Ty-bugs MAW pre-trip to ride Jaws and go to Disney! July 10-16 2010

[cajunfan]

Sending prayers your way! I hope everyting goes smoothly for Ty! Please update us on the progress when you can!

Lynn

 

[cantwaittoseemickey]

The botox and cystoscopy went well. The dr said we should be out of the side effect window in a week so if all goes well till then it should be ok. He came home with a foley catheter which was totally unexpected. He will have it in till Friday. He was supposed to go on a field trip Thursday with his class and he is determined to go. I have no idea how they will get him there though as he cannot ride the bus and we will have to take his wheelchair. So we will see how tomarrow goes at home then decide. We will call in a month to give an update then he will go for followup testing in 3 months. So it was a changed a little bit on us which is great since now he wont have to go back till after his trip to Disney. He said the augmentation is definately not off the table which was hard to hear but we have to give this a chance to see how it goes. I am so relieved this step is done.

 

[billwendy]

Ty and Sierra recieved another BIG GIVE package today

It was from Wendy (Dis name billwendy) Thank you!!

The kids loved the Mickey Mouse paper you wrapped them in. Soo cute!
They each recieved a pillowcase. Sierra's is Tinkerbell and Ty's is Mickey Mouse. Sierra's has her name embroidered in multicolor thread and Ty's is Blue. I absolutely LOVE these pillowcases. They are a very soft flannel and oh so cozy! They wanted to take them with them to my sil's house tonight (more on that in a minute) But I said nope they get packed away in with our other pixie dust for the trip.

Here are some pictures I took. This is right before Ty fell asleep for 2hours on the couch. He wasn't feeling great. He went on a field trip today and he was plumb worn out. And I think he is coming down with something (again more on that in a bit)

And here are some close ups

To be continued....

Im so glad that they liked them!!! Have a wonderful trip!! GKTW is totally awesome!!!!

 

[cantwaittoseemickey]

Ok I feel like I'm slacking. Ty has had a few rough days and nights so I have been so tired. After today it should get better since his catheter is out. That was pretty hard on him. He is still sleeping so I thought I'd do a quick update.

I am still waiting on our Wish Coordinator to give me a call with our final flight times. I was supposed to hear from her this week but she hasn't called yet. I know she is really busy right now. Hopefully we will hear from her today. I have something in the works and I need to get the flight schedule so I can let them know the days that work for us.

The kids recieved another BIG GIVE package on Wednsday.

It was from Kim from NC (I'm sorry I don't have your disboard name handy.Ty has it in his room with him)

They each recieved a bag with celebration Mickey head balloons on them.
Ty recieved a coloring book, two boxes of crayons, a mickey mouse pop out card and a blow out party favor that they plan to blow when the limo arrives and a pencil.

Sierra recieved the same bag with a Camp Rock poster,a sandal keyring, some Hannah Montana magnets and a pencil as well as a party favor to blow when the limo arrives

They both really loved everything. Sierra put her poster on her wall already Thank you so much!!!

Here is a pic of Ty with his doggies. Lily the black and brown one and Stormy the black and white one.

 

[cantwaittoseemickey]

FLIGHTS ARE BOOKED!!! Our flights are booked and limo is confirmed.

The limo will pick us up at 5am and we fly out at 8:45am then on our way back we fly home at 8pm. AWSOME flight times

Hopefully next week I will have a final tentative schedule

 

[cantwaittoseemickey]

Got the final confirmation on our "surprise"! So I have the tentative Itinerary completed. We will play it all by ear depending on how its going but here it is

Saturday-Arrival, check in and Walmart stop for some milk and the much needed Mountain Dew Orientation, plenty of swimming and checking out GKTW.Sign up for Mayor Claytons tuck in and enjoy some Dino Putt.

Sunday-Universal/IOA-Jaws, Harry Potter, Largest Candy Land game

Monday-Sea World-feed the dolphins, see Believe, and ride some cool rides. but first.... RIDEMAKERZ private building experience This is the surprise I was working on. We will arrive before they open and have plenty of time to build a car. Ty is so excited about this place. What a wonderful group of people to do this for us!! I really wanted to do this for Ty but I couldn't imagine him doing this while it was crowded in there and get to enjoy it. So now he will and get to do it at his own pace too! Then probably back to GKTW before too late so we can swim and enjoy the surroundings.

