I****Hollister said:Do you know if your DS actually goes to the bathroom when he runs off to one?
My DD had this test when she was 3 and let me warn you it is quite traumatic. I believe it is called a VCUG and it is what you described. I just took her to a urologist in our area and they were not used to working with children, so you may have better luck with a pediatric urologist. They did not have to redo the test when we went to the pediatric urologist, but she was terrified. Our story is long, so I will not post it all here, but PM me if you would like to know more about our situation. Good luck!vhoffman said:I still feel there's something more going on here than just a power kick with ds. It probably started out that way, but over the years he's developed some retention issues. There's one more test that they've been reluctant to do because its difficult but I would like to have the results. Its a post voiding residual test, that involves the placement of a catheter and filling the bladder with dye, then using a x-ray test to see how the urine actually flows in and out. I really don't want to put ds through a stressful test, and the urologist has held back because it is a difficult test. At this point I feel it might be necessary. I'd certainly hate to blame the kid for something he really can't help. He's been out of school almost 2 weeks now (homeschooling him) and he still is in love with the toilet, everywhere except home. So perhaps something else is going on. Parenting can get frustrating but I don't want to use my frustration as an excuse to give up. I will call Monday to schedule the test. I don't want to make assumptions borne out of frustration, he deserves more.
Hannathy said:Thats what I was wondering to, if he actually goes. IMO if he is not running to the bathroom at home like he does when he is out then it probably isn't medical.
vhoffman said:I still feel there's something more going on here than just a power kick with ds. It probably started out that way, but over the years he's developed some retention issues. There's one more test that they've been reluctant to do because its difficult but I would like to have the results. Its a post voiding residual test, that involves the placement of a catheter and filling the bladder with dye, then using a x-ray test to see how the urine actually flows in and out. I really don't want to put ds through a stressful test, and the urologist has held back because it is a difficult test. At this point I feel it might be necessary. I'd certainly hate to blame the kid for something he really can't help. He's been out of school almost 2 weeks now (homeschooling him) and he still is in love with the toilet, everywhere except home. So perhaps something else is going on. Parenting can get frustrating but I don't want to use my frustration as an excuse to give up. I will call Monday to schedule the test. I don't want to make assumptions borne out of frustration, he deserves more.
The VCUG is different from urodynamics and if your son is sedated, the VCUG will not be a big deal at all. I mentioned that my DD5 had a bad experience with the VCUG when she was 3, but she was awake for the whole thing! In the VCUG they insert a catheter and fill it with dye and watch through and x-ray to seeif the child completely voids or if there is residual in the bladder. They can also look for reflux back into the kidneys. Really, if he is sedated it won't be a problem.vhoffman said:Its occurred to me that his bladder capacity is now quite diminished, regardless of the reason. I've thought to retrain his bladder, like another poster said, starting with frequent trips to the bathroom and increasing the interval.
I reall need to look into the logistics of the test. If he's sedated, I don't see how it could be like the above poster described. That sounded terrible! Surely there must be some other way to get the information needed. I'd like to try working on a voiding schedule, now that he's not in the controlled environment of school, and see where that takes us before we pursue such a test. We do need to get it done by the end of the year because of insurance issues.