Dis Breast Cancer Survivors - GAGWTA!

[Laurajean1014]

Forgot to tell everyone:

The tech doing the procedure is a big Buzz Lightyear ride fan. We talked for a while about the ride.

They also played some great classical music to distract me. When it was all over the Dr. thanked me for having such a great and uplifting sense of humor.

Then she gave me a hug and said she would say a prayer for me.

All in all, the techs and drs. made me as comfortable as possible.

 

[laurabelle]

Val- Ask her if she wants you there. Some people like to be alone for the procedures, some don't. Even though she's done it before, I know myself, any time I have a new cancer scare, I need support! Especially now with everything else that's going on...

Laurajean- You're a champ sista!!! You're doing everything right, good for you! I'm glad you had such a compassionate team. I don't remember the soreness lasting very long, maybe a couple of days.

ElenitaB- Welcome to our little corner of the world! I'm glad you found us! I've had too many recurrance scares over the years, and lab error happened to me once, so it's certainly not out of the realm of possiblilties. I felt the same way you do though, before I was dxed. I knew I had cancer, and it was just like going through the motions to get to the point where I could get all the cancer out surgicaly (Ineeded a re-excision) and start treatment. I have a good friend who went to the Wellness Community, it helped her tremendously!

Debbie- That was the crazy thing about this shark. We never go far out, my girls are 8 & 11 and I'm pretty protective of them and the majority of the time we're right there with them in the water, or watching closely from the shore. I don't rely on the lifegaurds, especially with so many people in the water. They're not dare devils or tomboys. lol! The shark was right where the waves break!!! I'll still go in the ocean, but be even more aware! Having said all that, hey, have fun too!

Saying prayers for you all this morning...

 

[mickeymost]

Good morning everyone

Prayers and PD to those in need.

I wanted to update everyone on my procedures. PET came back with no signs of malignancy ( thank God for that ). The infection is still rearing it's ugly head and to think I just spent $640. for 28 pills that didn't work. Now they have me on two antibiotics to cover the spectrum of bacteria ( talk about stomach issues).

I went and had the biopsy this morning. I should know results by late tomorrow or Mon.

If it is a recurrance I will most likely have radiation again. The Rad Onc said he would radiate a small portion of the breast.

The Onc says that the nodule didn't show on the PET, so he is optomistic that it is just from the infection and the 10% chance of it being benign is looking better.

You are all in my thoughts and prayers daily. I have to go and catch up on everyones posts, just haven't had time lately with trying to pack up this house.

Have a great day everyone I know mine is looking better now that the surgery is done!

Kelly

 

[Cruise04]

Good to hear from you Kelly - will continue to keep you in my thoughts as long as you need them!!!

LauraJean - glad your tests are over and hope the results turn out good.

Prayers to everyone else who may need them today.

 

[laurabelle]

Kelly- That's wonderful news so far (ok, except your raging infection which sucks!) I'm praying you'll heal quickly and the biopsy confirms good news for you! I hope they don't keep you waiting too long...

 

[Laurajean1014]

Heard from my case manager:

They need to get a second opinion and transferred it from Griffin Hospital to Yale for further review..............hmmmmm.

So, I will not know for a few days now. That stinks.

It doesn't sound good. I'm keeping up my spirits but I have a 1/3 chance of not having an operation to get it out. I would like better odds.

I'm going to give myself a hug.

 

[Pea-n-Me]

Laurajean, perhaps this is good news in that if it was definitely something/very routine they would probably be sure. Maybe they want to be sure it's not anything; or if it's something unusual they want to be sure they've got it right?? At any rate, they're being extra cautious which is always good. The waiting is so hard - you can drive yourself crazy thinking of all the possibilities. Hang in there.

kelly, praying for more good news for you.

 

[laurabelle]

Laurajean- More waiting is hard...try to keep those distractions going and focus on other things. Praying for calm and strength for you as you wait...

 

[NHAnn]

Hugs to you Laurajean, as you wait for results. As Linda said, it can be a good thing to have to wait for definite news. I'll be thinking of you...we all willl...so that means YOU should stop thinking about it (Easier said than done, I know). You too Kelly...just let the rest of us do the "thinking while you wait" thing for you.

Hey...that should be our policy on this thread when you're waiting and worrying, you just come here, type it out, and LEAVE it here. You know, like those mental techniques they teach to reduce stress/anxiety. Instead of "putting it away in a box for later" or "writing it down and putting it aside", we can "post it" and put it in the hands of the rest to pray, send good vibes, or whatever I know, I know, I'm a nutcase

Elenita---Welcome!!!

Thinking of you Val, and your mom and aunt

Update from me: radiation #6 of 25 today. Nothing looks or feels different yet. (Fine by me!!) Also...I took the plunge and signed up for the clinical trial today, had some blood drawn for that. I won't be starting the medication til after radiation is done. (It'll be either Arimidex or Tamoxifen).

Hello and best wishes to you all tonight

 

[MinnieM3]

Not all caught up with everyone but just checking in to say HI.

Having a hard day with my ex's wife coming down on my kids. Mama Bear don't let anybody mess with my kids. Be afraid, be very afraid!

