What are some good Multiple Sclerosis sites for info on it?

[catsrule]

Last year, there was a 90% chance DH has MS. Well now he is starting to show signs of it, fatigue, muscle aches in his arms, and dragging his right foot, so they are sure he has it now. So what are some good sites for info on this? Thank You!

 

[Chuck-PA]

I have MS. I was diagnosed this past October by MRI and finally by a spinal tap. I don't have all of the symptons yet but was confirmed by these tests.
I would contact your local MS chapter and get on their mailing lists and they have people there who have MS and can talk to you about their experiences with this disease. They send me emails and via the mail a monthly newsletter with what is going on with MS research and how to live daily with MS.
Multiple Scerlosis Foundation has a website of their own which is good and it does have a forum for questions which can be answered by doctors on the board.
I am taking copaxone everyday. Shared Solutions calls me periodically to see how I am doing and if I have any side effects from the medicine or to see how I am feeling.

 

[AprilsZoo]

The Multiple Sclerosis Association of America has been much more helpful to me than the MS Society. They have provided me with adaptive equipment for my home for free and they also have a program for providing cooling vests and even wheelchairs and powerchairs for those whose insurance will not cover them. They also will send you free books and information kits about MS & treatments, as well as use of their extensive lending library of informational books on lots of relevant topics.

Also check out NARCOMS if you register to participate in their research study (all it is is filling out questionnaires a couple times a year) you will get their journal sent to you free 4 times a year, filled with all the latest research findings from leading MS researchers. This has been a great help to me and my doctors!

Lastly (for now, I'm sure I'll remember more later, LOL), there is a very extensive website at http://www.albany.net/~tjc/index.html that has all the info you could ever imagine and then some. Lots of links to additional info and good, easy, thorough explanations of everything!

When people have asked me if finding out I have MS is horrible, I tell them that really I still have the same "thing" I had before, it's just now I know what it's called. Nothing else has changed, except I don't feel like I must be going insane because all my symptoms are "in my head," like I had several ignorant Dr's tell me pre-dx.

Good luck.

 

[catsrule]

Thank You! Spinal Tap and mri said he had MS, but doctor was reluctant to say for sure because he showed no outward signs of it. They said he most likely did, but there were other diseases that mimmicked ms, so they weren't 100% sure. Well now he is showing some ms signs.

Thanks again for the info.