North of Mouse
DIS Veteran
- Joined
- Mar 31, 2011
Fortunately, I 'can' eat anything I want, but because of desiring to keep my weight in the correct place, I 'can't' eat everything I want!
Sounds so rough, and I know you've mentioned it before. Is it likely to heal, or will those side effects be permanent?
Yeah, it's so weird sometimes. Bananas and iceberg lettuce are two of my particularly bad ones but they can both be managed by the meds.
You're a trooper and you have my admiration.No, it's healed as good as it's going to get. I will be 8 years out of treatment in May. If anything, the stricture may get worse again. I've needed my esophagus stretched, I've had it done about 6 times, I think. It does suck, I'm not going to lie, but at least I can eat some foods, and I no longer have a peg tube. That was unbearable for me, and had that peg tube for eighteen months. I didn't eat any food at all, for about ten months. So, I try not to complain, but I really do miss going out to eat, since I can't really do that.
You're a trooper and you have my admiration.
I think so many of us have no experience with the permanent aftermath of surviving a disease like cancer. We assume you're either "going to make it" or you're not and don't consider much beyond that. Your story is informative and sobering.
I understand.Thank you. It really is difficult dealing with people who just don't understand that I'm not ever going to be what I once was. With some cancers, the treatment and side effects, are more brutal than others, and head and neck cancer is one of those cancers. I get people telling me all the time about how so and so relative had cancer, and she can eat normally, and she had radiation. Uhm, ya, cause she had breast cancer, and the radiation wasn't aimed at her mouth and neck. People just don't get it. If I would have known what my quality of life would be like now, I am not sure I would have done radiation. Course, since I was stage 4, there is a solid chance, I would not still be here if I did not.