Chiara (and all...)
Grand Princess starts school on Aug 3. Her doctor has PROMISED that she will NOT be wearing the pump on the first day of school! (since her private school is not handicapped accessible they could not accommodate her). She has also been promised a return trip to the beach as soon as the pump is removed and the doctor approves her getting in the ocean water.
She has taken on a new attitude about the whole process now...and while she doesn't want anyone to look at her foot without a thick bandage on it (and still refuses to walk on it...she is afraid it will hurt) she is looking forward to starting school.
I am a bit concerned that while she can flex her ankle and can wiggle her toes, she still doesn't seem to have any real feelings in her foot yet. Her doctor doesn't want to start physical therapy until there is some feeling in it. Of course, right now the Princess is still in the afraid mode and won't let anyone touch it.... Having the boot off is strange to her right now, it usually takes a week or two after a change for her to feel confident again.
Another concern, for me at least, is the fact that this foot is now a good two inches (if not more) smaller than her other foot. A lot of that been muscle loss, which is why I am so worried about starting PT. The reason they decided to do this before she started school was so she would not walk funny and be teased by kids at school...but if she has a straight foot and STILL walks funny I will feel this was totally not a good idea.
(Of course, this is MY baby and I would have to pull a Mama Bear on any kid that was mean to her!)
But thanks for everyone's concerns, good thoughts, and prayers. While the last 4 months has really been a long road, it could have been much, much worse. The infection she had developed at first was the same family as the flesh eating bacteria that the college student, Aimee Copeland, had that cost her both legs and one hand at the same time that Alyssa was going through her ordeal. In fact the doctor that was consulted on the Princess' case was the same doctor that was handling her case. (sorry, the grammer on that sentence was pretty bad!) We know we could be looking at something much worse right now if it were not for the Grace of God. We are very thankful that it only cost us a bit of time and muscle....
(sorry...the tears are very free flowing right now. That is the first time I ever wrote that down... while it was always on our minds and that of her doctor's I tired to ignore that aspect of what we were going through. When I previously wrote we were afraid she was going to loose her foot... her foot was not all we were afraid of loosing.
I was going to post a picture of the Princess...but realized all my pictures are currently on my dead computer. So I found a picture on Photbucket of her first visit to Disney. we were Family of The Day at Chef Mickey's. Here is a picture of her and Miss B posing with Mickey before the restaurant opened up.
And as we all know I am terrible at posting pictures on DIS...so maybe it will post and maybe not!
Nini
.)
{{{{hugs}}}} to your grandprincess. I am so so sad that she is having a rough time of it.
I saw that you were not doing the launch this time. You have so much going on right now and with your machine not working right I don't blame you.