Tuesday-Animal Kingdom/Disney Hollywood Studio's-This one we have lots we'd like to do.Too much to list at AK since we have never been there and DHS one of the most important things is to get Dh, Ty and Sierra (notice I did'nt say ME) on Tower of Terror

Wednesday- Horseback Riding at Keetons Corral,Magic Kingdom-This one we need to sit down and go through the map and get the most importants, BBB

Thursday-Epcot, Dinner at Garden Grille, most importants is Test Track, Mission space and a few other things. Arrive back at GKTW by 6pm for Winter Wonderland

Friday-We can stay at GKTW or go to Downtown Disney and look around. I think we will play this one by ear. Then head to the airport to head home to see our doggies who we will miss so much!

 

[Canyon girl]

You mentioned Lights Motor Action on your Universal day. That show is actually at Hollywood Studios. Just a heads up. Looks like a great schedule!

 

[cantwaittoseemickey]

Thank you! I didnt realise that. I will fix it. Thanks

 

[rcq925]

Great plan! Can't wait to hear about RIDEMAKERS!!

You guys are getting really close now!!! How exciting!

 

[cantwaittoseemickey]

Today I have been working on my trip binder. I really like how its looking. I feel like I will be able to find anything I need. And jot down things that I don't want to forget to do. I am trying to get it done this week but I have alot of copying over to do

 

[cantwaittoseemickey]

So it's 1:30am and why am I still up? B/c Ty will not go to sleep!So what better thing to do then to see if we can get in at Chef Mickeys.

We have a ADR for CHEF MICKEY'S!!

I will update the above Itinerary tomarrow. So now I'm not sure we will keep the Garden Grill. Oh I need to do some thinking!

 

[The Moonk's Mom]

Ok I feel like I'm slacking. Ty has had a few rough days and nights so I have been so tired. After today it should get better since his catheter is out. That was pretty hard on him. He is still sleeping so I thought I'd do a quick update.

I am still waiting on our Wish Coordinator to give me a call with our final flight times. I was supposed to hear from her this week but she hasn't called yet. I know she is really busy right now. Hopefully we will hear from her today. I have something in the works and I need to get the flight schedule so I can let them know the days that work for us.

The kids recieved another BIG GIVE package on Wednsday.

It was from Kim from NC (I'm sorry I don't have your disboard name handy.Ty has it in his room with him)

They each recieved a bag with celebration Mickey head balloons on them.
Ty recieved a coloring book, two boxes of crayons, a mickey mouse pop out card and a blow out party favor that they plan to blow when the limo arrives and a pencil.

Sierra recieved the same bag with a Camp Rock poster,a sandal keyring, some Hannah Montana magnets and a pencil as well as a party favor to blow when the limo arrives

They both really loved everything. Sierra put her poster on her wall already Thank you so much!!!

Here is a pic of Ty with his doggies. Lily the black and brown one and Stormy the black and white one.

Hi! It's me! Kim from NC! Glad the kids liked the stuff and hope your trip is great! Love the doggies! Sooo cute!

 

[wishin' on a star]

Hey Tonya! I'm working on getting all caught up on everyone here! Looks like a couple more cute big gives. I'm glad that the botox seemed to go okay. I hope this avoids the augmentation.

Sounds like you have been doing lots of planning!! Hooray for Chef Mickey's! Whether to cancel Garden Grill? We liked our breaks for sit down meals, but it is definitely more expensive. My kids really liked the two character meals we did though. So exciting about the Ridemakerz experience! I saw Tami one day at DHS, but forgot to ask her how that went.

 

[cantwaittoseemickey]

Hi! It's me! Kim from NC! Glad the kids liked the stuff and hope your trip is great! Love the doggies! Sooo cute!

Thank you again! The kids loved it! I feel like I can't thank each of you enough. Beyond anywords

Hey Tonya! I'm working on getting all caught up on everyone here! Looks like a couple more cute big gives. I'm glad that the botox seemed to go okay. I hope this avoids the augmentation.

Sounds like you have been doing lots of planning!! Hooray for Chef Mickey's! Whether to cancel Garden Grill? We liked our breaks for sit down meals, but it is definitely more expensive. My kids really liked the two character meals we did though. So exciting about the Ridemakerz experience! I saw Tami one day at DHS, but forgot to ask her how that went.

To do them both would be a bit pricey for us so It will need to be one or the other unfortunately. But I did tell the kids this morning and they are excited. I told Ty about Chef Mickeys could get loud and they seem to dance around in there and he said he thinks he will be ok. Could this really be the start of him tolerating more?? Maybe because he's older? We will have his headphones with us and I'm sure if Goofy is there he will poke fun at them The food definately sounds good and there seem to be something on the bar for everyone.

It's on our Sea World day at 5:05pm. I hope we are done with Sea World by then as we will be getting a late start to that as well with the Ridemakerz being that morning. Ahh oh well time will tell.

