katieswish
Earning My Ears
- Joined
- Dec 1, 2010
Let me introduce my wish child! Kathryn (katie) a spunky 7 yr old (8 in 8 days) who at 30 lbs is a ball of energy. We were surprised that Katie was nominated to have a wish granted by her pt. Katie had a long and complicated first 6 mos of life, she was born 12 weeks premature weighing 1lb and 1 oz with several heart defects. She was given less than 10% chance of survival after 1st cath procedure and with each procedure her chances increased and she had her name placed in several medical journals. After 3 cath and 2 open heart surgeries,(all but the last before she weighed 2 lbs) she is a happy healthy little girl.
Not that it has been a smooth ride, at 8 mos Katie choked on baby food and there after decided she would not allow anything that was not liquid to pass her lips. After 5 years of feeding clinics, swallow studies and 6 mos of daily feeding behavior therapy, Katie just recently decided salt and vinegar chips are the greatest food every created and she will swallow them. The food of the month currently is Kit Kats. She doesn't have a huge appetite but it is a huge improvement over the one bite we would beg for.
Katie is very small for her age and yes we as her parents are aware of this...but every dr who meets her for the first time tells us like we should be shocked by this fact that she is the size of a 4 yr old.
The poor kid has had more genetic testing and screening to find some reason for this than her parents are under 5 '2". The last time she had to have 8 vials filled the middle aged man next to her told the nurse she deserved a roll of stickers since she was better behaved than he was.
Kate is awaiting an amputation of her right leg due to the fact that the cath that saved her life and heart destroyed her femoral artery and killed her growth plates. Due to the fact that her right leg is 4" shorter than her left she has a modified AFO with a foam foot she is determined to be like everyone else. She is involved with soccer and acrobats. As well as working toward her next belt in Karate.
We were very surprised to get a letter from A wish Come True saying that Katie was being granted a wish. We are so excited for her and of course her younger sister, who is always patient will all of Katies appointments and extra help she requires, Rheana deserves to feel special too!!
www.youtube.com/watch?v=OSRT2LEeFwA
Not that it has been a smooth ride, at 8 mos Katie choked on baby food and there after decided she would not allow anything that was not liquid to pass her lips. After 5 years of feeding clinics, swallow studies and 6 mos of daily feeding behavior therapy, Katie just recently decided salt and vinegar chips are the greatest food every created and she will swallow them. The food of the month currently is Kit Kats. She doesn't have a huge appetite but it is a huge improvement over the one bite we would beg for.
Katie is very small for her age and yes we as her parents are aware of this...but every dr who meets her for the first time tells us like we should be shocked by this fact that she is the size of a 4 yr old.
The poor kid has had more genetic testing and screening to find some reason for this than her parents are under 5 '2". The last time she had to have 8 vials filled the middle aged man next to her told the nurse she deserved a roll of stickers since she was better behaved than he was.
Kate is awaiting an amputation of her right leg due to the fact that the cath that saved her life and heart destroyed her femoral artery and killed her growth plates. Due to the fact that her right leg is 4" shorter than her left she has a modified AFO with a foam foot she is determined to be like everyone else. She is involved with soccer and acrobats. As well as working toward her next belt in Karate.
We were very surprised to get a letter from A wish Come True saying that Katie was being granted a wish. We are so excited for her and of course her younger sister, who is always patient will all of Katies appointments and extra help she requires, Rheana deserves to feel special too!!
www.youtube.com/watch?v=OSRT2LEeFwA
I hope you had a wonderful day yesterday!!
Tree is finally decorated...shopping almost done...and 1 more week of my retail chaos YEAH!