 

[Tinkertude]

Mama Bear don't let anybody mess with my kids. Be afraid, be very afraid!

This is who I want with me in a dark alley!!

 

[Tinkertude]

Ok, Queens of the Pink Ribbon. I want a banner to go over my merchandice booth at the race. Help me with something catchy to put on it.
So far these are suggestions I have rec'd

It's all about PINK!

Pink Ribbon Boutique

Everything Pink

Have any new ideas or one of these stick out?

Oh good news, well I am trying to convience my self it is! The Race is having night at Driller Park (our farm baseball team) We are expecting 4000 to 5000 people. I have been given 3 weeks notice to order stuff to sell and receive it. I just love to spend other peoples money! But I'm feeling a little because I have no guidelines because it is a first. Pray it doesn't rain OUUU I should order some umbrellas

 

[MinnieM3]

This is who I want with me in a dark alley!!

Oh Tink you made me chuckle! Thought that was impossible today! THANK YOU

 

[laurabelle]

Good morning ladies! I'm up early, sipping my green tea and watching the remnants of T.S.Cindy go by...

Ann-I'm glad to hear rads is going well so far! Hoping it continues, but (God forbid!) if you have trouble, even though I didn't do rads, I'm always hearing my other suport group friends talking about different things they used. So just ask if you need it.


MinnieM3- lol! I'm with you! There's something about going through this cancer thing...and especially when it comes to my kids. You do not want to mess with me! (again, putting it nicely for the Dis boards )

Tinkertude- I think that's awesome (and yes, a little bit scary) to have free reign like that! I say be extravagant, after all you're setting the precident! I hope you're recruiting helpers!!! It's awfully early in the a.m. for me to think of names...or maybe this is the silliest time of day to come up with ideas... but the first thing I thought of was:
The Pink Elephant Table

 

[Disney Debbie]

Laurajean - Honestly - I think the waiting is the WORST part of any of this! I had to wait 5 days between my biopsy and getting the results - and even though I was 99% sure it was breast cancer - just not knowing for sure drove me crazy. I think that week was the worst week I had over the last year!

Yesterday was what I consider my one year anniversary. July 7th was the day I had my mammogram and ultrasound and was all but told it was cancer.

So - I'm officially a one year survivor now!

 

[laurabelle]

Yesterday was what I consider my one year anniversary. July 7th was the day I had my mammogram and ultrasound and was all but told it was cancer.

So - I'm officially a one year survivor now!

WHOOOOOOOOO HOOOOOOOOOO!!!
Congrats on your 1st cancerversary Debbie!!!

 

[snappy]

Good for you, Debbie !!!! Good reason to celebrate!!!

Hey everyone, say a prayer for everyone along the Gulf coast. Things are crazy in New Orleans, lots of people filling their tanks and heading west, I 10 west is crazy, even though the storm is more likely to hit along the Fla./Alabama border.

Our DD15 had just arrived yesterday am in Destin with her friend and her friend's family. They are heading back now since they had to be evacuated by 4pm. Say a prayer for them, they are in a huge traffic jam.

We are expecting both relatives and friends to get in tonight, we'll have wall to wall people like last September. Hey, I laid in a supply of drinks, ice and batteries, we should be fine here, kind of like one big reunion. Just hoping the storm doesn't veer off to the west and come up the Mississippi. Someone though along the gulf coast is going to get slammed.

 

[MinnieM3]

Hope things turn out well for all concerned, especially your DD!!

 

[NHAnn]

Stay safe, snappy & family, and everyone in the storm path

Debbie congrats on the milestone!

The PINK ELEPHANT TABLE!
I love it!!

After radiation I stopped in the Cancer Center's Resource Library, which is a nice room right by the door of this new facility....and was browsing the shelves of books, tapes, videos, pamphlets. A woman came in to return a couple of things she thought I worked there (it was unattended at the time). When I said I was a patient not staff, and that I hadn't seen any attendant in there at all, she said, "Oh, I'll just use the honor system" so I asked her how the check-out/drop off system worked. We ended up having a nice 1/2 hour chat, she pointed out a couple of the books she's read and liked, we discussed our situations....
It made me think about the fact that to me, the BEST part about being diagnosed with BC, has been the people I've met, talked to, etc. You ladies, the one today, an elderly gentleman who is having radiation for cancer in his vocal chords-he started rads the day before me and his appt is right around the same time as mione so we usually see each other coming or going,the lady that drew my blood sample yesterday at the onc office was a peach....

It's interesting to me that I have actually FOUND a "best part" of this this experience. OK...gotta go now before I get all emotional again

happy weekend!!

 

[Pea-n-Me]

Ann, I couldn't agree with you more. It does change your life and open up your world to a whole new one you never dreamed you'd be a part of.

I still have to tell you guys about my Relay. I'm working my way up to it. Having the kids around makes it more of a challenge to write. But that night never brought it home to me more how this experience has really changed my outlook on life and the people who mean the most to me.

snappy, stay safe and prayers for your DD and her friend.

Debbie, congratulations on your one year anniversary!