Wolff–Parkinson–White Syndrome - anyone have/had this?

Oh Kimmar.

Other than hugs :hug: for you and your family, and prayers (lots of it).....I got nothing on WPW.

I hope it all goes well for DS and that you look after yourself during this period as well.
 
My brother has/had this, had the ablation about 10 years ago (he was around 36). He is fine, still works, plays soccer on a Men's league, very healthy - has had no problems.

He was having problems with his heart racing, that is when they found out he had it and did the ablation.

Stacy
 
....well, it turns out that he was having a physical to try to make the NYPD and FAILED! If you know my DS and have seen him, he's pretty much a perfect specimen of health [115 over 72 PB, 150's cholesterol range, less than 1% body fat, low sodium, low sugar, low carbs diet, not too much red meat, no smoking, works out every day] but he failed because they heard an abnormality in the heart (an arythmia) so he had to go to a specialist, get and EKG, a stress test (he only turned 24 in July), so it was actually a blessing in disguise tht he failed the physical....:confused3

So glad doctors were able to find it in time to take action. Sending good thoughts and virtual hugs :hug: your way.
 


...it is mostly diagnosed in late teens/early 20's....did your cousin have the ablation done? How was the re-coop?



...sooo, was he discharged? Is he unable to work? My DS thinks that once he gets this procedure done, he will be able to continue his application with the NYPD....

I called my mom to see if she had more details but she couldn't remember and said she would have to get back to me. I will pass on whatever information she gets for me.
 
This is easy to say because he isn't my son :hug: but the ablation is a safe and effective procedure. Best of luck to him and I will send good thoughts for peace of mind for you.
 
My brother-in-law's wife had this as did their son (my nephew). The issue was discovered with the mother first, and then a couple of years later, they discovered my nephew had the same thing. Neither of them had problems--she was around 50 when her's was taken care of, he was about 22 I think. He's currently a nurse, lifts weights in his free time, she has a desk job........We're across the country from them, but from the info that we received from them at the time, it was much easier and faster than they expected. Good luck!:thumbsup2
 


Our 15 year old son has WPW. He got up for school one day and passed out. Came to, and passed out again. We took him to the ER, where his pulse was around 240. He had the ablation procedure in July. Basically, WPW means that they have an additional electrical pathway in the heart. The ablation is a procedure to burn off the extra part. In my son's case, they could not burn it off because of its location, and instead had to freeze it. With freezing, there is a greater chance that it will come back, but so far we have been lucky.
 
My dh had WPW- diagnosed as a small child in the early 70's. At age 22 he had open heart surgery to correct it (the ablation was new and not a sure thing). A few years ago (as an adult) his older brother was diagnosed with it and he had the ablation with no problems. My dh's twin brother's wife (I swear I am NOT making this up) was diagnosed about 15 years ago as well but her ablation was not successful and she takes medication still (but has had 3 children since then without complication!) At one point my dh's cardiologist wanted to write a paper about the cardiac history in my husband's family but I don't think he ever did.
 
I had episodes my whole life where my heart beat would speed up for a few seconds. I was in my 30s before I insisted that a doctor tell me why. Ended up being WPW. Tried to ablate, but like someone else stated, the pathway was not in a good location for that. I did learn that mine is fairly tame and I only notice it every couple of months for a few seconds. I avoid caffeine and cold medicine. It hasn't been a huge deal and I know if it ever gets worse I can try medication or another ablation. Good luck to you!
 
Kim I have nothing to add as I've never heard of this, but I'm happy the doctors found it and know how to treat it. I'm sure he's disappointed about the NYPD but this is definitely a good thing that they found it! While you be strong for him, we'll be strong for you. :hug:
 
Me! :wave2:

I was diagnosed at 7, I'm 41 now. I just lived with it & could control it on my own, highly unusual but I didn't know that! Back then the treatment was open heart surgery & my mom was not going to let them do it.

I was active in sports all of my life, when I would have an 'episode' I would just come out of the game, etc & I could make my heart go back to normal. I was very lucky! Mine was not sports induced, it just happened out of nowhere, sitting on a lounge chair reading a book, etc.

