Anyone Have any Nate Page Information???

[jgalecpa]

Hello all, especially Andy or Chris,

If you have any updates for us on Little Nate, I know I'd appreciate it.

Thanks!

Jim

 

[Verandah Man]

Originally posted by jgalecpa
Hello all, especially Andy or Chris,

If you have any updates for us on Little Nate, I know I'd appreciate it.

Thanks!

Jim

Hi Jim,

I got an e-mail from Chris on Friday night and posted it on the thread that Chris started about needing addresses.
Nate is holding his own, and has not had a fever the past few days, which Chris said was good. He still is not putting any weight back on, which Chris said was bad. That's the latest info I have about Nate.

Here is a copy of the e-mail that I got from Chris Friday night. I went back to the thread, Update on Nate/Need Addresses and copied the following note:

Nate is holding his own. No fever, which is good. No weight gain, which is bad. But he is happy.

Chris

 

[disny4ever]

Appreciate the update Andy.

 

[JLSE50]

Andy: could you share a link to Chris' thread?? That would be a great way for us to keep up to date on Nate and save Chris time so she can keep us all posted and still give Nate the quality and quantity time he needs.

jan

 

[Verandah Man]

Originally posted by JLSE50
Andy: could you share a link to Chris' thread?? That would be a great way for us to keep up to date on Nate and save Chris time so she can keep us all posted and still give Nate the quality and quantity time he needs.

jan

Here you go:

Update on Nate/Need Addresses

 

[pagehouse]

Jim, (and other Dfriends),

Sorry, I know I need to be more attentive to the board. I have been working ALOT, sleeping a little and it's not working out so well.
Y''all deserve better and I promise to try.
I guess part of the problem is there really isn't anything new to tell. Nate has not changed. The fever is staying away. We thought the cough was getting better, but apparently it just took a break so it could come back even nastier. We can deal with that. What is breaking our hearts is how very small he is. I mean really really tiny. His nurse literally gasped when she saw him last because he is nothing but skin and bone. We have never been afraid of hurting Nate when we hold him, even when the doctors told us to be afraid. Well, for the first time in 6 years, when I hold him, it feels like he might break. And worse than that, he doesn't seem to want us to hold him much because it is uncomfortable for him. He will tolerate it for a bit, then fusses and wants to be put in his swing. Which we have had special pads made for so it is nice and comfy. (He really loves his swing. Probably his favorite thing to do.) He goes through so many batteries we should buy stock in it!
Like I told Andy, he still smiles and "talks" a bit, but because he has so many bones sticking out now and it hurts when he is held too much, it seems he almost prefers to be left alone.
It's very hard to see right now. I apologize for being so negative. I'm just still trying to adjust to this latest phase of his illness. This stage is so visually upsetting that it may take time. I think I am going to email some other families whose children have already passed and ask them how they dealt with the weight loss. Who knows, it might help.
I ask for alot of prayers for Nate, that he might stay comfortable and not suffer one minute. But if you have the time, say one for Eric, me and the boys, that we might be blind to the mess this illness is making of his helpless body. And to be strong. Stronger than anything RCP can through at us.

 

[jiminy579]

Chris,
You and your family are definitely in our prayers. I really pray for God's mercy and strength for you. Thank you so much for the update!

 

[Jeanny]

Chris & Eric~
give Nate a tender kiss & hug from all of us.
Good night, Verandah boy, sleep well

 

[JLSE50]

Chris, Eric and Sons,
God bless you as you face these days,
jan

 

[Dreamer04]

Dear Little Nate,
I am whispering a lullaby..

Chris, as always, you and yours are in our prayers.

With Love,

The Little Stinker

 

[4nana]

Chris ~

Thank you for taking the time to update us.
My heart really goes out to you, Eric and family. I wish there was something I could do to help, besides keeping you all in our prayers for continued faith and strength. I know what a trying time this must be. Please take care.
Don't hesitate to call upon your Dis board friends if we can help in any way.

