Vitiligo~HELP!

lovemyguys

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Hi everyone! I am bringing my 5 year old son to the dermatoligist on Friday morning to get some white'ish type spots on his body looked at. I made a HUGE mistake last week and went on the internet and looked up vitiligo. I believe this is what he might have. I am soooo scared. Does anyone have this condition or know someone that does? Any insight on what to expect would be appreciated!
 
Hi everyone! I am bringing my 5 year old son to the dermatoligist on Friday morning to get some white'ish type spots on his body looked at. I made a HUGE mistake last week and went on the internet and looked up vitiligo. I believe this is what he might have. I am soooo scared. Does anyone have this condition or know someone that does? Any insight on what to expect would be appreciated!
Both my husband and a student I know have this. While it is ugly it is not contagious or life threatening. You do need to avoid the sun or use a high sunscreen. Somewhat disconcerting to people that see it but we don't have a problem with it.
 
i have it and it is not just spots they are large areas of skin that are a lighter shade then the rest of my skin. right now i have it on my arms, i hope it doesn't go further.

now, if these spots are oval shaped spots and your child has more then 1 or 2 then it might be something else, something more serious. i hate to say this and scare you, but you should be prepared when you go to the doctors. both my sons have these oval shaped spots on them. the yo has one that is on his back and is about the size of half of a dollar bill. but he only had 1. my 1yo has a small oval spot on his stomach next to his belly button. it is the size of a quarter that has been stretched out. then he has another café Ole spot up on his chest. now one spot is not a big deal but 2 or more becomes a issue. because of how many spots there are and the shape they think the baby might have tubular sclerosis (i think thats how you spell it). it is a disease that puts holes in your brain like little tubes. google it and find out about it, to many things to learn about it here. now so far it is just spots on my kid but we wait for something to happen. it probably wont but we wait. the only way to tell if he has this is a biopsy and we don't want to do that to him for something we cant change. tubular is not curable, he can have just spots and still have it or it can be worse way worse. its one of those things that they cant treat the disease they can just treat the symptoms. it might be vitaligo, or a birthmark, or something else.
 
I would not do any more reading until you actually have a diagnosis.
There are lots of scary things out there and most of them, he won't have. You will just end up getting more scared and may be getting upset about things he doesn't even have.
Once you know what it is, then start looking.
Here are some good sites about Vitiligo:
National Vitiligo Foundation
Medline, National Institute of Health
There are things you can do to cover it, such as makeup, even for boys.
because of how many spots there are and the shape they think the baby might have tubular sclerosis (i think thats how you spell it).
It's Tuberous sclerosis and here are some good websites:
Tuberous Sclerosis Alliance
National Institute of Health

I'm going to move this to the disABILITIES Community Board, where it will be more on topic.
 

Hi! One of my 4 year old daughters has Vitiligo. I also had it diagnosed by a dermatoligist. She had the lighter spots since she was a baby but they seemed to be in the diaper area and under her armpits then they turned up everywhere. We make her feel good about them. The dermatoligist tells her "Their Cool" and she calls the dermatoligist her "Polka Dots Doctor". She will tell you how the spots make her special and she has polka dots like Minnie Mouse. I have 4 year old GGGB quadruplets and her siblings never make a fuss to her about them. If they go to the dermatoligist and hear what is being said, then they point at any mark on their body (even a freckle) and say it is a polka dot and they are special too. It is too cute. Basically the dermatoligist said they are spots of her skin that lack pigmentation and the lighter/whiter we keep her, the less noticible it will be since she is fair complected. On darker skin, it is much more noticable. He also said to keep sunblock on her at all times in the sun to protect the spots that lack pigmentation because she will have a higher risk of developing skin cancer. He has said that light therapy and topical creams can be used, but decided against it for her due to her age. At this point, it is not an issue that bothers her. We just try not talk about it in front of her unless it is positive because we don't want her to develop a complex about it. It is hardly a disability to us since our son is autistic and has way more issues than light white spots on the skin. I understand your concern though. I hope this helps.
 
Thanks for the info everyone! :) It helps to me not feel so alone in this. My son never had any white spots before December. Then he got a new pair of slip on sneakers and I noticed that after about 2 weeks with the sneakers he started to get some spots on the top of his feet. At first I just joked about it with him and said "oh look your sneakers are rubbing your brown off (he/we are light brown complection). It really did look like there were areas of his feet that were getting rubbed by certain parts of the sneakers and it was "damaging" the skin in those spots (like sneakers causing a blister). Then I noticed 2 on his knee and 2 near his right eye. Then 3 more small dots came near his right eye. That is when I got worried. He had been to the ped. for an ear infection (2x) and the ped. never mentioned the spots on his face/eye. Then when my DH brought him to get re-checked for the ear infection we saw one of the other ped. in the practice. My dh showed him the spots on his feet and the ped said it looked like he had gotten a rash and the skin got damaged. It could take 6months to a year for the color to fully come back in those spots. DH asked him if he thought it was vitiligo and he said NO. BUT, after we saw him is when the 3 other small dots came on his face/eye. That is when I called the derm. to get an appointment. That is also when I started looking things up on the internet.:scared1: Some of his spots are just a shade lighter then his normal skin, some seem pink and some seem white'ish. None look completly white. But I also do not know if vitiligo spots are completly white or if they are just light spots. Around many of his "spots" there are tiny, like pin prick, light dots around the spot. DH does not think it is vitiligo. He thinks it may be some type of "something" that he got from the swim lessons that he was taking from September-Feb. at the YMCA. I really feel like it it vitiligo. I know there are MANY, MANY, MANY worse conditions to have but it still makes me sad.:sad1: Thanks for listening! I will be happy once Friday is here and I can get an answer either way.
 
Michael Jackson blamed his skin colour change on vitiligo so that is why I knew about this when you mentioned it. The main thing is to use sunscreen on the pale areas as they have no pigment to protect them from the sun. In time the person may have emotional problems and may have problems with people staring at them, making fun of them or even losing a job.

There is hope such as using pigments to dye the lips a more normal colour. Using pigments makes the person look more normal but the person still will have to use sunscreen. The one danger is the burning of the skin and skin cancer that could arise from repeated burning. Most of the time it is only a small area.

Lee Thomas wrote a book about his life with vitiligo.
http://www.freep.com/apps/pbcs.dll/article?AID=/20071031/ENT03/710310415

http://en.wikipedia.org/wiki/Vitiligo#Famous_people_with_vitiligo
A long list of people with vitiligo.

Hugs and prayers.
 












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