pouty_tink
Mouseketeer
- Joined
- Jun 15, 2005
- Messages
- 139
Hello. I am new to making a trip report, but really want to do this one as we plan Kaylin's Wish trip to Disney World. She deserves this trip so much, and cant wait to get down to it with the planning to make this the most perfect dream come true for my princess. As of now, we have been informed that her wish trip to Disney has been approved by our local wish grantor. however we are still waiting on all the details to be put into place by the wish fulfillment team.
Our cast includes :
Me - Kirsten, (32) AKA Mom. I am a rural mail carrier for the United States Postal Service. I am a huge Disney fan, and so my children (hopefully) will follow suit. (so far so good). Everything in my house is Disney and would decorate every room disney, but... one day
Dad - Matt (34) Is an automotive Technician. Is also a Disney fan, but I think alot of it has rubbed off from me. lol. He is a wonderful father & husband.
Kaylin - (3) and the star of the show. One week exactly from Kaylin's third birthday we took her to a well Dr checkup. He felt a lump in her lower right abdomen and questioned that she was having regular bowel movements, which she was. He decided to send her for an xray which we took her to immediately that evening. By 9am the following morning the dr's office called to tell us she needed an ultrasound and possibly a CT scan asap and had us scheduled for 230pm that afternoon. After the u/s the nurse got a dr who explained that we needed to wait in the waiting room for a call from our attending pediatrician. At that point he told me it was best we just come to his office. So we left the hospital and headed toward the peds office, our minds racing knowing that what was going on could not be good at all because no one would give us answers at all.. nothing, just vague 'put off' answers. After getting to his office, the nurses greeted us with solemn faces and put us immediately in a room. After a brief minute the Dr was in and told us we would be going to a different hospital then the one we were at because he felt that Kaylin could be treated best locally there rather then running to a hospital about an hour or so from our home which is what would of hapopend had we stayed where we were. We were admitted into the pediatric unit immediately. From there Kaylin had a CT scan, and not until 130 in the morning did someone finally reveal what was happening. She had a tumor about the size of a small grapefruit engulfing her right kidney which was cancerous and known as a Wilms tumor. By 8 am that morning (Friday) an oncologist and surgeon had been in to speak with us. We were told she would need to undergo surgery right away and scheduled it for the next morning at 7am. The dr wasnt supposed to be in but considering the size and location of her tumor wanted it done immediately. So she underwent the surgery and everything including Kaylin went well. When the dr came out to talk to us after surgery, he told us the tumor was about 2 lbs in weight and even showed us a picture of it. In my worst nightmares I could never imagine this would be happening. We were devastated. Everyone kept telling us kids are so resilient and not to worry, but that didnt ease the reality of anything that was now happening in our lives. Kaylin indeed was resilient even getting up out of bed 2 hours after surgery to use the bathroom. They put her in the PICU for the night to monitor her, and all the nurses kept saying how fiesty a little girl she was. WE KNOW!! She was back to her old self and typical 3 year old in no time flat. She started chemo and had to undergo close to 6 months of it. She had her final chemo treatment on the 15th of February and seems to be doing extremely well. She goes to the surgeon now to have her port removed, and will be monitored closely every 3 months with ultrasound and xray. I cannot tell you how happy I am the chemo is over at this point!!!
Madison - (7 months) Madison was born August 2, 2009 at 1:16am. My pregnancy was a normal one as with Kaylin. I only had one bout of major back labor less then a week before she was born. Other then that no complaints. My labor with her was also rather easy. Really didnt need to push much, she kindda decided to just pop out. lol She weighed 7lbs 1oz at birth. We absolutely adored her, and Kaylin was so excited to have a new baby sister. All she wanted to do was be a little mommy to her. Luckily she has been a very happy and calm baby. We really needed that with everything that went on with our lives in late September.
We are thinking of going to Disney on Kaylin's wish trip sometime late September Early October (before the Columbus Day holiday - to hopefully avoid big crowds) We are also hoping to take her to the MNSSHP. We have not yet picked specific dates as we will have family coming along on their own dime. The wish grantor we are going with Dream Come True, told us we cant plan anything until 6 months prior to our departure, but I just hope I can wait that long....
