Disney with type 1 diabetes

[eeyore68]

Help! We leave in 24 hours for WDW. We have just found put that my daughter can not take part of her insulin pump on the rides with her. We went with this brand because the rep told us she could. I can't leave it in a locker at the front of the park. Any ideas how to handle this?

 

[alizesmom]

Leave it with First Aid. They're great people.

 

[ttintagel]

If the rep told you she could, who was it that told you she couldn't? And is it ALL rides?

I haven't ridden every ride in every park, but I've kept my OmniPod with me on all the ones I have.

Anyway, First Aid probably is the best solution.

 

[Lorelei528]

Yeah, this seems crazy to me..who told you you couldn't? I don't know what type of pump she has (I also am an Omnipod user), but maybe they just meant she had to unhook herself for the ride? (sorry, I don't know the terminology)..

Worst comes to worse, First Aid..but they are only located at one place in the park...so would you have to keep going back and forth? I'm sure other people with the same pump as your daughter have been to WDW before...

try doing some more research...and try not to freak out.

But I'm curious as to who told you she couldn't take all of her pump on all the rides...I think I've heard people with one pump had to disconnect, but that's al I've heard....

 

[dawnmichele]

We've been twice with my daughter who uses a MiniMed pump, and she's never disconnected for any rides. She hasn't ridden them all, of course, but she's definitely hit most of them. If I were you, I might double check on why or which rides are out - and if some really are, please come back and let us know!

 

[buffettgirl]

I would double check that as well. I've never heard anything like that before.

And I"m entirely confused as to "part of her insulin pump". It's not like they come apart....

 

[acebatonfan]

I'm in a similar situation and also hoping for any tips on doing Disney with diabetes. I was diagnosed two weeks ago with type 1 diabetes after having urine samples at my local urgent care showing a large amount of ketones and also a blood glucose well in the 560's (DKA). Long story short, I was in the hospital for a few days and have been trying to manage my new diagnosis.

From what DM and I are talking about, my family might try going to Disney in the summer of 2014, so I will probably not be on a pump by then or on it but not confident in using it at Disney and going back to taking injected insulin.

 

[Belle4mygrl]

I'm in a similar situation and also hoping for any tips on doing Disney with diabetes. I was diagnosed two weeks ago with type 1 diabetes after having urine samples at my local urgent care showing a large amount of ketones and also a blood glucose well in the 560's (DKA). Long story short, I was in the hospital for a few days and have been trying to manage my new diagnosis.

From what DM and I are talking about, my family might try going to Disney in the summer of 2014, so I will probably not be on a pump by then or on it but not confident in using it at Disney and going back to taking injected insulin.

My little one was dx FIVE days before we left for DW!! We were going to cancel trip . She was in hospital 3 days and dr said "no way. Go. Call us every day with b/g #'s" It was a little scary being so far away but we were connected right with a nurse or dietician each morning . Anyway, that being said. She is still on injections 5 years this month.

Do everything like you would before. We checked blood , gave shots, or juice if we were in line or just walking around. I do suggest if it is hot and you are walking the entire time to check blood often. As you know , increased activity = faster absorption time. Pay attention to your body and "listen" for those lows.

By next year, you'll be a pro.

 

[buffettgirl]

I'm in a similar situation and also hoping for any tips on doing Disney with diabetes. I was diagnosed two weeks ago with type 1 diabetes after having urine samples at my local urgent care showing a large amount of ketones and also a blood glucose well in the 560's (DKA). Long story short, I was in the hospital for a few days and have been trying to manage my new diagnosis.

From what DM and I are talking about, my family might try going to Disney in the summer of 2014, so I will probably not be on a pump by then or on it but not confident in using it at Disney and going back to taking injected insulin.

I wouldn't worry about next summer. And certainly wouldn't worry about pumping or not or how confident you'll be about something you haven't done yet. It's really such an easy thing to use, and once you start you'll be like "no way am I going back to shots", just for the flexibility and normalcy it brings. So just dont' stress about next year, now.

