Yes, I hope he orders one. Some are hard to talk to, some are easy. They are Brain surgeons after all. When I go now, I just simply say I would really appreciate if you could also request the full spinal in case there is another syrinx, "WHAT DO YOU THINK".. I find they need to have that power, they are after all the specialists. The one that was my surgeon was just brilliant, and I can't say enough about it. Stayed with me overnight, came in at 2am when I was leaking at home, I was ill over him numerous times. He let me out for a 24pass when I begged and cried, he kept my bed open, as he was sure I would need to go back. Aside from his brilliance, he was just what i needed, he was kind. You brain is operated on, and you are extremely emotional. This is why the groups are very good, they are also good for support systems such as yourself.. The wealth of knowledge and caring is honestly unreal. They are families. We have fundraisers hoping to make it more known, there are DR's who do not know what it is, neuro's for goodness sake.
Off my rant..
I don't know about most people, but after 5 active years in groups, A LOT of people yes.. Myself I was working, and just getting sicker and sicker. RAPID loss of weight, balance, vomiting, etc. The headaches were as you describe for your daughter. I would lay in bed and just almost want to never ever get up. My children were in much younger, they are now 16 and 19, but my husband did not know what to do. It took about 2-3 months of testing, the Neuro surgeon said to my husband this is so bad if I wait 3 months, your wife may not be here. A week or so later is when the syrinx gave me a hard time let's say.. So I had to wait to be healthy enough to be able to undergo the surgey. THe herniation has no bearing on how bad it is. Any Dr that says that, RUN FAST.. Mine was 6.99 below, and by the time of surgery was 17, 3 , because I was not fit for surgery for a while. My surgery was supposed to be 5 hours, it was 9, the longest it was safe..
But yes, from the forums and members I speak with, and stories I read, it happens fast. Also what I think is minor things happen over the years but we just push them off you know? oh just a headache, or I am prone to migraines. Until the falls happen, or for me I was dropping everything, falling down stairs. They were sure I had MS. My vision was always ok, except during the migraines..
I have to say for some positivity, I am on a pill 2x a day for preventative migraines, and it helps immensely. I still have prescriptions for migraines, but unless I am under a lot of stress , I hardly need them.
I go next week for my MRI"s.. 2x a year.. My surgeon told me it will grow back, we never know when. It can be in a year, 10, 30.. Nobody knows..
Right after my surgery I was dying of thirst and couldn't understand why my nurses would only fill my water half way. I drank SOOOO fast that it caused me to throw up in bed TWICE in ten minutes. My poor nurses, but they were great. The scary thing is is if I had ignored this, I would have gone blind and that's one of my biggest fears in life. My neuro opthamologist said my eyes were REALLY bad. I had no idea how bad. But I wish luck to your DD! 
, I would be glad to.
