MerryPoppins
<font color=coral>I posted around Woo Hooty time<b
- Joined
- Sep 2, 2000
- Messages
- 16,323
MIL needs 2 cataract surgeries. DH has to stay for 10 days after each to care for FIL.
Tomorrow (today) I turn 50!Funny after BC birthdays are thrilling to me.
Hi all,
I officially get my results tomorrow but I just called the breast centre to check if my results were in (to make sure I should keep my appointment for tomorrow). Not only are my results in, but the secretary said "Yes, the results and are in and you don't have to worry, there is nothing bad there".
I still have to go in tomorrow morning, but no more worrying!
Thanks for the support.
Sorry I missed saying Happy Birthday! I hope it was special!
Terrific news! Thanks for the update.
I have my fourth and final a/c this Thursday. Last one was worse right afterwards than the previous ones, but I've been feeling a little better since last Wednesday. I've been working from home in the mornings and going in before lunch to work, then going to pick up the boys from school. I developed a mouth wore, but extra rinses made it go away, and was having symptoms of a v yeast infection, but external cream helped that. Anyone had chemo mess with yeast?
I'll have two weeks off as before, then will start Taxol. I don't know as much about it, other than it's not as dangerous or as hard on the system. Can anyone give me a brief summary on their thoughts that has done a/c and taxol? I'm trying to decide if I'll go skiing with my family over spring break. We are leaving after school on a Friday and coming back on Tuesday. My doc said it was fine with her if I went, but she said I might be prone to altitude sickness. She said even though I wouldn't feel like skiing she thought it would be a good mental break, but I can't decide what to do. Any advice is appreciated!
GAGWTA!
No good news today. Cancer has spread to an area between my intestines. 3cm. I guess the good news would be that it is not showing up in any organs. I start chemo next Tues, part of a clinical trial. Apparently there is *some* chance of it shrinking, and surgery may be a possiblity at that time. When I asked how long the chemo treatments would be, I was told indefinitely.....he thinks probably 1 to 1 1/2 yrs, and if it is no longer working at that point, they will start something different. I think the most disturbing part is that there isn't a set number of treatments. No countdown to the end of treatment. I'm pretty sure it hasn't really even sunk in yet. Seems like a really bad joke. Especially since I'm feeling fine, no systems. Seems I have one week left to enjoy that.
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No good news today. Cancer has spread to an area between my intestines. 3cm. I guess the good news would be that it is not showing up in any organs. I start chemo next Tues, part of a clinical trial. Apparently there is *some* chance of it shrinking, and surgery may be a possiblity at that time. When I asked how long the chemo treatments would be, I was told indefinitely.....he thinks probably 1 to 1 1/2 yrs, and if it is no longer working at that point, they will start something different. I think the most disturbing part is that there isn't a set number of treatments. No countdown to the end of treatment. I'm pretty sure it hasn't really even sunk in yet. Seems like a really bad joke. Especially since I'm feeling fine, no systems. Seems I have one week left to enjoy that.
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I just found out today exactly what my treatment will be starting next wed. and it will be AC for 4 treatments spread 2 weeks apart, then 4 treatments with Taxol, also 2 weeks apart. Neupogen together with them. So I can't help you, but will be interested to read anyone who can.
Going back to the hospital over and over since our son died 2 weeks ago has been like walking into hell each time. We had to bring our oldest daughter in night before last because she was having a breakdown, just could not cope. Of course in the emerg we were right beside the bed we said goodbye to him in. It's just altogether too traumatic right now. Hubby is meeting with his trauma councillor as I type.
I had my meeting with the chemo team today and they showed me around, where I'd be getting chemo, who does what, an orientation. I'm actually very scared of the drugs, and she talked about not letting my fear overtake because it does not help treatment, but right now I'm scared of everything. hubby and I tried to go to the beach last night just to look at the waves and stars, but the immenseness of it all was just too much, I was so afraid!
I'm glad to read your posts Marcij because I can see you are getting through your treatment which will be the same as mine.