When I was 29, my OB made me see a cardiologist before I became pregnant...I was so blasé about it, had it all my life. Well, guess what, they fix this now.

I had 10 places ablated, this is a large number & they had me stay overnight in the hospital. I got a trip to WDW out of it, lol!

I have been completely cured since then. I would stress to your son to completely avoid energy drinks, red bull, etc. Caffeine does affect it, but I did drink soda with caffeine as a kid when I could get away with it.

My grandmother had it as well & I was watching my kids for it. I would have theirs fixed in a heartbeat!

Good luck to your son. I do agree that he would then be eligible again for NYPD again, but who knows!
 
My Husband. He had the ablation done about 13 years ago and has been fine since. He is and always was very active. Sports, especially track, in high school and now has a physically demanding job. He has had no problems since the procedure.

Wishing and praying for the best for you and your son!
 
My 86 year old mother has WPW. She was diagnosed maybe 25 years ago-I saw her EKG and said Wow-looks like you have WPW!(I worked as an RN and was doing EP at the time). They sent her to a cardioligist (who I believed studied under Dr. Wolff or knew him) and sure enough she had WPW. She had been symptomatic and had bouts of CHF secondary to tachycardia. She has been controlled on meds all these years and has done well. She still works part time and is totally independent. My BIL had ablation (not for WPW but for another issue) and has done great. He was in the hospital overnight and now is arrythmia free and has no limitations. Good luck.
 
My sister and my mother both have it. My sisters was discovered when she was a baby,and hers is a more severe case. She would have episodes where she would stop running and just stare for a second, and her heart rate would go crazy. My mother was not diagnosed until her 50s. Neither have had the ablation done and both are just fine. My sister did pass out twice in front of me, once in elementary school and once in high school. She was told no heavy cardio, no drugs, no alcohol, no caffeine and I assure you she has done all of the above. SHe is one of those " live life to the fullest" people.

With WPW , finding out someone has it is half the battle. Most people go undiagnosed.
 
My father has/had WPW also. He lived with it for years, since his teens.

Finally about 4 yrs ago, in his 60's, had the abalation and all is good.

I know I am repeating what other posters have said, bu in this case the more the merrier in helping you have high hopes for a "cure"

keep the good thoughts
 
:hug: Kim how scary. I have never heard of this either.
Will they need to test your other son too?
 
My DS was just diagnosed with this and the heart specialist will be performing an ablation this Tuesday. Does anyone have any info they can share, especially about the procedure that he is having done?

I have taken care of many, many patients with WPW (and every other type of arrythmia and conduction disorder), including back in the days before ablation was routinely performed. Then, if the patient was symptomatic, they were often placed on medication, which is sometimes still the case if not a candidate for ablation. If the patient is asymptomatic and has an "incidental finding" of it (like your son), sometimes it's just watched with routine follow up with a cardiologist.

Ablation has become fairly common, not just for WPW but for other arrythmias. There are some risks involved but those would be reviewed with the electrophysiologist doing the procedure beforehand. It's unclear from your post but is there a reason he has to have an ablation? If he's asymptomatic, watching could be an option as well. You'll have to weigh the benefits and risks of watching/waiting with either medication or the ablation procedure. (You never want to go in to any procedure not being fully aware of the risks because untoward things can happen and/or it may not be a permanant fix as expected.)

kimmar067 said:
Wolff–Parkinson–White syndrome (WPW) is one of several disorders of the conduction system of the heart that are commonly referred to as pre-excitation syndromes. While the majority of individuals with WPW remain asymptomatic throughout their entire lives, there is a risk of sudden cardiac death associated with the syndrome.....
I have very rarely, if ever, seen sudden death related to WPW itself. It may be a concern, but the risks are exceedingly low. Hopefully this will help with your worry.

Fortunately, the incidence of sudden death in patients with the WPW syndrome is quite low, ranging from 0 to 0.39 percent annually in several large case series, with the lowest risk seen in asymptomatic patients. (See "Epidemiology of the Wolff-Parkinson-White syndrome".)

http://www.uptodate.com/contents/ph...olff-parkinson-white-syndrome?source=see_link
 

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