julia & nicks mom
<font color=darkorchid>Bad influence on the Tag Fa
- Joined
- Jul 26, 2004
- Messages
- 10,289
Tammi -
Julia developed a twitch at 11 days - no one saw it but me - so they had to do a seizure work up - told me she was fien - then everyone started to see them - it was so scary but they told me the EEG was normal and not to worry about it - it was called benign sleep myoclonus -
about a month later - my doctor (not the nurse) calls my house one night - of course I am home alone with Julila and tells me that the EEG was reported incorrectly and she did have some seizure like activity - and that a neurologist would be calling me shortly - talk about a woman losing it - I called my DH - no answer - I called my mom and was sobbing so hard I could not get a word out - she finally asked - is Julia still alive - I could barely get the yes out - I asked how she knew it was about Julia and she said she knew she was the only thing that could ever go that wrong in my life
we had the EEG repeated again and thankfully that time it was normal - it was just so scary b/c the seizure like activity went on for over a month untreated b/c they thought her EEG was normal - they told me to watch her development - and 4 years later aside from a speech delay they don't think is related to it - she is fine - the "twitches" stopped on her 2 month birthday - Christmas Day
Julia developed a twitch at 11 days - no one saw it but me - so they had to do a seizure work up - told me she was fien - then everyone started to see them - it was so scary but they told me the EEG was normal and not to worry about it - it was called benign sleep myoclonus -
about a month later - my doctor (not the nurse) calls my house one night - of course I am home alone with Julila and tells me that the EEG was reported incorrectly and she did have some seizure like activity - and that a neurologist would be calling me shortly - talk about a woman losing it - I called my DH - no answer - I called my mom and was sobbing so hard I could not get a word out - she finally asked - is Julia still alive - I could barely get the yes out - I asked how she knew it was about Julia and she said she knew she was the only thing that could ever go that wrong in my life
we had the EEG repeated again and thankfully that time it was normal - it was just so scary b/c the seizure like activity went on for over a month untreated b/c they thought her EEG was normal - they told me to watch her development - and 4 years later aside from a speech delay they don't think is related to it - she is fine - the "twitches" stopped on her 2 month birthday - Christmas Day