Could Use Some Good Wishes - Lupus Test Today-2nd Update #46

[Christine]

After dealing with a redness/bumps on my chest for a long time now and going through some treatments for it, I finally went back to the dermatologist this morning for the follow up.

He is now running the dreaded lupus test along with a CBC and complete Metabolic Panel. I'm scared!!!

Please send your good thoughts my way and hope that my "blood" is healthy!!!

 

[L107ANGEL]

Good Luck!

 

[kejoda]

Good luck!!! Lets hope he finds something simple and easy to treat!

 

[disneynutt1225]

Good Luck to you! I hope you get to the bottom of it finally!

 

[luvwinnie]

Been there! I was diagnosed with "lupus LIKE" connective tissue disease. Do you have systemic symptoms or only the skin? GOOD LUCK!

 

[escape]

Sending you some pixie dust for good results.

Keep us informed.

 

[luvflorida]

Sending good thoughts and I hope you hear good news!

 

[Christine]

Been there! I was diagnosed with "lupus LIKE" connective tissue disease. Do you have systemic symptoms or only the skin? GOOD LUCK!

I don't know. But basically, I don't feel well most of the time and my chest and neck are very red all the time. Then I get itchy and some bumps. I am also very sensitive to the sun and flush easily. Could be rosacea, could be a host of other things. They aren't convinced I have lupus but thought they should at least check it all. It all makes me very nervous though.

 

[Minniespal]

Sending lots of positive thoughts your way

 

[need_a_Disney_fix]

Prayers, (((hugs))) and Pixie Dust are coming your way. Please keep us posted.

 

[Wishing on a star]

Be aware that this test will usually always come back negative... even if a person does have Lupus. It usually takes years to diagnose.

I have had Lupus Flares, including the tell-tale butterfly rash.
I have all the classic symptoms..... unbeleivable chronic fatique and not feeling well.

I also have other diagnoses autoimmune diseases, like Hashimoto's and allergies.

But STILL, no positive test result for Lupus.

 

[Blondie]

Good luck!

 

[Christine]

Be aware that this test will usually always come back negative... even if a person does have Lupus. It usually takes years to diagnose.

I have had Lupus Flares, including the tell-tale butterfly rash.
I have all the classic symptoms..... unbeleivable chronic fatique and not feeling well.

I also have other diagnoses autoimmune diseases, like Hashimoto's and allergies.

But STILL, no positive test result for Lupus.

Yes, I have read this on the internet. I guess it will only show up if the lupus is REALLY BAD.

The doctor ran an ANA Titer, a Sjogrens antibody, a CBC w/differential, and a metabolic panel. I think there are actually several more, thorough, test that could/should be run but this is about as far as a dermatologist goes. I think that if we really suspect it, I will have to go to a rheumatoid arthritis doctor.

 

[luvwinnie]

When do you expect your results? My dr. generally gets them in 2 days. Let us know.

 

[Pixiedust34]

I hope all goes well for you.

 

[Maleficent13]

I must have missed this thread on Friday. sorry! Still, !

 

[HaleyB]

Be aware that this test will usually always come back negative... even if a person does have Lupus. It usually takes years to diagnose.

I have had Lupus Flares, including the tell-tale butterfly rash.
I have all the classic symptoms..... unbeleivable chronic fatique and not feeling well.

I also have other diagnoses autoimmune diseases, like Hashimoto's and allergies.

But STILL, no positive test result for Lupus.

I didn't realize it was hard to tack down. My doctor told me a few years ago she thought I had Lupus, but my blood test results were negative. I just assumed it meant I don't. I have Hashimoto's and arthritus too, along with some skin problems.

Is there a specific treatment for Lupus, or do you just treay symptoms when they flare?

 

[luvwinnie]

I didn't realize it was hard to tack down. My doctor told me a few years ago she thought I had Lupus, but my blood test results were negative. I just assumed it meant I don't. I have Hashimoto's and arthritus too, along with some skin problems.

Is there a specific treatment for Lupus, or do you just treay symptoms when they flare?

Here is some info for you:

http://www.lupus.org/education/articles/diagnosis.html

 

[luvwinnie]

another link:

http://www.mayoclinic.com/health/lupus/DS00115/DSECTION=8

 

[Christine]

When do you expect your results? My dr. generally gets them in 2 days. Let us know.

Hard to say since this isn't my regular doctor. Usually my general physician and endocrinologist will call me back within a day or two after tests. This dermatologist, I just don't know about. Two months ago when I had my molees biopsied, they gave me a piece of paper stating that I had a biopsy that would be sent out to a lab and that I was to phone their office in *2 weeks* for the results. Now, I don't know if mole biopsies take longer, but I thought that was a long time!!

The worst part is that I know those results are probably sitting in their office today. I do know that the doctor that ordered my tests is not in today. I guess if I don't hear anything by Wednesday, I will call on Thursday. I hate the waiting.