 

[disneyfaninaz]

My DD has to been to Disney a few times since diagnosis. We have never taken her pump off during the rides. However, we do disconnect her tube (she has an Animas Ping) for the roller coaster type rides where she may pull a g or 2. The only concern is the G's causing insulin to enter the body thus causing lows later on. Don't worry about it, have a great time!

 

[Lorelei528]

My DD has to been to Disney a few times since diagnosis. We have never taken her pump off during the rides. However, we do disconnect her tube (she has an Animas Ping) for the roller coaster type rides where she may pull a g or 2. The only cocern is the G's causing insulin to enter the body thus causing lows later on. Don't worry about it, have a great time!

Yes, this is what I was referring to in my post! Thanks!

 

[ttintagel]

If she does have to disconnect on big coasters because of G-force pushing insulin through the tubing, I'd still keep the pump on my person, in a well-secured bag, instead of leaving it somewhere, and then reconnect as soon as we got off.

An upcoming Disney trip was the main reason I switched to Omnipod from Minimed Paradigm when my warranty ran out; I wanted to be able to swim and get wet without disconnecting. The only restriction my doctor and rep/trainer told me about was not to go through the backscatter/high intensity X-ray at MCO and opt for the patdown instead, and everything went great. YMMV, of course.

 

[disneyfaninaz]

If she does have to disconnect on big coasters because of G-force pushing insulin through the tubing, I'd still keep the pump on my person, in a well-secured bag, instead of leaving it somewhere, and then reconnect as soon as we got off.

An upcoming Disney trip was the main reason I switched to Omnipod from Minimed Paradigm when my warranty ran out; I wanted to be able to swim and get wet without disconnecting. The only restriction my doctor and rep/trainer told me about was not to go through the backscatter/high intensity X-ray at MCO and opt for the patdown instead, and everything went great. YMMV, of course.

Yes, my DD wears her pump in a pouch, so it never leaves her person, we just disconnect the tube and then reconnect after the ride. I will say, that we have forgotten to disconnect before but nothing ever happened, so even if you forget, as long as your testing a little more often, you shouldn't have any problems.

DD doesn't take her pump off at the airport either. She hasn't been asked to do the x-ray yet, but will probably take it off and have it swabbed. She absolutely does not want to be pat down.

 

[mastersd]

Hi,
My son uses a medtronic pump. We were told to not wear it on any rides that run using a magnet because it may interfere with the mechanics of his pump....later. He also was told not to go through the magnet at the airport. He will disconnect when he gets on the ride and reconnect when he gets off. We never leave the pump anywhere.....the pump should not go on the rides according to Medtronic. Have fun you will figure it out.

 

[lifesgr8]

If she does have to disconnect on big coasters because of G-force pushing insulin through the tubing, I'd still keep the pump on my person, in a well-secured bag, instead of leaving it somewhere, and then reconnect as soon as we got off.

An upcoming Disney trip was the main reason I switched to Omnipod from Minimed Paradigm when my warranty ran out; I wanted to be able to swim and get wet without disconnecting. The only restriction my doctor and rep/trainer told me about was not to go through the backscatter/high intensity X-ray at MCO and opt for the patdown instead, and everything went great. YMMV, of course.

would you suggest not having insulin xrayed at the airport? my ds is not on the pump but, Im not sure what would happen if his insulin was in the xray? also do you need to prove to the tsa that your child is type 1? a note from the dr or anything?

 

[disneyfaninaz]

would you suggest not having insulin xrayed at the airport? my ds is not on the pump but, Im not sure what would happen if his insulin was in the xray? also do you need to prove to the tsa that your child is type 1? a note from the dr or anything?

Insulin is fine going through the x-ray. The pump, however, cannot go through an x-ray or back scatter machine. It would need to be hand checked by TSA, which means swabbed.

You do not need to prove anything. TSA won't even ask. Frankly, they see diabetics all the time and x-ray all their supplies. They won't even bat an eye.

 

[SueM in MN]

Clod g this thread since OP's trip was a couple of months ago and there is another thread by the OP with more replies.