the day, for regular toning down of certain very intrusive symptoms. That's another thing though... how to handled intrusive thoughts, such as trauma flashbacks, etc. that cause extremely heightened anxiety and confusion if I'm hit suddenly with that throughout the park. I'm hoping, at least, sitting with Harrison (my service dog) and asking him to do some deep pressure tasks, etc. might help, but don't know if there is anything else.

I'm sorry this is so long... just trying to flesh it out. I'm not particularly shy about my disorders as you can see, if you have any questions that you think could help you come up with ideas for me, I'd certainly welcome them. Thank you so much. I hope this little bit of added info will be a little more helpful. Currently I'm almost entirely confined to my house, with the exception of going to psych appointments, but my "littlest" are so motivated and excited about going to Disney, it's really one of the only things keeping us alive right now. We no longer have much in our lives that we look forward to. By the way, we are female 37, in the northeast US, if that helps at all.

Thanks so much,
BethCPTSD
 
Oh yes... in case you didn't read the first post. I meant to say this trip I'm planning is for WDW parks this time, not DLR. My passes growing up were at DL, not WDW.
 

Have "down days" built into the trip, a day (or more) where you skip the parks and plan on just relaxing in your room or by the pool.
 
I am on my phone so this might be harder to read

I would do rope drop less crowds

Have your FP starting at 10:30-11 when the crowds start to build you can pre plane 3 a day after you use your first 3 you can get 1 more

Bring noise canceling head phone

You will be touched bumped into no way around this but a wheel chair may help you some you can have an umbrella to give you a little space

Leave the park and go back to your hotel when it is busey or go to a less crowded park.

Take a whole day off if not more your there for 2 weeks

I am not sure if a DAS card would help you or not that will be up to you/ GR to deceid
 
a couple of things I thought of...
- come up with some specific scenarios of things you are concerned about ahead of time and discuss them with your psychiatrist so you can come up with action plans about what to do. You may want to bring those plans either you in writing so that you can use them to 'ground' yourself and not lose track of what will be helpful.

- I don't know if you have thought of your actual trip to get to WDW, but you may want to plan rest days for the day after you arrive and the day before you leave to go home. That would help with getting settled and comfortable before either going to the parks or making the trip home.

- WDW has Fastpass Plus, which allows each guest to preschedule 3 attraction times ahead of time. Using those can be very helpful because you will know that you will get into those attractions with just a short wait in the Fastpass line.

- WDW is much more accessible than DL; most of the regular lines at WDW are wheelchair accessible, so unless you have Fastpass or DAS, you will be in the regular line in most cases. Service Animals are handled like wheelchairs for most attractions - using whatever access guests with wheelchairs use.

- easywdw.com and touringplans.com are planning companies that help guests spend the least time waiting in line. Some people make very detailed touring plans so that they know exactly what they are doing when. Some people find that very helpful and it decreases stress for them. Other people feel it's too much planning and not enough flexibility for them.
Even if you don't use a touring plan, those websites can still be helpful because they allow/help you to pick the least busy park for each day. They also help you to be in the least busy part of the park and see attractions in an order with the shortest waits.

- be prepared that some attractions will be very similar to what you are used to at DL (Jungle Cruise and Buzz Lightyear, for example). Some will be a lot different (Pirates of Caribbean and Haunted Mansion, for example). I'm mentioning that in case you will have anxiety related to expecting something and experiencing something different. You may want to check out YouTube videos of attractions to see how different they are to what you are used to at WDW.
 
Thanks so far, for all the recommendations and the links! Very helpful! Does anyone know, or have a general idea which attractions (rides) that don't allow service animals do or do not provide kennels at the rides? For example, I was wondering if Soarin provides a kennel, so that my husband and I could ride together? Thanks.​
 
I think that all rides that do not allow service animals have kennels to keep dogs on while you ride
 
Hi Beth :) I have read this thread and your other thread about your future service dog. I have seen that you are arriving on Jan. 2, but I did not see where you are staying. Maybe you posted it and I missed it. If so, I apologize.

