Any Experience With Knee Arthritis?

mylilnikita

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Oct 10, 2002
Messages
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So I have buckled down and made an appointment to see a Dr. to see if I have arthritis in a knee.


I am 54 and the knee in question has been injured a couple times in my youth and the last time with some ice a month or so ago.


When I get up from sitting down for like 30 minutes and when I get up from sleeping, I get up and for a few minutes my knee is stiff and isn’t flexible.
But once I start moving I am fine. Which is good because I walk and go up and down stairs all shift with my work.

What has been your experience? Thanks in advance.
 
It sounds like you are still recovering from an injury to that knee.
 
Newly diagnosed with knee osteoarthritis. It’s fun! I’m walking daily to keep my mobility and use Voltaran cream. Doing all I can to stay mobile! Good luck
 
Had arthritis in my knee going back almost 20 years ago, about your age then. I put off replacement for over 10 years, had replacement 8 years ago. Best thing I ever did. Well, one of the best, I did marry over 50 years ago.
 

feels better when the weather is not cold. lets me know i've put on weight faster than the bathroom scale. cbd topical is the best relief i can get.
 
I have some arthritis in my knee. I put a little Voltaren on it each morning and that helps keep it in check.
 
I've had arthritis in my knees since I was 20 (so 20+ years now), far infrared heating pads are your friend. On the days I wake up and can't move my knee one hour with the pad wrapped around it and I'm not in pain for the rest of the day. It's the only thing that's worked so far. I've done meds, therapy, etc. over the years.
 
I've had arthritis since about 30 due to past knee injuries. Both of my knees will need replacing, I was told this in my late 30s, but I was way too young. I'm now in my late 40s and my knees are better due to weight loss, exercise, and therapy. Finding a great doctor was key for me.
 
Having had both knees replaced here's advice/comments I've gotten:

  • No running
  • Lose Weight
  • No incline on treadmills
  • Don't play basketball on asphalt courts as a kid. One provider guessed that was part of my problem. This was true for me.
They will eventually recommend cortisone or other knee injections. They eventually stop working, at least for me. Once you go down this road it eventually leads to replacement.
 
Wow - great timing with this thread! I am also very newly diagnosed with knee osteoarthritis. I saw my doctor, had x-rays and a cortisone shot this past week.

For the last couple of months, I haven't been able to go for my daily walks. I also would wake up during the night with very bad burning pain on the inner part of my knee. It was extremely hard to walk first thing in the morning. The cortisone shot has helped tremendously. I start physical therapy soon and have a follow-up with the doctor at the end of the month.
 
Check out anti inflammatory diet. I started a thread about it right here. When I was reading about the anti inflammatory diet i thought it was bs. But figured what do I have to lose. This is what most surgeons won’t tell you. They will be taking money away from their pockets. Just google it. If it doesn’t work for you, you lost nothing you just ate a lot of salads.I haven’t took a Advil or any other kind of pain medicine in 4 months. That’s when I started it. Good luck.
 
OP here with an update:
Well around the time I went to my PCP it was discovered I had extremely high blood pressure and got on medicine for it. That same week I had a wicked stomach virus that was going around and after getting rid of it I went to the ER because I felt weird which I thought was due to new medicine. Ended up having Covid and it kicked my butt mostly with brain fog and fatigue.

It took what seemed forever to get rid of fatigue.

I went last week to have my knee x rayed and I need a knee replacement.

So to bide me some time to get things ready , fmla, short term disability stuff and planning on being out of work I am trying anti inflammatory medicine then if that doesn’t work considering cortisone . shot.

Anyone there have had a knee replacement? Thanks
 
OP here with an update:
Well around the time I went to my PCP it was discovered I had extremely high blood pressure and got on medicine for it. That same week I had a wicked stomach virus that was going around and after getting rid of it I went to the ER because I felt weird which I thought was due to new medicine. Ended up having Covid and it kicked my butt mostly with brain fog and fatigue.

It took what seemed forever to get rid of fatigue.

I went last week to have my knee x rayed and I need a knee replacement.

So to bide me some time to get things ready , fmla, short term disability stuff and planning on being out of work I am trying anti inflammatory medicine then if that doesn’t work considering cortisone . shot.

Anyone there have had a knee replacement? Thanks

r.e. --bold Just curious if your diagnosis was --- bone on bone, multiple bone spurs, misalignment, severe arthritis?????
 
OP here with an update:
Well around the time I went to my PCP it was discovered I had extremely high blood pressure and got on medicine for it. That same week I had a wicked stomach virus that was going around and after getting rid of it I went to the ER because I felt weird which I thought was due to new medicine. Ended up having Covid and it kicked my butt mostly with brain fog and fatigue.

It took what seemed forever to get rid of fatigue.

I went last week to have my knee x rayed and I need a knee replacement.

So to bide me some time to get things ready , fmla, short term disability stuff and planning on being out of work I am trying anti inflammatory medicine then if that doesn’t work considering cortisone . shot.

