we are home finally. We had jonah's hearing aid surgery back on march 10 and then he got an awful skin infection that went to the bone on the right side and a small one on the left and was hospitalized for a week to be treated with iv antibiotics and vinegar and saline dressings and was sent home (went to my parents) with saline dressing changes 2 times a day and strong antibiotic for 14 days. He's doing better and has his hearing aid for the left side and have to go back in a couple of weeks to get the right side looked at again and hopefully get the right hearing aid. We are still doing saline dressing on the right side but at least we're home now been gone for a little over a month. Now the real planning can starte
becca
thanks everyone for you well wishes for jonah and he's doing great. He got his new chair thursday and looks great in it and i think he likes seating it too. He is going to get to start school and therapy this up coming week too.
On to disney stuff, i looked up the dates of the mvmcp and there is one day while we'll be there so i'm going ask if we can get tickets when they start on his wish. I'm already working on the schedule so we can decide what we want to see. I'm trying not to plan to much because we are wait and see kinda people, but i do like having a small plan to follow.
becca
camster thanx for the advice, we're trying to decide that too. I think we're going to try the crystal palace so he can see pooh bear and the gang. My only concern is the wheel chair accessibility of it being a buffet
becca
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Sorry if post sounds choppy I have been up with DD9 all night and when I tried to get some sleep all I could think about was DW!!!
My dd had her wish trip granted and we leave for DW in 9 days. Here are some of my problems and concerns.......
1. We have not heard from our local wish people who originally came over and went through the paper work. I have been in touch with our wish chapter though and they told me we should get info soon. I have read on this that you don't get anything until 6 days ahead but then some people said they got something from GKTW. Me nothing and I am getting nervous. MAW said they will be having someone pick us up and drive us to SF airport which is 6 hours away. Not sure why we can't leave from our airport and make a connection in SF.
2. I have read the unofficial guide and read about the tour plans. Did you all still go with the tour plans or since it is through MAW you didn't worry about following the recommended tour plans?
3. I am looking for the parks maps with the attractions listed on the map instead of numerical order next to the map.
4. Any other tidbits would be helpful!!
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Sorry if post sounds choppy I have been up with DD9 all night and when I tried to get some sleep all I could think about was DW!!!
My dd had her wish trip granted and we leave for DW in 9 days. Here are some of my problems and concerns.......
1. We have not heard from our local wish people who originally came over and went through the paper work. I have been in touch with our wish chapter though and they told me we should get info soon. I have read on this that you don't get anything until 6 days ahead but then some people said they got something from GKTW. Me nothing and I am getting nervous. MAW said they will be having someone pick us up and drive us to SF airport which is 6 hours away. Not sure why we can't leave from our airport and make a connection in SF.
2. I have read the unofficial guide and read about the tour plans. Did you all still go with the tour plans or since it is through MAW you didn't worry about following the recommended tour plans?
3. I am looking for the parks maps with the attractions listed on the map instead of numerical order next to the map.
4. Any other tidbits would be helpful!!
![]()
Sorry if post sounds choppy I have been up with DD9 all night and when I tried to get some sleep all I could think about was DW!!!
My dd had her wish trip granted and we leave for DW in 9 days. Here are some of my problems and concerns.......
1. We have not heard from our local wish people who originally came over and went through the paper work. I have been in touch with our wish chapter though and they told me we should get info soon. I have read on this that you don't get anything until 6 days ahead but then some people said they got something from GKTW. Me nothing and I am getting nervous. MAW said they will be having someone pick us up and drive us to SF airport which is 6 hours away. Not sure why we can't leave from our airport and make a connection in SF.
2. I have read the unofficial guide and read about the tour plans. Did you all still go with the tour plans or since it is through MAW you didn't worry about following the recommended tour plans?
3. I am looking for the parks maps with the attractions listed on the map instead of numerical order next to the map.
4. Any other tidbits would be helpful!!
I am with Make a Wish. Right after she was granted her wish and we told them the dates they did send us a one page letter stating the airline times and dates we would be going but that is all.....I am getting nervous and have a call out to MAW. What is the GKTW package we will be staying there and everyone seems to be mailed something a couple weeks ahead of time but I have not.
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Sorry if post sounds choppy I have been up with DD9 all night and when I tried to get some sleep all I could think about was DW!!!
My dd had her wish trip granted and we leave for DW in 9 days. Here are some of my problems and concerns.......
1. We have not heard from our local wish people who originally came over and went through the paper work. I have been in touch with our wish chapter though and they told me we should get info soon. I have read on this that you don't get anything until 6 days ahead but then some people said they got something from GKTW. Me nothing and I am getting nervous. MAW said they will be having someone pick us up and drive us to SF airport which is 6 hours away. Not sure why we can't leave from our airport and make a connection in SF.
2. I have read the unofficial guide and read about the tour plans. Did you all still go with the tour plans or since it is through MAW you didn't worry about following the recommended tour plans?
3. I am looking for the parks maps with the attractions listed on the map instead of numerical order next to the map.
4. Any other tidbits would be helpful!!
I am with Make a Wish. Right after she was granted her wish and we told them the dates they did send us a one page letter stating the airline times and dates we would be going but that is all.....I am getting nervous and have a call out to MAW. What is the GKTW package we will be staying there and everyone seems to be mailed something a couple weeks ahead of time but I have not.
I started our trip report! I know it's not nearly as witty and entertaining as the others I've read, but it will be nice to have our trip documented and hopefully it will help somebody else have an idea of what they might expect from their MAW cruise when it's all finished.
http://www.disboards.com/showthread.php?p=24723512#post24723512 Here is the link, although it's also in my signature now.![]()
AWESOME! I am very curious about the cruises. If the funding is there, I would love to take my family on a Disney cruise after my oldest DS graduates from high school in 3 years...you know, the last family vacation with everyone involved. I need to win the lottery I guess, and my state doesn't even have one....![]()
~Elisa
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Sorry if post sounds choppy I have been up with DD9 all night and when I tried to get some sleep all I could think about was DW!!!
My dd had her wish trip granted and we leave for DW in 9 days. Here are some of my problems and concerns.......
1. We have not heard from our local wish people who originally came over and went through the paper work. I have been in touch with our wish chapter though and they told me we should get info soon. I have read on this that you don't get anything until 6 days ahead but then some people said they got something from GKTW. Me nothing and I am getting nervous. MAW said they will be having someone pick us up and drive us to SF airport which is 6 hours away. Not sure why we can't leave from our airport and make a connection in SF.
2. I have read the unofficial guide and read about the tour plans. Did you all still go with the tour plans or since it is through MAW you didn't worry about following the recommended tour plans?
3. I am looking for the parks maps with the attractions listed on the map instead of numerical order next to the map.
4. Any other tidbits would be helpful!!