Wolff–Parkinson–White Syndrome - anyone have/had this?

Discussion in 'Community Board' started by kimmar067, Sep 21, 2012.

  1. kimmar067

    kimmar067 TAGS?? It's all about the 'likes' now!

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    Wolff–Parkinson–White syndrome (WPW) is one of several disorders of the conduction system of the heart that are commonly referred to as pre-excitation syndromes. While the majority of individuals with WPW remain asymptomatic throughout their entire lives, there is a risk of sudden cardiac death associated with the syndrome.....

    My DS was just diagnosed with this and the heart specialist will be performing an ablation this Tuesday. Does anyone have any info they can share, especially about the procedure that he is having done?
     
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  3. kimmar067

    kimmar067 TAGS?? It's all about the 'likes' now!

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    ....anyone? :guilty:
     
  4. wendypooh

    wendypooh Cajun Tinkerbell Princess

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    OHHH Kim,

    I've never even heard of this - so I can't help with your question, but I'm here for you. Sending hugs and prayers your way. I hope your DS will be OK - PLEASE keep us posted and if you need anything, know I"m here!!

    Hugs my friend :hug:
     
  5. kimmar067

    kimmar067 TAGS?? It's all about the 'likes' now!

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    ...thanks...:hug:
     
  6. wickey's friend

    wickey's friend I can get older but who says I have to grow up?

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    Kimmar -- I don't know anything about it either, but I'm sending tons of prayers to your son, you and your family. :hug:
     
  7. John's Mom

    John's Mom Jambo Wildbunch Gang

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    Wendy said it perfectly.:grouphug:

    Am checking with a doctor for any info. Of course, it is not her field.

    Kathy
     
  8. SadieDog

    SadieDog <font color=red>Minds are like parachutes, they on

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    I have never heard of this condition. I can only imagine how difficult this news must be to your family. Thinking of you and sending good thoughts your way. :hug:
     
  9. pilesoflaundry

    pilesoflaundry <font color=green>it doesn't get scratched as ofte

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    I've heard of it, I don't know much about it. Good luck to your son with his procedure. *hug*
     
  10. GRUMPY PIRATE

    GRUMPY PIRATE First rule, always!!

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    I googled it and found some interesting pages.

    :thumbsup2
     
  11. Pikester

    Pikester DIS Veteran

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    My cousin who is in his 20s had that but I can offer no advice. His was diagnosed while on tour in Iraq and he passed out. Thank goodness there were people there to help him. He had a procedure to correct it and has been home ever since with his wife and twin boys. This happened over a year ago.
     
  12. kimmar067

    kimmar067 TAGS?? It's all about the 'likes' now!

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    ....well, it turns out that he was having a physical to try to make the NYPD and FAILED! If you know my DS and have seen him, he's pretty much a perfect specimen of health [115 over 72 PB, 150's cholesterol range, less than 1% body fat, low sodium, low sugar, low carbs diet, not too much red meat, no smoking, works out every day] but he failed because they heard an abnormality in the heart (an arythmia) so he had to go to a specialist, get and EKG, a stress test (he only turned 24 in July), so it was actually a blessing in disguise tht he failed the physical....:confused3
     
  13. kimmar067

    kimmar067 TAGS?? It's all about the 'likes' now!

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    ...it is mostly diagnosed in late teens/early 20's....did your cousin have the ablation done? How was the re-coop?

    ...sooo, was he discharged? Is he unable to work? My DS thinks that once he gets this procedure done, he will be able to continue his application with the NYPD....
     
  14. TruBlu

    TruBlu <font color=green>I was very excited to see how yu

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    Hugs :hug:, my friend!

    I know you must be terrified - I know I would be! I have never heard of this condition, either. Sending you prayers, hugs, pixie dust... Everything I've got!
    Please keep us updated. I wish I lived closer. I'd come sit with you at the hospital. :hug:
     
  15. kimmar067

    kimmar067 TAGS?? It's all about the 'likes' now!

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    ....well, thank you....you bdon't know how much I truly appreciate that...
     
  16. TruBlu

    TruBlu <font color=green>I was very excited to see how yu

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    I know how you feel. My DS had a bone tumor when he was 5. It was SO hard feeling so helpless. PM me any time you need to talk! I never sleep, so I'm usually around.

    I know it's impossible, but try not to worry. Someone told me once that worry is like rocking in a rocking chair - you do a lot of work, but don't get anywhere. :hug:

    I'll be praying.

    Sent from Tracey's iPhone using DISBoards
     
  17. cabanafrau

    cabanafrau DIS Veteran

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    Sorry I don't have any helpful information for you, but as a mom I just wanted to send you all the best for a speedy and quick recovery of your son.
     
  18. Smileybug

    Smileybug Some honey for my old tags back

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    Faith my friend..... You have more people that care about you here than I can count. And I know we will all be praying and sending whatever happy and positive thoughts we have.

    Always here for you. As I know many are. :grouphug:
     
  19. LegoMom3

    LegoMom3 I have just met you and I love you.

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    Oh kimmar......:hug::hug::hug: I haven't heard of this but know I am definitely keeping you and your DS in my prayers.

    .
     
  20. Deb in IA

    Deb in IA Knows that KIDS are better

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    kimmar, I have seen several children with this disorder.

    The fact that it was detected and will be treated with the ablation indicates an excellent prognosis. The risk of the sudden death is for the ones that are undetected, which does not apply to your son, so I hope that makes you feel better.

    One more thing - he should not take any stimulant medications, like Ritalin or Adderall.
     
  21. jetskigrl

    jetskigrl No mumbojumbo here

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    I'm sorry...I don't know anything about it but I did want to send you a :hug:
    My thoughts are with you and your DS.
     

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