I have no advice to offer concerning your specific needs, but since no one else has mentioned it, I feel obligated to "butt in" and bring up some other issues regarding your dates. You have chosen one of the busiest times of the year, if not the busiest, to visit WDW. The week of Christmas to New Year's is historically a very crowded time of year and this year, I think, will be even worse. Because of the way the holiday dates fall this year many schools will not resume until Jan. 9th. I know that many people will contradict this because they live in different parts of the country, but I can attest to the fact that many school systems will have that week off. Many people will be able to have Christmas at home and then travel to WDW during the week that you are there.

Another significant factor is the WDW Marathon Weekend which will be MUCH earlier this year. I will be arriving on Jan. 2 for the marathon weekend. Most people will arrive on Tuesday or Wednesday. Just for perspective, there will be approximately 26,000 to 30,000 extra people in WDW during that time. The actual races are on Thursday 1/5, Friday 1/6, Saturday 1/7, and Sunday 1/8. Roads around the parks will be closed and traffic will be a nightmare in the mornings, with the greatest impact on Saturday and Sunday. I assume you will be traveling in your private car rather than Disney transportation and you will experience closures and significant delays.

I don't want to be a negative person; however, this weekend will try the patience of ALL visitors but may be especially difficult for those who deal with other issues as well. You said you will be there for 2 weeks but it is possible that your first week will be a real headache. Of course, the next week will be smooth sailing! I just felt, based on your description of your difficulties, that you should be forewarned. You can now make an informed decision.

There is one more issue with regard to fireworks and again I apologize for being a "Negative Nellie". The races will start at 5:30ish on each of the 4 mornings (Thursday will be later at 6:30ish). There will be fireworks for each group of runners when they start. There will be as many as 16 groups starting around 5 minute apart on Saturday and Sunday. That's a lot of fireworks!!! If you are in the Epcot resort area you will FOR SURE be able to hear the fireworks and the DJ at the party in the morning. The DJ will start around 3 AM.

I wish you all the best and would be happy to answer any other questions that you may have about the dates you have chosen. I can't advise about PTSD or service dogs, but I worry about your ability to be happy and comfortable during this time period. I hope it all turns out well for you.

Lynda
 
Hi Lynda,
Thank you for your thoughtful response. I'm thinking we will be staying at Port of Orleans Riverside. And it is okay if Harrison hears the fireworks, it's just a different ordeal when you're standing directly under them as they're going off, and even going into a store muffles them a bit -- which would be okay. If he's not okay with them at first, it will be one of those learning curves. Certainly, he needs to be able to go all places with me, even if that means some adjustment, since I'M the one with PTSD he's prescribed to help address! :) I am aware of the marathon going on at that time. Unfortunately, that is the only time we can go, based upon my husband's work schedule... unless we went a little earlier, during Christmas and New Year's, but I think that would be even worse. I get what you're saying that there will be schools off during that first week of January, but based upon their crowd predictions, Jan 2nd is where the crowds drop down a lot... but either way, we'll just have to see how it goes, since we don't have other options as to going some other part of the year when it's less crazy. I'm definitely going to ask for the DAS, as I think my needs (being mostly psychiatric and definitely potentially helped by the reduced stress of standing outside a line of swarms of people) could be addressed well by this small favor. Although, it will be interesting to me to see what ends up being the most beneficial, as I understand there will be some rides (ones that have a separate entrance for wheelchairs) where it will be necessary I get on at the wheelchair entrance, due to having Harrison with me.

Fortunately, to my husband and I, we are not diehard rollercoaster riders, and neither of us actually even enjoy rides that drop a lot or anything like that...I like them a little better than he does, but we're kind of the types to enjoy taking in a bit of everything, especially shows, slower rides and simple things like shopping and ambiance. I grew up at Disneyland, and found it very therapeutic just to go and get away from my family and sit on a bench to regroup, growing up. It has great significance to me as a safe, and reassuring place -- something that in these current years, I could really use as my life has become smaller and smaller due to disability.

Based upon what you say about a DJ starting a party at 3am though...I do hope Port of Orleans is far enough away we are buffered from every little sound floating over from the parks! I know we're not next door or anything.

Thanks again for you comments and encouragement. Always appreciated. :) Good luck in the marathons.
 
