Hi ALL.. I am very new here.. been lurking a few days now and wow.. I am so lost on this HUGE message board so I hope I am in the right place. We were just notified about a week ago that my ds, Nicholas, who is 5 will be granted a wish. He is sooo excited! Our wish volunteers come out this Sunday afternoon to go over what he wants, but we already know.
I guess my biggest question is.. what are the chances that he won't get to go to Disney World? I know his second request is going to have something to do with Legos.. whether it be
legoland or a shopping spree, but they will try to give him his first wish, right?
A bit about Nick.. he was born only 3 weeks early after a long pg of bed rest with preterm labor starting at 17 weeks and bed rest starting at 27 weeks. He was sick from the start but no one could tell what the issue was.. feeding tubes, forumla issues, malabsorbtion, central lines and home TPN.. one illness after another.. finally he was dx with a primary immune deficiency (CVID) at 18 months old and has been recieving IVIG every 4 weeks ever since. He still get sick quite often but gone are the days of the life threatening illnesses. He is allergic to latex and has pretty severe asthma and tends to get pnuemonia once or twice a year just to make sure we are still all paying attention. Today is his first day of kindergarten actually. Sniff sniff.
So.. I can't wait to get to know everyone as we get to see his "grand wish" as he calls it unfold.