Nothing like a little excitment to go with some Pre-Trip Planning.
So yesterday I'm at work until 3:30 and after my shift get a frantic call from my wife. She is distraught and has no idea what to do. It seams that at some point that afternoon either during Aidan's PT or after he had chosen to remove his own Trach. Well for us this is the first time to have him do this. the problem was, It wasn't going back in, nor was she able to get in the smaller size.
Aidan for the last 3-4 months had been using a Cap on his Trach for about 95% of the time and we had been planning on removing it after the Cold and Flu season, but had been praying for healing. Was this the answer we had been looking for? Was this decision being made for us? What are we suppose to do? Do we have our answer, but now by fear we are trying to push something back in that isn't suppose to go back? We were at a loss, so I rushed home to find her quite emotionaly torn. However I don't think I have seen Aidan so happy.
We called his pulmenologist and he said to get to the ER and have them replace the Trach. So with heavy heart we drove to the ER, we were quite confused and even more not wanting to follow these directions. So what do I do, but call the church. I wanted people praying for us and we needed a little support. Well one of our volunteers picked up the phone and guess what, she is an ER Nurse Full Time. (Tears are flowing as I now type) She was calm and collected, agreed with our pulmenologist report, but listened to our concerns.
We were quite torn, we didn't know if we were listening or directing. Well she said the Lord is in control and let's pray for the Doctor's, not Aidan. Let's pray they listen to the Lord, allow him to make the decison through them and with Faith believe that this direction has come from him. So this is what we did. We arrived at the ER and they rushed us right into the room. Well you walk in with a 21 month old, who has removed his own trach and people do jump through hoops. Well we get in the room, nurses moving quickly and I say, hold on folks it's really not so bad, check his stats. He was statting at 100 oxygen level. He didn't need the tube, it wasn't such a rush. Well about 30-45 minutes later and a bunch of nurses scratching their heads the Dr. came in. See there is a rule that you DON'T remove trachs in the Winter, but the boy in front of them didn't want or need it back in, we thought.
He listened to our story and wasn't really sure, he said we would need to use a Trach Stretcher and put it back. We mentioned one of his doctor's, the one that did his Cochlear's was in the hospital and he know's him well. This Doctor knew Dr. Bauer and chose to call and discuss the child. I could hear him on the phone saying how healthy he looked, how he was doing really well, how there is "the rule", it was actually quite humerous and we couldn't tell what direction they were going. He finally came back and spoke with us. This was our answer, we were going to except it.
Well it seams by a 2-1 ruling the Trach was staying OUT
. We were going to be checked into the PICU for observation overnight. I wasn't changing clothes, I wasn't eating, but sometime the next day if all goes well, my son was going home Trach Free.
Well I right this, this morning after a very calm night. No alarms, no stats below 97 and besides the ice and junk outside I think I'm waiting for a Dr. to come up this morning and release us.
Praise the Lord!
How exciting for your whole family!
I'll send you an invite as soon as I'm through here!
It's not going to be anywhere near as cold as a lot of you have it. But yes, it's going to be a drastic difference from yesterday. Our low today will be in the mid-upper 30s. And a bit warmer tomorrow.
Now that I said that we won't get mail for the next 3 weeks. 
If she ate the fishing line we could be in for a very expensive vet bill. 