Our cast includes :
Me - Kirsten, (32) AKA Mom. I am a rural mail carrier for the United States Postal Service. I am a huge Disney fan, and so my children (hopefully) will follow suit. (so far so good). Everything in my house is Disney and would decorate every room disney, but... one day
Dad - Matt (34) Is an automotive Technician. Is also a Disney fan, but I think alot of it has rubbed off from me. lol. He is a wonderful father & husband.
Kaylin - (3) and the star of the show. One week exactly from Kaylin's third birthday we took her to a well Dr checkup. He felt a lump in her lower right abdomen and questioned that she was having regular bowel movements, which she was. He decided to send her for an xray which we took her to immediately that evening. By 9am the following morning the dr's office called to tell us she needed an ultrasound and possibly a CT scan asap and had us scheduled for 230pm that afternoon. After the u/s the nurse got a dr who explained that we needed to wait in the waiting room for a call from our attending pediatrician. At that point he told me it was best we just come to his office. So we left the hospital and headed toward the peds office, our minds racing knowing that what was going on could not be good at all because no one would give us answers at all.. nothing, just vague 'put off' answers. After getting to his office, the nurses greeted us with solemn faces and put us immediately in a room. After a brief minute the Dr was in and told us we would be going to a different hospital then the one we were at because he felt that Kaylin could be treated best locally there rather then running to a hospital about an hour or so from our home which is what would of hapopend had we stayed where we were. We were admitted into the pediatric unit immediately. From there Kaylin had a CT scan, and not until 130 in the morning did someone finally reveal what was happening. She had a tumor about the size of a small grapefruit engulfing her right kidney which was cancerous and known as a Wilms tumor. By 8 am that morning (Friday) an oncologist and surgeon had been in to speak with us. We were told she would need to undergo surgery right away and scheduled it for the next morning at 7am. The dr wasnt supposed to be in but considering the size and location of her tumor wanted it done immediately. So she underwent the surgery and everything including Kaylin went well. When the dr came out to talk to us after surgery, he told us the tumor was about 2 lbs in weight and even showed us a picture of it. In my worst nightmares I could never imagine this would be happening. We were devastated. Everyone kept telling us kids are so resilient and not to worry, but that didnt ease the reality of anything that was now happening in our lives. Kaylin indeed was resilient even getting up out of bed 2 hours after surgery to use the bathroom. They put her in the PICU for the night to monitor her, and all the nurses kept saying how fiesty a little girl she was. WE KNOW!! She was back to her old self and typical 3 year old in no time flat. She started chemo and had to undergo close to 6 months of it. She had her final chemo treatment on the 15th of February and seems to be doing extremely well. She goes to the surgeon now to have her port removed, and will be monitored closely every 3 months with ultrasound and xray. I cannot tell you how happy I am the chemo is over at this point!!!
Madison - (7 months) Madison was born August 2, 2009 at 1:16am. My pregnancy was a normal one as with Kaylin. I only had one bout of major back labor less then a week before she was born. Other then that no complaints. My labor with her was also rather easy. Really didnt need to push much, she kindda decided to just pop out. lol She weighed 7lbs 1oz at birth. We absolutely adored her, and Kaylin was so excited to have a new baby sister. All she wanted to do was be a little mommy to her. Luckily she has been a very happy and calm baby. We really needed that with everything that went on with our lives in late September.
We are thinking of going to Disney on Kaylin's wish trip sometime late September Early October (before the Columbus Day holiday - to hopefully avoid big crowds) We are also hoping to take her to the MNSSHP. We have not yet picked specific dates as we will have family coming along on their own dime. The wish grantor we are going with Dream Come True, told us we cant plan anything until 6 months prior to our departure, but I just hope I can wait that long....
You have a beautiful Family. I can't wait to read more. We are also getting a wish.. just waiting on the daes.
Im so glad you got your PTR going. You have a beautiful family. I cant wait to follow along.
I'm so excited to be taking them to disney in a couple of weeks.
We are praying everything goes smoothly and cant wait for tomorrow to be over. Her last scans of u/s and xray have come back clean for which we are very thankful!! 
