A Fairy Affair -- Aidan's MAW TR 3/1-3/7

[cajunfan]

OH NO!!!! POOR AIDAN!

We will keep him in our prayers for a speedy recovery!

Lynn

 

[Applemomma]

Keeping you guys in my prayers!

Get well Aiden!

 

[kellyw8863]

I'm sorry to read that Aidan is in the hospital. You all are in my prayers.

 

[cantwaittoseemickey]

I'm checking in to see how Aiden is doing hun. Is there an address we can send him an E-card?

 

[shelbys mommy]

Keeping you & Aiden in my prayers. I hope he comes home soon!

 

[Thumper321]

Poor baby. I hope all is well with him and his parents are holding up. Prayers that he gets out soon.

Praying for him --- and you!!! Hope he gets well and home soon!!!

I am sorry to hear Aiden is in the hospital. We hope he is doing better and comes home very soon

Miranda, Im so sorry Aidan is in the hospital. You all be in my thoughts and I hope he's doing better and your out soon.

I'm sorry to hear Aidan is in the hospital. Hoping he is recovering and on the mend soon!!

OH NO!!!! POOR AIDAN!

We will keep him in our prayers for a speedy recovery!

Lynn

Keeping you guys in my prayers!

Get well Aiden!

I'm sorry to read that Aidan is in the hospital. You all are in my prayers.

I'm checking in to see how Aiden is doing hun. Is there an address we can send him an E-card?

Keeping you & Aiden in my prayers. I hope he comes home soon!

Thanks for all the thoughts and prayers. Aidan is doing pretty good right now. They started him on a new antibiotic Monday night, and it seems to be helping a lot. Unfortunately, LeBonheur is not technologically advanced enough to offer e-cards for patients. Maybe someday. They just recently got WiFi access in patient rooms.

I have been reading your TR and just now hopped over to read your PTR. WOW that reviel.. what a wonderful group of people they are. Aiden loked so happy and was haveing a blast. Needles to say my shirt was wet by the time I was done. Thanks for writing it.

Aww, I'm so glad you got to read the PTR. That actually reminds me that I still have a couple of posts left to do on it. Just not enough hours in my days. The reveal party was amazing for us. I got some of the pictures back that the MAW volunteer took, and since I had been watching him from behind, it was so wonderful to see his face in her pictures. He really was so happy. Just mesmerized. And don't feel bad about the wet shirt. I was asked to thank the company at the end of the reveal, and I was crying while I told them thank you. When I get the video, I might have to post part of it. . . or maybe not.

Thanks for being patient with me guys. I promise I'll get some new updates going as soon as I can.

 

[cantwaittoseemickey]

Oh sweetie take your time. We hope he comes home soon. hugs!!!

 

[Thumper321]

Oh, I forgot to ask a question. I know that there is at least one wish kid out there with a central line. Aidan used to have a Broviac, but they are talking about putting in a Portacath or a PICC line. Have any of you experienced these with your kids? I had a PICC line when I was pregnant, but I have a feeling it's a completely different experience with a child. I think we would prefer the Portacath due to the decrease risk of line infections, and the fact that it doesn't require much daily maintenance, but I'm not sure. Any input from those of you with experience?

 

[Wee Annie]

Miranda,

Elke has a port, and we're very thankful for it. No daily maintenance, and (knock on wood) she has yet to get a line infection (she's had it since 11/08). That being said, I know plenty of kids with ports that have gotten line infections (good friend battled MRSA with one last year), and some had to have them removed and a new one placed at a later date. But yes, I would have to think that they lessen the chances of a line infection over a broviac.

So sorry to hear that Aidan has not been feeling well --wishing for a swift recovery!

 

[noahsketomom]

Miranda,

We're patient because the most important thing is the PATIENT!!! As much as we all want to see you pics and hear your stories, we all first and foremost want Aidan to get better and home!!!! Glad to hear it sounds like he's on the road to recovery! Stay strong!! We're praying for you all.

Noah had a PICC line for a bit, but only a few weeks -- we didn't go home with it. He had no problems with it, though. And the best thing about it is that it was inserted with no sedation (he was overly sedated at this point and we were all worried about adding more)! She just used lidocaine! He watched "Cars" throughout it. There's still a warm spot in my heart for that NP who inserted it --- wow.

Good luck making the decision -- whichever one you choose -- and I hope that makes it easier on him and you! Don't know much about the portacath, but less daily maintenance and lower risk of infection sound promising!!!

Best,

 

[Wee Annie]

Meant to add that Elke had a PICC line for, oh, less than a day right after she was diagnosed. MY husband accidentally stepped on the lines and yanked it out (!), so we then just went immediately to the port (which, as I mentioned, takes so much less care). Apparently PICC lines can't be trusted around clumsy people like us! This was just a couple of days after Elke was diagnosed with leukemia and boy did my husband feel awful. Still does, to this day....

 

[cantwaittoseemickey]

Ty had a picc line for a while and I was so nervous with it. I was so afraid it would get pulled out or become infected(he was battling mrsa at the time). It did seem like there was quite a bit of care to it. But Im not sure how it compares as I am not familiar with the ports. hugs sweetie!

 

[pnutallergymom]

Hey Miranda,

Hoping things get better. A PICC is a central line, it is just peripherally inserted and can often be done at the bedside without sedation. Here in Boston, they also can place them in Interventional Radiology usually with some Ativan or Versed to take the edge off. The theory behind a PICC is that it is supposed to be temporary and doesn't need to be surgically placed. If Aidan needs it just for a few weeks, this is probably your best bet. Of course I don't know the whole story, but that is usually what they are used for. They can also last a LONG time if taken care of properly. There is no advantage as far as infection rate, because you will be accessing it the same way as a broviac. Usually in kids, they try to place in behind their upper arm or underneath the forearm. You can wrap it with an ACE bandage etc. to keep it from getting tugged on etc.


I would say that if he is going to need it for more than a few months, you would probably be better suited with a CVL Broviac/Hickman or a Port depending on what you need to use it for. You know what a Broviac is, and a Port is placed directly under the skin and is accessed with a needle called a Huber needle. Usually with kids, EMLA cream is used to numb the area before it is accessed. Swimming and bathing is easier with a `PORT, but there are ways around it with a Broviac as well. If he gets a PICC and it is in his arm, you can always wrap a plastic bag around his arm and seal it with tape, etc...much like you would a cast.

Feel free to ask more questions. Hang in there. Sending you guys !!

 

[Momofwishkid]

Im so glad to hear Aidan is on his way to feeling feeling better and please dont even worry about th TR. We'll all be here when your home and rested. I cant help with the Picc/port issue. They tried to place a Picc in Gavin but after almost an hour of trying and not being able to pass his shoulder they gave up. Im sure what ever decision you make it will be a good one.

 

[kellyw8863]

 

[cherokeemamma]

Good Morning!
I just wanted to say hello and let you know you are all in our thoughts and prayers. Praying that Aidan is out of the hospital soon.

As so many others have said...no worries in regard to the TR. Take care of yourself as well.

Darlene

Faith, Trust and Pixie Dust coming your way....

 

[taymorel]

Sorry to hear that Aidan is in hospital. My prayers are with you and your family. Stay strong.



caroline

 

[tinytreasures]

sorry he is sick

ports are easy Jason had his for almost 7yrs

 

[cantwaittoseemickey]

Popping in to see how Aiden is doing.Sending lots of pixidust your way.

 

[Applemomma]

Just popping in to see how Aiden's doing....hope things are going better!