I'm so sorry to everyone but I honestly can not remember much of what I had read back when I first came here, about everyone else diagnosis and what was going on with them. I am having a hard time remembering anything at all. Did I mention I had a port a cath put in last wednesday? I don't think so....it was done just with local anasthetic and I will never go through anything like that again! what an awful experience. When they take it out, they are going to have to put me out or I will not get it removed. It's still pretty tender, but I'm hoping will be all healed up by next wed. Honestly if I'd known it was going to be such a big procedure while awake, I would have opted to have some other thing instead, or demanded to be put out.
They warned me all about avoiding germs over the next while. We have 5 grand children under the age of 6, 4 of whom are ages 1-6, daughters of our son, and who need all the extra love they can get right now, so this is going to be very hard indeed. I just don't understand why these things had to happen at the same time. Anyway, I'm going to try and read back to some of your posts Marcij to see what you've had to say about this specific treatment. And what you are doing about hair loss, I'm guessing you have that too? I'm going to be wearing toques for now, scarves when it gets warm.... I'm not sure about wigs....
Hi Guys,
Only have time for a quick hello.
First, CherylI'm sad you're going through this. But I am so glad your doctor was so diligent. (Mine doesn't even check bloodwork anymore, which I have mixed feelings about since my original oncologist did.) I'm sure you've caught this very early, which is so great. Imagine if you didn't catch it? Please know we're all thinking of you and keeping you in our hearts.
smileysame with you.
marci, I will give you my opinion. I had taxol and in some ways I found it harder than the AC. I wouldn't have been up for a ski trip. A few days after the infusion I couldn't get out of bed for about 36 hrs. It felt like "bone pain" and there wasn't a lot to help it, I just had to ride it out. Others here have reported similar pain (and fatigue). Some still have neuropthies in their hands and feet from the treatment. (I didn't, long term, fortunately.) Good news is the first was the worst, the third was hard but not as bad as the first, and the second and fourth weren't too, too bad. Just very draining, especially cumulatively after the AC. You may have a different experience, but that was mine. Play it by ear.
crash, keep us updated.
to all. GAGWTA
Smilie, thanks for continuing to keep us updated here. I can tell from you posts how difficult it is for you dealing with your loss and facing your cancer treatments. I would think it would be beneficial for you to have some therapy or have a counselor to talk to as your DH is having. Alternatively, joining a support group where you can just talk things out might be what you need. I am sorry your oldest daughter is also having trouble coping. You are being so strong for eveyone else, we will be here for you.
Cheryl, I'm sorry you have to deal with this second cancer, but I agree with Linda that thank goodness your doc was diligent. I hope you can use this next week to get physically and mentally prepared for the extended chemo course ahead. I feel for you.
I can't comment on the taxol, Marci. Can you see how you feel after one or two rounds of taxol? When is the trip? If you are flying I realize it is hard to arrange things at the last minute, but you might feel miserable.
I hope I don't sound preachy but there will be other trips in the future.
Has anyone else on our thread here traveled while doing taxol?
Good morning ladies
Cheryl -I am so sorry to hear that you have to face chemo again. I am glad your doctor also kept pressing on to get answers. Glad it was found early. I am sending you my thoughts and prayers.
Smiley -So sorry you are all dealing with all of this. My thoughts and prayers are with you too. I think counseling would be beneficial for everyone and a support group would be great too.
marci - You know your body best. I just remember how you posted that you struggled at dw. Do you have trip insurance for the trip? I am sure your family will understand no matter what you decide. You have to put "you" first. I know that is tough sometimes for sure.
Lisa - how are you sista?? Miss you posting. Hope you are doing well.
crash - good news!
Laurie - I use a jar of sauce! I am no Rachel Ray!!
Dh left a voice mail. He has safely arrived in Beijing. I am surrounded by chocolate. Ds23 gave me 2 boxes. DH gave me 1. The lady at church who has cancer too gave me one thanking me for all my notes and cards. Way too much!! Dh loved the photopass book and so did ds19.
GTAGWTA.