Tonyababyrn
Mouseketeer
- Joined
- May 20, 2006
- Messages
- 163
We are 30 days out!!!!
LOL!!
Have a great weekend!!
LOL!! Have a great weekend!!
LOL!!
Ummmm....hello...it is Disney we are talking about here!!!
We are having a fun time planning! We are still in the itinerary planning phase, as Katelyn can't seem to decide what parks she wants to visit & what she is willing to leave out. But we still have a "few" days left to decide.
and so that & homeschool is keeping us very busy!!
Last summer, I went to the GI doctor after having lat some minor stomach pains go. So after a few scares, I was "officially" diagnosed with a GIST tumor, but we were waiting on one final pathology report. Later that week, my oncologist (that still seems weird to type!!!) calls me to tell that it isn't a GIST tumor, that it is fact a rare synovial sarcoma & that he is referring me to a surgeon. I had surgery to remove the tumor with no chemo or radiation needed!! 


Just got caught up on your PTR... I don't know how I missed it for so long?!?!
Your daughter is beautiful and what a strong will she has. I know you are proud.
Praying for scans that are clear!!![]()






















wait to hear more about you and your cutie i just subbed your thread 
SO....guess what?!!?!?
We are officially booked!!! YAY!! Our GTKTW villa is reserved & our flight is official!! WOOHOO!!![]()
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We are so excited!! Now it officially feels like we are really going!!
Now....if I can just figure out how to speed up time!!![]()

























Hello fellow spina bifida mom my daughter mackenzie 10 also has spina bifida and she also walks i accredit it to the horse lessons she takes. Can
wait to hear more about you and your cutie i just subbed your thread
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That just wont work! :rofl:
Thanks for following our thread!!
My K walks as well with KAFO's & forearm crutches. She started taking horseback riding about a year ago & she loves it!! And she doesn't even realize how good it is for her!! Katelyn would love to exchange e-mails with Mackenzie!! Does she have an e-mail address. I think sometimes she feels like the only kid out there with SB!!!


Congratulations on the wish!!

(71 days & counting!!)
) and maybe a hop over to AK too. And of course Santa!!




















So....Debbi has arranged a dinner experience with Belle!! I don't have any specifics more than just knowing that she has it arranged!! 





So we have been busily trying to get some kind of itinerary in place for the big trip.(71 days & counting!!)
So here is what we have come up with so far.
Saturday~our flight arrives in Orlando at 11:10 so we will have all day to play in the village & get orientation done.
Sunday~MK and with ressie at BBB and then MNSSHP that night.
Monday~Epcot & hopefully Illuminations
Tuesday~ Sea World with ressies at Chef Mickey's
Wednesday~Universal Studios
Thursday~Hollywood Studios (for the dreaded Tower or Terror) and maybe a hop over to AK too. And of course Santa!!
Friday~Our flight leaves at 4:40, so we will have some time to play in the village that day as well.
We could always swap out Wednesday & Thursday, & we may have to do that. Fantasmic is playing Thursday & the crowd levels are supposed to be high at HS that day.
K is going to the allergist today to see what has kept her so miserable this year. Midwest allergies are horrible this year!! And she got her bottom braces her teeth yesterday!! She told the tech, that before her trip, she is getting red & black bands to match her Minnie costume!! Planning ahead!!
Thought I would share a picture that I took of K with her friends a few weeks ago!! She is getting so big & looking so grown up!! I am so not ready for this!!
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Well...
I talked to our Dream manager Debbi yesterday, & she has a surprise all ready for Katelyn!!! YAY!! I will tell, but you have to promise like I did not to let it slip!! (how am I gonna keep this in for 69 more days?!?!?!)
When we went to Disney when K was 5, she wanted more than anything to meet Belle her favorite princess. But, alas, we did not get to even see Belle during that visit. So when K was talking to our Dream Manager, she asked Katelyn who she would like to meet more than anything. Guess what her answer was??? Okay...I'll tell you!! Belle of course!!So....Debbi has arranged a dinner experience with Belle!! I don't have any specifics more than just knowing that she has it arranged!!
Katelyn is going to be soooo surprised!!
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Your daughter will love that surprise!!!! If it werent for cheerleading competitions we would have went in October too but i couldnt do that to her team.
The photos in your ptr are adorable i see so much in your daughter that i see in Mackenzie they have magnectic personalities and you can almost know them just through a picture!! Stay cool its super hott here too in the 100s.