Some of you have asked me to keep you updated on Sydney. During the cruise, she did so well with eating (especially dinner from mom's lap!) that we mostly stopped her tube feedings. She is still doing pretty well with eating, but she still doesn't eat quite enough. In fact, she lost about 1/2lb in the 3 weeks after coming home from the cruise.
After 6mo of trying to get into a feeding clinic in Albuquerque (2 hours away), we finally had our evaluation appointment last Friday. We saw a GI, occupational therapist, speech therapist, med student, and nutritionist. These things are always hectic, with different people asking us questions or discussing things with each other! The speech therapist picked up on our concern of Sydney's lack of words and questioned us on that (Like does she use 10 words... Well no, not really). They decided Sydney is a good candidate for their more intensive feeding clinic program.
The last week in October, we'll go in for gym time, breakfast and lunch for 5 days and work closely with them. Hopefully they'll come up with some useful tips and I'll pick them up! They were also encouraged that she only lost half a pound in those 3 weeks!
We almost had them talked into a "clinic cruise" since we had such good luck! We said we'd be guinea pigs for that one! How do we get the insurance to cover that?
Fall around here starts off with the Albuquerque International Balloon Fiesta. Here are some photos from last Saturday:
This one's for Coral!