God Bless ^i^
Sandie

 

[Verandah Man]

Chris,

It's hard to put into words how our hearts are breaking for you having to watch Nate go through this. We feel your anguish, we remember all to well the last days we had with our precious BJ, it's been more than 14 years, and the pain is still very real, it has eased off some, but it is still there to this day. We want you, Eric, and the boys to know that you are in our prayers and thoughts daily. If there is anything we can do, you have our number, don't hesitate to call.

If I may share this with you, the last thing I said to BJ before she passed was, "I love you enough to let you go and to leave this life of misery and pain." The next morning she left this world, but not our hearts. I'm not going to try and tell you it was easy, because it wasn't, I was her daddy, and I tried to do everything I could to keep her with us. I just couldn't stand to see her fighting for each breath she had to take. I know you understand where I am coming from. Just know that we are here for you.

Dmom and Ddad

 

[Pitsley]

Chris, Eric and family,

I've been following your story since I began researching our cruise a few months ago. As many have said, I marvel at the grace you have shown through your postings and the generous way that you have allowed all of us to share in your life. Nate and his brothers have been truly blessed with wonderful parents as you have been blessed with wonderful sons.

We just returned from our cruise on Sunday and I have to say that during the entire cruise, I kept thinking of all of you, wondering how everything was. I also kept thinking of the entries in Nate's Cruise Journal ... how he must have loved the verandah, his photos from Castaway Cay, Mickey and Nate in the Command Center. I think I appreciated the cruise even more imagining the whole time how excited Nate and all of you must have been with the wonderful trip.

We will be keeping all of you in our thoughts and prayers as you struggle through this difficult time.

Mary Pat Pankoke

 

[BuzzBoyMom]

Chris,
Wow. My prayers go out to you and Eric. My family prays for you and my son's kindergarten class is saying prayers for their new friend Nate. I shared your story with their teacher and she shared the story with the class. The children told me - "he is our age but he doesn't grow anymore." Oh the innocence of children.
I have a package coming to you of pictures that the class drew for Nate. His picture is posted in their classroom.
May God bless you and keep you in his hands!
Karen

PS - Andy, what a beautiful story about you and your daughter. Soo touching I just don't know what to say! The tears are flowing!

 

[jgalecpa]

Dear Chris and the entire Page family,

When you are down, know that the angels of the world are there to support you.

When you are sad, know that all the pixie dust we can muster is being sent your way.

When you see Nate, know that you are looking at a Child most beautiful.

And when you are holding him, we all are here helping hold you and your family up as well.


Jim, Rieann and the Girls


PS This young man has answered the question of "Can you love a person you've never met?"

 

[Credit Man]

Adding my prayers to all here. Knowing you will receive God's strength, His mercy, and His terder loving care.

Remember when you looked down and saw one set of footsteps, that I did not leave you, it was then that I carried you.

 

[mowanda]

Dear Nate's family,

I lift my prayers up with the many others from this board, I pray that God' s unending strength and peace will uphold you all during this valley time you are being asked to walk through. Being in the valley is a very heart breaking time, I walked through one when my 16 yr. old daughter was diagnosed with cancer many years ago. As I watched her fighting for life and I wanted to take her place so much, but that was not to be, this was her trial to go through, and all I could do was love her and be there for her. And I asked that question over and over, WHY?? And you know what, He never did answer that question, but in our case He did heal her, and He did walk every step of the way with us, and I know, that I know, that I know He will walk with you all too!! God be with you all each and every hour, and may His wisdom and peace guide you!

Love to all your family,

Mowanda (Brenda)

 

[figment52]

Page Family -

You are in our thought and prayers more than you'll ever know. Be strong... and remember "if HE brought you to it HE will bring you through it"

Its too bad we don't know the reasons but then again, we aren't suppose to.

God Bless

Sandy

 

[Kimnicki]

You are all in my thoughts and prayers....

Kim:

 

[MamaGriz]

God Bless you all.