Wolff–Parkinson–White Syndrome - anyone have/had this?

[kimmar067]

Wolff–Parkinson–White syndrome (WPW) is one of several disorders of the conduction system of the heart that are commonly referred to as pre-excitation syndromes. While the majority of individuals with WPW remain asymptomatic throughout their entire lives, there is a risk of sudden cardiac death associated with the syndrome.....

My DS was just diagnosed with this and the heart specialist will be performing an ablation this Tuesday. Does anyone have any info they can share, especially about the procedure that he is having done?

 

[kimmar067]

....anyone?

 

[wendypooh]

OHHH Kim,

I've never even heard of this - so I can't help with your question, but I'm here for you. Sending hugs and prayers your way. I hope your DS will be OK - PLEASE keep us posted and if you need anything, know I"m here!!

Hugs my friend

 

[kimmar067]

...thanks...

 

[wickey's friend]

Kimmar -- I don't know anything about it either, but I'm sending tons of prayers to your son, you and your family.

 

[John's Mom]

Wendy said it perfectly.

Am checking with a doctor for any info. Of course, it is not her field.

Kathy

 

[SadieDog]

I have never heard of this condition. I can only imagine how difficult this news must be to your family. Thinking of you and sending good thoughts your way.

 

[pilesoflaundry]

I've heard of it, I don't know much about it. Good luck to your son with his procedure. *hug*

 

[GRUMPY PIRATE]

I googled it and found some interesting pages.

 

[Pikester]

My cousin who is in his 20s had that but I can offer no advice. His was diagnosed while on tour in Iraq and he passed out. Thank goodness there were people there to help him. He had a procedure to correct it and has been home ever since with his wife and twin boys. This happened over a year ago.

 

[kimmar067]

....well, it turns out that he was having a physical to try to make the NYPD and FAILED! If you know my DS and have seen him, he's pretty much a perfect specimen of health [115 over 72 PB, 150's cholesterol range, less than 1% body fat, low sodium, low sugar, low carbs diet, not too much red meat, no smoking, works out every day] but he failed because they heard an abnormality in the heart (an arythmia) so he had to go to a specialist, get and EKG, a stress test (he only turned 24 in July), so it was actually a blessing in disguise tht he failed the physical....

 

[kimmar067]

My cousin who is in his 20s had that but I can offer no advice. His was diagnosed while on tour in Iraq and he passed out. Thank goodness there were people there to help him. He had a procedure to correct it

...it is mostly diagnosed in late teens/early 20's....did your cousin have the ablation done? How was the re-coop?

and has been home ever since with his wife and twin boys. This happened over a year ago.

...sooo, was he discharged? Is he unable to work? My DS thinks that once he gets this procedure done, he will be able to continue his application with the NYPD....

 

[TruBlu]

Hugs , my friend!

I know you must be terrified - I know I would be! I have never heard of this condition, either. Sending you prayers, hugs, pixie dust... Everything I've got!
Please keep us updated. I wish I lived closer. I'd come sit with you at the hospital.

 

[kimmar067]

Hugs , my friend!

I know you must be terrified - I know I would be! I have never heard of this condition, either. Sending you prayers, hugs, pixie dust... Everything I've got!
Please keep us updated. I wish I lived closer. I'd come sit with you at the hospital.

....well, thank you....you bdon't know how much I truly appreciate that...

 

[TruBlu]

....well, thank you....you bdon't know how much I truly appreciate that...

I know how you feel. My DS had a bone tumor when he was 5. It was SO hard feeling so helpless. PM me any time you need to talk! I never sleep, so I'm usually around.

I know it's impossible, but try not to worry. Someone told me once that worry is like rocking in a rocking chair - you do a lot of work, but don't get anywhere.

I'll be praying.

Sent from Tracey's iPhone using DISBoards

 

[cabanafrau]

Sorry I don't have any helpful information for you, but as a mom I just wanted to send you all the best for a speedy and quick recovery of your son.

 

[Smileybug]

Faith my friend..... You have more people that care about you here than I can count. And I know we will all be praying and sending whatever happy and positive thoughts we have.

Always here for you. As I know many are.

 

[LegoMom3]

Oh kimmar...... I haven't heard of this but know I am definitely keeping you and your DS in my prayers.

.

 

[Deb in IA]

kimmar, I have seen several children with this disorder.

The fact that it was detected and will be treated with the ablation indicates an excellent prognosis. The risk of the sudden death is for the ones that are undetected, which does not apply to your son, so I hope that makes you feel better.

One more thing - he should not take any stimulant medications, like Ritalin or Adderall.

 

[jetskigrl]

I'm sorry...I don't know anything about it but I did want to send you a
My thoughts are with you and your DS.