can use a bunch of good thoughts prayers and pixie dust.(long drs update vent)

FroggyinArk

<b><font color=darkorchid>SPF's All Time Favorite
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Mar 27, 2004
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Today has been one of those days and to top it off it was at drs appointments:) we discovered to day that our favorite dr Dr Kim the surgeon that has stuck us out through all io've had done, even to the point he came in and saw me after church just to visit not as dr patient, today waws the last time we get to see him on a regular basis, he is leaving university and moving to the veterasns hospital in jackson, he'll still be with me when the university surgeons schedual surgerys, but he is no longer the primary on my case. ok start at the begining:( qwe got to dr kims office around 12 today for appointment, see him first then see the ent surgeon at 2 be home by 6 wrong. dr kim didnt have stuff he needed to restitch my eye,so we had to see him , then go over to ent then return to get eye sewn back up, well at ent office we were 2 hours early,, but miracles happen,,they worked me right back and i was second patient in after lunch,the resident came into rooom and had infated my expander in 10 mins she asked me to stay put because dr wanted to see me too , ok i wait,, and wait ,, wait some more,, after 49 min he shows up,, starts poking on the skin around my eye asking me to tryand close or open eye,, he decides that we arent goingto get any useage out of teh new upper lid, just corneal coverage,, but the lower lids goiung to be ok, it shoud move properly,, still, with no use age of upper,, i not any better off,, this hit me hard, i got very upset and was still notin a great mood when he left the room. i came very close to telling him i wanted another oppinion, that i was going tofind a surgeon at a different hospital and some one would fix my eye. he did say some things that we can interpret as being i can do some other thigns to make it work later,, but still,, aftyer 8 months of its going to work do NOT tell me all we can hope for is coverage. i have it on a higher authority that he is wrong., well after that we went back to dr kims,, he was tied up with another patient and we ended up waiting another hour,, then after he stitched my eye shut again, he realized i wasnt goingto see him next week, that he was leaving me,,lol,, he did promise me he would be around to check on me and to assist in the or when ever they do the operations, and he told me he was sure dr j was wrong about the no useage thing too:) traffic was horrid today,, several idiots on wheels out there, even had 2 18 wheelers that kept cutting each other and dw off. anyway, we finnally made it home about 9 pm and now i am exhausted, sore, and agravated that the drs are not wanting to promise me operation any more:) .. anyway, the always up, strong, hard headed, keeping my eye on the bright side good natured old frog has had a bad daya nd is not very up, chipper, or hopeful at the moment:) please say a few prayers and send a few good thoiughts my wway. i am hoping to be more myself tommorow. sorry this is so long, but i needed to vent:) thanks in advance cayse i know i can count onthe dis to get my spirits back up and me back in my normasl mind set:)
 
whew! What a long day for you! Don't lose your hope!!! Keep it going!
 
Prayers and pixie dust to you. Keep the faith.:hug:
 
Good thoughts and prayers coming your way!! :hug:
 

Sending good thoughts your way. You've had a VERY discouraging day but don't give up! :sunny:
 
Hey look Mr. Froggy tomorrow is another day.

How far would you have to travel (or would you be willing to travel) for another opinion on this reconstruction? I think you need to explore your options and not wait too long to do it. You obviously are good with the computer; start your searching there. opthalmic/facial reconstructive surgery yada yada...

I'll have my family get to work on some serious praying tomorrow. My kids ask about you now every day. They are rooting for you! "Yeah Mr. Froggy!!"
May God give you the strength to face this latest hurdle with the incredible grace and humor that has seen you through all these difficult months.

Lets all put our thinking cap on for Froggy.

I live near MUSC's STORM EYE INSTITUTE (Charleston SC)
and I know the wilmer in Baltimore
The WIlMER EYE CLINIC is at JOHN HOPKINS in BALTO. MD

Who else has a great eye specialty hospital near them that Froggy can look up?

To what lengths would any one of us be willing to go for a decent, working pair of eyelids. That is not asking too much for heavens sake!

We have to help! Think people think!
 
Froggy, first of all I hope today goes better for you. What a whacked day!
Are you going for that 2nd opinion? Sometimes people don't because the whole thing is quite exhausting and we become close to our drs. 2nd opinions are quite important though.
We almost signed my son up to have 6 surgeries at one time (in one foot). The 2nd opionion was that only 2 surgeries would be needed and that they should be done separately. This is a much better situation for him. While it has nothing to do with your eye, it just goes to show you what a difference another opinion can make. Maybe you will get an opionion from a dr. who is constantly researching new processes?
Good luck to you.
 
I'm sorry you had such a discouraging day. With all the medical advances, there just has to be a way to fix your lid. Hopefully the information from Stacilee will give you hope.

Hang in there.
:hug: :hug: :hug: :hug:
 
Awww Froggy, don't let 'em get you down. :hug: Don't ever let anyone tell you "you can't", "it won't", yadda, yadda, yadda without a fight (not a fist one of course! ). Do whatever you need to do to feel comforatable that you've done everything you can for yourself! Don't ever let ANYONE, not your doctor or anyone, set limitations on you! Ya never know what the future holds, never!

I hope today is a much better day! :sunny:
 
:hug: Hoping today is a better day for you! That was a horribly long day. Definitely look for another opinion! :hug:
 
Hi Froggy, Hoping you had a better day today! That sure was one long day to turn out so disappointing. You hang in there and I'm sending tons of PD and saying some prayers that things will work out.
 
You need a whole dumptruck full of pixie dust, so get ready, I'm about to plop it down on your driveway. And don't bother getting a wheelbarrow to move it, just jump right in and hang out in it for awhile.:hug:
 
Froggy, sending good wishes your way for a brighter day!! If you're looking up eye places, how about Wills Eye Hospital in Philadelphia! If they don't do facial reconstructive surgery, they sure know who does in the Philly area! My daughter was born with cataracts and has had 4 surgeries there - her vision with contacts is 20/30 (20/40 if she hasn't cleaned them for a while ;) ).
 
Don't let them get you down. I'd find another place if I could and see what they say. Saying a prayer for you.
Ann
 
thanks guys, i am going rto hang out with the drs at ummc for a while yet . let them at leats finnish this round before we try elsewhere, i just had abad time of ity yesterday and this dr is not th e best at bedside manor i think he is still looking at the options of other things happeming t o make it work just not this particular surgery,, his timing stinks,,lol,, anyway, i am feling better about things today, i did something he told me i couldnty do yet,, i went to work today, wasnt able to do a lot but i was able to help dw and helper get a beam up and trimmed out in this office shes remodeling. that made me feel better and i know after reaeding all these responses that God has still got his hand in there keeping me going, so hopefully it wont be much longer before we get the expander removed and the ttransfers done, hopefully the dr will be wrong that we will have workable eye lids after its done. i will check out the eye clinics online when i feel more like sitting here for anylength of time:) thanks all,, and DAN you have agreat time,, dont you worry bout me you are in the land of wishes and should have no worries this weekend:) have a lil extra fun for me will ya:)
 
I admire your attitude for all you've been through Froggy.
Here's some :wizard:, :goodvibes, :hug:, and ^i^ that things continue to improve for you.
Keep the faith! My best to the family.:flower3:

Godspeed ^i^
:hug: Sandie
 


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