Anyone there have had a knee replacement? Thanks
Had both replaced last year, one in Oct & one in Dec
Was at Disney 10 days after 2nd replacement in Dec (used an ECV), did the Princess 5K (walking) in Feb.
I used my Peloton to build strength in my knees prior to my replacements and still use it regularly now.
No more regular walking outside and no more running at all. Only bike riding.

I know my Dr would not give more than 2 cortisone shots. He said any more than that and it caused issues with replacements, deterioration, etc.

My replacements were done outpatient, semi robotic. Used a CT scan to build the joint prior to surgery so the actual surgery was less than an hour. All testing was done on the joint after it was built from the CT scan data. Only needed small bits of fine tuning once placed. I was in PT at the clinic less than 24 hours after surgery.

I was able to drive following left knee replacement pretty much right away. Dr said once I was no longer taking narcotic pain relief. I never took any. Took 2 months before I could drive following right knee. Dr had me wait till follow up appointment till I could drive. I do know it took about that long till I felt in full control moving my foot between pedals.
 
Bone on bone
Same as me. Actually why I moved quickly with my replacements. I knew that wasn't going to get better. Not like the cartilage was going to grow back. Once gone, it's gone. At least not at my age. Could be for someone younger
 
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I tore the medial meniscus in both my knees 10 and 12 years ago. I had repairs in each, but arthritis took over and eventually destroyed all the cartilage I had left. I ended up with bone on bone in both knees. Cortisone shots only helped for about 6 weeks, and I was becoming more and more crippled as the years went on.

So I had double knee replacement (Mako assisted) in July 2020 at 54 years old. Before surgery, I lost about 30 lbs and rode my bike for several months. Even though I was strong and healthy, I’m not going to lie - having them both done at the same time was brutal. Pain was very intense, and I wasn’t given enough pain meds to deal with it due to the opioid crisis. My sleep cycle was destroyed for at least 7 months. I could shower right away using a bath chair because my surgeon covered the incisions with waterproof bandages. I used a walker for 1 day, then moved to 2 arm canes. I eventually dropped to one arm cane, and by 7-8 weeks walked unaided. I started outpatient PT 1 week post op and continued PT for 12 weeks. I worked my butt off in PT and did EVERYTHING they told me to do at the clinic and at home. Stairs took a long time to do normally - almost a year. The left knee went better than the right knee. With the right one I had terrible behind the knee pain due to a super tight hamstring tendon. Pain meds didn’t touch it. It took 3-4 months for that pain to totally resolve. I went back to work as a teacher with modified duties after 12 weeks, and I was released from the surgeon in early November 2020

But....
By February 2021, I knew something was wrong with the right knee. My leg would not straighten out; I started limping, and I had a sore, red, peeling spot on my shin below the implant. I went back to the surgeon because I was worried about a DVT. Turns out it wasn’t a blood cot. I had a slow growing infection in my tibia bone where the implant stem went in, which they believe I contracted during surgery. The bone was turning to mush, so the implant had come loose. The whole thing had to be taken out. This was the beginning of a 6 month long ordeal - 3 more hospitalizations, 2 more surgeries, 8 weeks with a picc line and IV antibiotics, a life threatening reaction to the first antibiotic, home nursing visits, home PT visits, 12 weeks of sponge baths, 6 months out of work.

I had to have what is called a 2 stage revision. The final surgery was in June 2021. The right knee now has no pain, but the scar is unsightly - very thick, lumpy and dimpled. And I have a terrible shin splint in the right shin. Extension in my right knee is great, flexion isn’t where I want it to be. It might still be somewhat swollen. My left knee is better. The flexion and extension are great, but I still get pain in the lower outside area. Don’t know why. They say it takes a whole year to heal from knee replacement surgery. And it really does!

Going forward, I just ordered a Peleton. I want these knees to last!

There is a forum, much like Disboards, dedicated to joint replacement. It’s called Bonesmart. I suggest you join it and read, read, read. It was invaluable to me when I had my surgeries.
 
From talking to people I think something my surgeon does helped me not need any pain meds post op
He did what was basically the same type of epidural/spinal that women get to give birth, just numbs a different area of the body. It is designed to last 36 hours, which covers most of the immediate post op discomfort. By the time it wore off, I didn't need anything more than Tylenol. They gave me 2 different strength opioids but I never took either with either surgery. I'll admit I was terrified of them. Not of being addicted but in the paper work they gave me they mentioned it slowed healing/recovery. I didn't want to do that. Luckily I didn't need them.

I was back to work at the office at least part time within a few days. Since I couldn't drive with the 1st knee I mostly worked at home since DH was also working at home. With PT 3 times a week it was just as easy anyway. I work seated so it wasn't a problem to go back to work

And I told my surgeon I did not want to do mine together. Close together yes but not at the same time. As it was, I wanted to get the 2nd one done before the end of the year so I could get them both done with the same deductible for insurance, LOL. But, I was ready. The first one was far enough along, I was walking unassisted.
 












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