2tinkerbell
DIS Veteran
- Joined
- Oct 9, 2013
- Messages
- 901
My sister has Crohn’s. She travels with us a lot. It is just the 3 of us - sister, DD and myself. The reality of the situation is when she has a flare or thinks she is going to have a flare, she will not go with us, but will stay in the hotel. If she is out and has a flare, she will tell us to go ahead and will be in the restroom. If it is something she really really wants to do, we either get out of line with her or we go again later. Sometimes we go back to the hotel. Yes she sometimes misses out and yes, it isn’t convenient, but that is what we deal with. It is the same with my neurodivergent DD. We miss out on many things. If she begins to get overstimulated, anxious, or overwhelmed, we get out of line, or don’t even get in line and go somewhere quiet. If that doesn’t work, we go back to the hotel. I look at it as just something we deal with in the best way possible. My brother has T1 diabetes since he was a young child. He is almost 60 now and is in perfect condition and is well controlled. He travels all the time for work and pleasure. We have never really gone out of our way to accommodate him. He does his own thing. We never say, “Oh we have to (blank) because he has to (blank).” We just met for lunch and he just nonchalantly took care of what he needed to. He did it quietly and he ordered what he wanted/needed off the menu. When it came to dessert, he knew that I wanted a particular dessert item and ordered it for me. No big deal. I have my own disabilities (PTSD and physical limitations).
I guess my point of all this is we accommodate ourselves whenever we can. If we miss out, oh well. We get to do a lot of things and are grateful. And yes, we pay the same amount of $$$$ as everyone else - airfare, tickets, hotel, ground transpiration, food, etc.
Stuff happens. Things don’t always go the way you planned or would like them to. It is hard sometimes, believe me I know. We have had to cut a vacation short. We have had my sister in v-tach and in the hospital, transported to Boston from the Cape and had a ventricular ablation all while on vacation. We have had to make changes in plans the last minute. It isn’t easy or fun. We make the best of things and laugh at some of the things that happen.
I guess my point of all this is we accommodate ourselves whenever we can. If we miss out, oh well. We get to do a lot of things and are grateful. And yes, we pay the same amount of $$$$ as everyone else - airfare, tickets, hotel, ground transpiration, food, etc.
Stuff happens. Things don’t always go the way you planned or would like them to. It is hard sometimes, believe me I know. We have had to cut a vacation short. We have had my sister in v-tach and in the hospital, transported to Boston from the Cape and had a ventricular ablation all while on vacation. We have had to make changes in plans the last minute. It isn’t easy or fun. We make the best of things and laugh at some of the things that happen.
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