Update on DD - something new to worry about

Liz

Make a miracle!
Joined
Aug 18, 1999
Messages
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We went to the cardiologist yesterday and everything looked great with her heart.

Physical therapy and occupational therapy is going well and she's making great progress in both areas. She is having walking casts put on both legs from the knees down to stretch her heel cords which became extremely tight from her not walking for so long. That will happen some time next week we think and she'll have them on for 2-3 weeks.

The upsetting thing yesterday was being told her kidneys aren't working as well as they have been. Her transplant meds are extremely hard on her kidneys but they've always been hanging in there at around 75% function. The latest test showed only around 45% function so we are seeing a kidney specialist on May 15th to see if there are any recommendations or if the test was a fluke and we should repeat it or something.

I have a lot of faith but I still ask myself sometimes how much can one child be expected to endure??? Thanks for remembering Laura in your prayers.
 
I will continue to keep Laura and your entire family in my thoughts and prayers. Please keep us posted on how she's doing.
 
Tons of PD going out from this Laura to your Laura!:Pinkbounc
 
I'm so sorry, Liz.

I do know from having followed your stories that Laura is an amazing fighter. I will keep her in my prayers that this test proves to be a fluke.
 

I have never taken her off my prayer list. I will continue to pray that she will recover from all this, and also that the test was a fluke. Prayers and pd for your Laura.
 
Good news on her improvements, but I'm sorry to hear she's having yet more trouble from a new source. :( Sending more P&PD that way.
 
Sorry to hear that, Liz, but we do know the power of prayer, you guys sure do. Little Laura will be in mine again. Hoping improvement is not far off. {{Hugs}}
 
Prayers for you, Laura and your family. There always seems to be something to worry about. Hopefully the test will show that all is well.

My DD sees many doctors also and sometimes I think because they do the doctors tend to pick up all the things that they normally wouldn't. Sometimes thats good and sometimes it just causes unecessary worry.

Hugs for you. Laura is a fighter and I know things will turn out fine.

Melinda
 
Sorry to hear this, Liz. I'll be keeping your family in my thoughts and prayers.
 
That girl must be very courageous and special - P & PD for her and you.
 
Oh, Liz, I will definitely keep Laura in my prayers! You are so right all of you have been through so much........

Please know that I'm thinking and praying for your entire family.
 
Glad to hear your DD's heart is doing well.

I will say prayers for Laura. It is ashame someone so young has to go through things like this. I do hope the results do come back a fluke.

Sending prayers and PD to Laura, you and your family.
 
She's been through so much... I hope the test was a fluke.
Best wishes, Laura.
 
My prayers are with Laura and all of you, Liz. I hope that the specialist will have good news for you :)
 
I will continue to pray for her Liz. I too have been following Laura's struggles and victories and think about her often. I hold her close in my heart. I hope the specialist sees soemthing that is an easy fix or that the test were a fluke. {{{{Hugs}}}} to her and to you. :)

Maggie :)
 
Said a prayer for Laura and sendin you a hug, Liz!
Take care,
CC
 
Always prayers for Laura. I'm hoping for good news.
 
My goodness. She has had more than her share.

She will remain in my prayers. Hope they say it is nothing to be concerned about! Keep us informed.
 

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