Tnkrbelle565
DIS Veteran
- Joined
- May 14, 2004
- Messages
- 8,490
She is a little fighter...that sick and getting feisty...must be a good sign 
Becca's Wish Trip........Update:September 2011.....Photo's....Sorta :)
- Thread starter llurgy
- Start date
The Moonk's Mom
DIS Veteran
- Joined
- Jan 23, 2008
- Messages
- 1,613
Go Becca!
So glad to hear you are getting a little better care!
Hope everything continues to improve!
Still praying!
So glad to hear you are getting a little better care!
Hope everything continues to improve!
Still praying!
mom2lilnick
Mouseketeer
- Joined
- Aug 19, 2008
- Messages
- 483
Praying.
tinytreasures
DIS Veteran
- Joined
- Oct 27, 2008
- Messages
- 1,696
wow a 3 hour MRI that had to be so hard to watch
I am so glad she is getting her point across to everyone
way to rally Becca
I am so glad she is getting her point across to everyone
way to rally Becca
3princesses+aprince
DIS Veteran
- Joined
- Feb 24, 2006
- Messages
- 3,878
I'm so sorry you still have to watch her in pain. But the fact that she is communicating is GREAT! Good news.
Shannalee724
Mouseketeer
- Joined
- Jan 17, 2008
- Messages
- 342
I just can't thank you enough for sharing your life with us. I enjoy reading about Becca's fiestiness everyday. She is such a brave little fighter!!!
design_mom
probably more like my dad than I care to admit
- Joined
- Feb 1, 2007
- Messages
- 6,203
Continued prayers from Ohio for Becca and a smooth recovery.
FSUDisneyGirl
<font color=#FF8000>Hey, my eye feels weird....AAA
- Joined
- Feb 28, 2006
- Messages
- 1,639
I check up on Becca every day! I'm so happy to hear that things are getting better in her unit!
HeatherSue
Join Date: March 2004
- Joined
- Sep 20, 2007
- Messages
- 3,254
I'm still praying for Becca. I'm so glad that she is able to communicate with you now. But, I'm so sorry that she's in pain.
teresajoy
Remember the Tag Fairy?
- Joined
- Jan 22, 2001
- Messages
- 6,355
I was just loggin in to post that I was going to bed and wouldn't be posting an update tonight and then an email from David popped into my inbox! So, here you go!
Day 12- Room with a view
BECCA UPDATE
Day 12- Room with a view
Most days I forget to say something in my updates, but yesterday I missed an important item. The reason we can't go to the other ward with larger rooms is that it is for short term stays only. It is only staffed Monday to Friday. There are two larger rooms on our ward and one of those just became free tonight and thanks to the nurse that is taking care of Bic, we have got it. It overlooks Livingstone Park and the McDonnald house. It will make a difference to our state of mind!
This morning was none stop activity with specialists lining up at the door. Bic had occupational therapy, physical therapy, speach therapy, the pain doctors and neuro waiting on her. Our role was to communicate with each and make sure they were all working together.
The most insightful information came from the occupational therapist who believed the discomfort in Bic's legs were neorological in nature. We made sure they hooked up with the pain specialists. Later the pain team came round and announced that they recommended two neurological drugs this appears to be the greatest challenge. Bic is contiuously on the move, agitated and irritated by ber legs that just won't allow her to settle. The pain specialist said that massaging her leg confuses the brain by overloading it with stimulation effectively blocking the pain, which is why she likes it so much. The neuro drugs will block targeted receptors to reduce or eliminate the pain.
The speach therapist made a lot of headway communicating with Bic, but no talking yet. She said that she didn't think Bic was ready to eat or drink yet as she doesn't have enough control of her tongue.
One finding of the day was that Bic is getting stronger on the right, but appears to be getting weaker on the left. One specialist commented on another lesion on the right side of her brain that we have not had the opportunity to discuss with neuro yet.
The bed is much better suited to Bic. It even has a massage feature that has the same effect as stroking her legs.
Her nurse suggested removing one source of irritation by discontinuing with the oxygen mask. That was cleared by neuro and Bic is without oxygen and doing well on her sats.
The methadone was first given to Bic at about 4 pm, but besides immediately knocking her out, within only 15 minutes she was awakening with similar discomfort from her legs. By her cries, it is clearly bothering her a lot. Her arms wave continuously as a mark of distress. It seems to come in waves. We were told that it could be a while before she sees any neurological benefits from the new meds.
A PICC line was ordered today, but I guess because the radiology department was busy, this will be placed tomorrow (using xray to position the catheter).
We keep puting videos on for Bic in an attempt to gain her interest, but for the most part she hasn't shown too much interest.