From experience I can tell you - take your time. Be gentle with yourself. Know that your littles (if any) may get totally overwhelmed. Does your DH know what a transition looks like for you? Having that safety net to keep you safe and grounded until you are back "guiding the ship" is essential. If it feels overwhelming, take a break. I don't care if your FP is in two minutes. If you need a break...or if an alt needs a break then it needs to happen.

Do you have any comfort object that you could take with you that might help keep You present? Or do your transitions come with no warning? I'm actively working at integration, and have gotten to a point where sometimes I can "feel myself slipping". Other times I'm just gone.

Bumped and jostled is going to happen. As was mentioned, a wheelchair might help that some. Can Yiu, while you are in charge, leave a memo for the alts letting them know what's gonna happen and that you,will all get thru it and that they can and have to trust DH to keep all of you safe?

Good luck and kind thoughts
 
Hi Snowman,
Thank you for your response. And it's also really nice to hear from someone who understands the DID part. I've been in intense therapy for many years, but am polyfragmented and my systems are very confused, confusing and pretty much don't communicate and there is no control. It still feels like the constant switching "just happens" and I am at it's whim. My husband's not so great at detecting switches, though I have friends who at this point, know the looks. But I live across the country because I have to see a medical specialist for this so he and I don't live together due to this anymore, and only see each other on "vacations" (mostly, him coming to visit me.) I know I will be accidentally touched throughout the day. I think the flashbacks and freak out this will cause will not be to parts in front, but ultimately I it will result in psychotic-like symptoms from the distress of all the multi-layered flashbacks/reliving and hallucinations and I will suddenly feel that I can go no further. So, I completely agree, and plan to take things slow and to take breaks during the day. Sometimes going back to the hotel for an afternoon rest, or in more emergent (can't wait) situations, also keeping in mind the First Aid Center. In all honesty, my husband has some anxiety issues and might also benefit from taking breaks and rests when I do. I will keep the wheelchair in mind, but will first try without and maybe do my own little experiment to see what's most beneficial. I honestly think Harrison, my service dog, at that point will also be a very grounding and comforting "object" and presence to have with me, besides the normal tasks he will be able to assist me in doing, so that's a good thought. But yes, looking back at your message, my switches really come with no warning. I have to kind of conduct a bit investigatory work to figure out at all what kind of triggers I might have felt during the day. Everything in my life is so dissociated from each other, I have a really difficult time understanding my "own" experience (as fragmented as it may be.)

Anyway, thank you very much for the good thoughts. It made me think through more of how to help myself when the time comes. Take care.
 
Hi again Beth. I am so happy that you are aware of the Marathon Weekend. I hated being the bearer of bad news and it sounds like you are well informed. You will have peace and quiet at Riverside! You will not hear the fireworks or the DJ in the middle of the night. I stayed at Port Orleans French Quarter when I attended the Marathon races in January 2016. I found it to be very quiet, although you may hear other people leaving around 3 am to go to the races. In general, people who leave that early are very quiet and respectful of other people's sleep.

You did say that you are thinking of Port Orleans Riverside. I am sure you have put a lot of thought into your decision and are fully aware of where you are going. I just want to point out that French Quarter is much smaller and more compact, hence there is a lot less walking within the resort, i.e. to and from the food court and bus stops. You will be happy either way. I love both resorts and they are only a short and lovely walk apart. You will have a great trip. Just be aware that Sunday 1/8 will be the most difficult day to visit Epcot.

Lynda
 
Hi Lynda,
Thanks again! Yes, I said "thinking" of staying there just because I haven't actually gotten our reservations yet -- but that is the plan! And thanks for the heads-up about 1/8 at Epcot! That will definitely stay in the forefront of my mind!! :)


Best,
BCPTSD
 
I don't have any experience personally but have a few friends i've met who have did. I know there is a conference for DID held quite close to the parks they may have information that their participants have used. I've gone to their conference twice and found the people quite helpful.
http://www.aninfinitemind.com/index.html

I'm not sure how effected you are with the DID but I've found that what they most often had people doing were bring grounding items and knowing the locations of first aid to go rest at. I know there is a site that deals with autism in the parks with quiet places to ground but I am unsure its url.
 
Thank you so much for your input and especially the link! I have a severe case of DID actually but have an expert therapist I have a strong alliance with and will soon have a service dog for these purposes that will be very helpful for things like grounding, (and others) in the park. Thanks again!
 















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