Cochlear Celebration at WDW-anyone have info????

d's do disney

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Oct 11, 2006
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My son has treacher collins syndrome and wears Baha implants made by Cochlear. They sent us a post card about an event they are having in Feb. 2011 at WDW resorts. Since we are a HUGE Disney family, this really sparked our interest. Of course, the website has NO information about it yet and we could definately "squeeze in another trip" if it was worth it.

Does anyone have any info? The website says they did one at WDW in 2006. So, I thought maybe someone here might know about it.
 
Thanks for the reply. Yes, I went to the website as soon as I got the postcard. But, all it says is registration info coming soon. We looked at the pictures and the videos too. It looked like they were having fun.

I was hoping to get some info on the discussion topics and meet-n-greet stuff. We've never taken our DS12 to anything like this and I don't know if his "cool factor" would tolerate taking time away from doing disney stuff and learning about Baha stuff. KWIM?

I'm hoping they'll post more info soon. I'm also waiting for customer service to call me back from Cochlear.
 
My DD wears Freedoms. We've never been to a Celebration before, but we are considering changing our March 2011 trip to February to be there this time. If anything, just to give her the opportunity to meet other kids with CIs in a fun, comfortable setting. She has shown no interest in any of the local CI meet and greets, but Disney is a whole different ball game. :)

I seriously doubt she would have any interest in the forums or seminars, but hopefully we can bring a GP to free up some time for DH and I to attend.
 

Still waiting for my call back. If I get any info, I'll post. We talked about it as a family and my DS seemed to be excited about it. But I'm not sure it was for the right reasons. lol

He said, "We should definately check this thing out." I replied, "I'm surprised, you've never wanted to attend something like this before." Then he says, "Are you kidding me, whatever it takes to get us back to Disney." And he walked away laughing. In that moment, I was so proud. I told my husband that our son has my sickness. (And I wouldn't want it any other way.):hug:
 
We went to the Cochlear celebration in 2006. My daughter had one implant at the time and I was thinking of going bilateral with her and what better place to get more information then a conference and being at Disney was a plus. Bilateral was a new thing, then. Most doctors would only do one. It was the MOST amazing experience we ever had and we have gone to Disney many, many times. We met amazing people, got to talk face to face with Cochlear's president and heard straight from the inventor of the cochlear implant. I could go on and on about the conference. I would go and may go again in a heart beat! If you have any specific question, please let me know. The minute I got home, I called a surgeon and she was bilateral a few months later!
 
Princesskrys, Thank you so much for your response! I have a few questions. How much time is made up of seminars and lectures? Are they all "informative" or do they have social get togethers too? Does everyone stay at the same resort or are guests spread out at all of the resorts?

I have so many questions... Thanks for your help. We're really considering it but my DS12 won't tolerate an "all work, no play" kind of trip to Disney. lol
 
Princesskrys, Thank you so much for your response! I have a few questions. How much time is made up of seminars and lectures? Are they all "informative" or do they have social get togethers too? Does everyone stay at the same resort or are guests spread out at all of the resorts?

I have so many questions... Thanks for your help. We're really considering it but my DS12 won't tolerate an "all work, no play" kind of trip to Disney. lol
OK I am going back a few years now and I am going to try and remember the details, I am excited I can actually answer a post...
This was the very first Cochlear Celebration they had, so I don't know if they went overboard or if all have been as extravagant. I did not go to California or Texas, so I can't compare.

Most people stayed at the same hotel the conference was at, Coronado Springs, but I am sure many stayed at the value resorts and traveled back and forth. I would definitely stay where the conference is it made things very easy and fun. The first day started at night, actually, with an ice-cream social on the beach (at the hotel). The characters where there, the princesses where there and Heather Whitestone was there and spent time with each child that wanted to try on her crown. I have a special place in my heart for her, she was implanted with her first implant the same day my daughter was. (OK, I know too much information.) The next day began the conferences; you could go to your choice of sessions. The kids were very well taken care of while the adults went to the sessions. It includes a very nice lunch and they lasted until just after noon and then they did an exhibition of different products that could be used with the implants such as t-coils, assistance for phones etc. The president of Cochlear Corp was there and he is so nice and down to earth. That night they had the most impressive event I could imagine. I cried when I walked in (actually spent a lot of the weekend crying - happy tears realizing how far we have come since she was diagnosed deaf at birth.) You walk into the room and they had different buffets set up, Mexican, Chinese, American and a kid’s buffet that had hot dogs, mac and cheese, chicken nuggets and a dessert buffet. One corner of the room was Mickey and Minney posing for Pictures, the other side some princesses. Every half hour they changed characters. They had face paining in one area, hair braiding, games where you could win prizes, Character drawing, roaming juggler, magician, band. (All free) I think of the most glamorous wedding I ever went to and it cannot touch this event.

The next day had more sessions where we met as a group and heard from Tom Westman. He is the New York Fireman that won Survivor, but what is never discussed on the show is that his daughter has a cochlear implant. He talked to us about his daughter and we could ask questions about being on Survivor also, but no-one did. The Inventor of the Cochlear implant did a talk via live feed, but I understand he came to at least on of the conferences since. Not sure if it was California or Texas. Also we got to talk to the person in charge of research and development. We then all met again as a huge group in the early in the afternoon and saw the video showing with all the pictures of the weekend that is now on the website. As an FYI if you watch the video, my daughter is the very last picture in the video. Sorry if I gave more info then you were looking for, but I could go on and on about this conference. I just received my postcard today and even though I am not looking for information like I was then, I may just have to take my daughter again. Feel free to ask any questions or PM me.
 
You are so wonderful to take the time to post all of that great info. Thank you.

For us, it seems like a great reason for another trip. I'll PM you if any other questions come up. Thanks again. :worship:
 
Looks like they've since updated the info on their website and Coronado Springs is the site again.

Looking forward to going.
Had my CI activated in January and loving all the new sound:cloud9:
 
Wow! I had no idea they did so much! It sounds like a really great conference.

DH nixed the idea of moving the March trip up, because he doesn't want to go when it's too cold to swim. After your description of events, I think I may need to push harder. :thumbsup2

I'd love to hear more, if you feel like sharing. :listen:




(I've always wanted to use the :listen: smiley :laughing:)
 
Tell your DH that the water in all WDW pools and water parks is kept in the low 80's all year. And you'll buy him a new robe for the trip.
 














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