Tonight there was another change that became very apparent - Bic's arms became very animated and restless. They waved about in the air and around her body, randomly grabbing things and pulling. The greatest concern overnight is if she grabs her feeding tube or worse, her brain drain, and pulls them out. We gave instruction to the nuse to use Ativan to try to keep her quiet and hopefully give her a good nights rest (she has hardly had any quality rest today). The alternative will be to restrain her hands and arms. This is something we don't want to do, but the consequences of an 'accident' are pretty bad.
Our take on what is happening is that as the size of the abscess is decreasing, different parts of the brain are getting stimulated. These stimulations are not necessarily controlled and the simptoms are pains and involuntary movements.
Maybe that is what is happening with her voice now. She is making horrible whining sounds - perhaps a precurser to speach? We hope.
The last two days have been exhausting for Bic, us and the nursing staff! It will be nice when (if) things calm down a little.
Special message for the DISboarders: Mandy is still alive! Since moving out of PICU, we are able to use phones and laptops, but simply have not had a moment to take advantage. Once Bic's restlesness issues settle down, Mandy will be with you once more!
--------------------------
David
This morning was none stop activity with specialists lining up at the door. Bic had occupational therapy, physical therapy, speach therapy, the pain doctors and neuro waiting on her. Our role was to communicate with each and make sure they were all working together.
The most insightful information came from the occupational therapist who believed the discomfort in Bic's legs were neorological in nature. We made sure they hooked up with the pain specialists. Later the pain team came round and announced that they recommended two neurological drugs this appears to be the greatest challenge. Bic is contiuously on the move, agitated and irritated by ber legs that just won't allow her to settle. The pain specialist said that massaging her leg confuses the brain by overloading it with stimulation effectively blocking the pain, which is why she likes it so much. The neuro drugs will block targeted receptors to reduce or eliminate the pain.
The speach therapist made a lot of headway communicating with Bic, but no talking yet. She said that she didn't think Bic was ready to eat or drink yet as she doesn't have enough control of her tongue.
One finding of the day was that Bic is getting stronger on the right, but appears to be getting weaker on the left. One specialist commented on another lesion on the right side of her brain that we have not had the opportunity to discuss with neuro yet.
The bed is much better suited to Bic. It even has a massage feature that has the same effect as stroking her legs.
Her nurse suggested removing one source of irritation by discontinuing with the oxygen mask. That was cleared by neuro and Bic is without oxygen and doing well on her sats.
The methadone was first given to Bic at about 4 pm, but besides immediately knocking her out, within only 15 minutes she was awakening with similar discomfort from her legs. By her cries, it is clearly bothering her a lot. Her arms wave continuously as a mark of distress. It seems to come in waves. We were told that it could be a while before she sees any neurological benefits from the new meds.
A PICC line was ordered today, but I guess because the radiology department was busy, this will be placed tomorrow (using xray to position the catheter).
We keep puting videos on for Bic in an attempt to gain her interest, but for the most part she hasn't shown too much interest.
Tonight there was another change that became very apparent - Bic's arms became very animated and restless. They waved about in the air and around her body, randomly grabbing things and pulling. The greatest concern overnight is if she grabs her feeding tube or worse, her brain drain, and pulls them out. We gave instruction to the nuse to use Ativan to try to keep her quiet and hopefully give her a good nights rest (she has hardly had any quality rest today). The alternative will be to restrain her hands and arms. This is something we don't want to do, but the consequences of an 'accident' are pretty bad.
Our take on what is happening is that as the size of the abscess is decreasing, different parts of the brain are getting stimulated. These stimulations are not necessarily controlled and the simptoms are pains and involuntary movements.
Maybe that is what is happening with her voice now. She is making horrible whining sounds - perhaps a precurser to speach? We hope.
The last two days have been exhausting for Bic, us and the nursing staff! It will be nice when (if) things calm down a little.
Special message for the DISboarders: Mandy is still alive! Since moving out of PICU, we are able to use phones and laptops, but simply have not had a moment to take advantage. Once Bic's restlesness issues settle down, Mandy will be with you once more!
--------------------------
David
Tnkrbelle565
DIS Veteran
- Joined
- May 14, 2004
- Messages
- 8,490
Ya for the massage bed. Hopefully that will mean that you guys will get a small break and let the bed do the work for you!
R
revrob
Guest
One day at at a time! Still praying.
jessica52877
DIS Veteran
- Joined
- Feb 26, 2004
- Messages
- 6,518
Things are looking so much better from just a few days ago! Please take care of Becca, we'll be here once she is all better!
FSUDisneyGirl
<font color=#FF8000>Hey, my eye feels weird....AAA
- Joined
- Feb 28, 2006
- Messages
- 1,639
Hang in there...and take your time to get back to us! Becca's your priority...but thanks so much for the updates!
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