 

[wishin' on a star]

Thank you again! The kids loved it! I feel like I can't thank each of you enough. Beyond anywords



To do them both would be a bit pricey for us so It will need to be one or the other unfortunately. But I did tell the kids this morning and they are excited. I told Ty about Chef Mickeys could get loud and they seem to dance around in there and he said he thinks he will be ok. Could this really be the start of him tolerating more?? Maybe because he's older? We will have his headphones with us and I'm sure if Goofy is there he will poke fun at them The food definately sounds good and there seem to be something on the bar for everyone.

It's on our Sea World day at 5:05pm. I hope we are done with Sea World by then as we will be getting a late start to that as well with the Ridemakerz being that morning. Ahh oh well time will tell.

I'd definitely go with Chef Mickey's then! We were pleasantly surprised with the amount of money Make a Wish gave us for the trip. It allowed us to do a couple of meals we definitely wouldn't have done on our own budget! Plus, being able to eat for free at GKTW when you are there really helps you to be able to use your expense money on things you might not normally do!

 

[Canyon girl]

I have to say that food wise, Chef Mickeys wins hands down! There are many choices for all food, including desserts. It does get extremely loud and chaotic, though. My son has some sensory problems and was able to handle it okay. The characters only come by once, and if the kids are at the buffet, the characters typically do not come back by. What I loved about Garden Grill was that the food came to us. DD is a picky eater, and they let her eat from the kids meal. The desserts, though, are limited. One item for kids, and one item for adults. The characters at Garden Grill came around several times when we were there. It is really funny because I have so many pictures from that meal. What bothered me about Garden Grill was the rotation. Since I had my kids, I can not tolerate twirling rides. You should see my face after the teacups. Anyway, it is a really slow turn, but it really affected me. I had a severe headache by the time our meal was over! If Tyler can handle the chaotic nature of Chef Mickeys, definitely keep that one!

 

[cantwaittoseemickey]

I'd definitely go with Chef Mickey's then! We were pleasantly surprised with the amount of money Make a Wish gave us for the trip. It allowed us to do a couple of meals we definitely wouldn't have done on our own budget! Plus, being able to eat for free at GKTW when you are there really helps you to be able to use your expense money on things you might not normally do!

I'm not sure if our expense check will be different this time from when we were supposed to go in Feb but I was quite shocked at the amount we did receive. I am sure it is no where near the amounts others are getting at least it would seem Regardless I am happy with any amount they offer us as this whole trip is just an unimagineable blessing. But I just know we need to be careful what we do plan and to budget very carefully.

 

[cantwaittoseemickey]

I have to say that food wise, Chef Mickeys wins hands down! There are many choices for all food, including desserts. It does get extremely loud and chaotic, though. My son has some sensory problems and was able to handle it okay. The characters only come by once, and if the kids are at the buffet, the characters typically do not come back by. What I loved about Garden Grill was that the food came to us. DD is a picky eater, and they let her eat from the kids meal. The desserts, though, are limited. One item for kids, and one item for adults. The characters at Garden Grill came around several times when we were there. It is really funny because I have so many pictures from that meal. What bothered me about Garden Grill was the rotation. Since I had my kids, I can not tolerate twirling rides. You should see my face after the teacups. Anyway, it is a really slow turn, but it really affected me. I had a severe headache by the time our meal was over! If Tyler can handle the chaotic nature of Chef Mickeys, definitely keep that one!

I really would love to do the Chef Mickey's but now Im really wondering if it is doable. Since we will be in Sea World that day and not arriving till between 10-11am and needing to leave at around 4pm to get to Chef Mickeys, it seems to be cutting alot into our day at Sea World. I have been calling and checking for another day when we are in the Disney World parks so we could just take the Monorail there but nothing yet.

 

[cantwaittoseemickey]

45 days

 

[cantwaittoseemickey]

A BIG thank you to Canyon Girl (Naomi) for helping me with a new itinerary. I will try to post it later or next week but I think I can feel safe and cancel the Garden Grille and keep Chef Mickey's now. We moved some parks around to make it easier then leaving Sea World early.

Anyways we are off to Tenn for the weekend. I hope you all have a wonderful Memorial Day weekend. I might have a bit of time later to get back on and post one more post but it depends on how much I've gotten done. I really hope Im not this bad when it comes to packing for Disney I am looking forward to seeing my cousin (my bff) and meeting her new husband. Ty is having a really hard time not understanding that we aren't going to see Uncle S. Last night he told me I WANT TO SEE UNCLE SSS!!!

I will try to take some pics if I remember to get the camera out. I would love to take some pics of the bluffs. hugs!