And Happy Anniversary from me as well!
You have a beautiful family and I hope you have a great trip. Every two year old has banged spoons on the table at some point. Feel free to bang spoons next to us any day.
So I made a post on the DisAbilities board regarding help & tip for traveling with an autistic child & egg allergies. I thought I would post my dilemmas here as well....in hopes that someone that reads this might have something to add.
So here's a problem/question we have:
The twins will be 3 in May, so our summer trip will cost us more.....have to pay for parkhoppers for them. I'm ok with that, because Disneyland is so much more than just rides. My concern is having to pay for the character meals....which we plan on doing all of them this trip. One of the girls is 100% g-tube fed...nothing orally & the other has feeding issues & tends to only eat a cup of yogurt or applesauce in a sitting. Paying $25 for her to maybe.....maybe eat 1 cup of food is a bit frightening (especially on the pocketbook) & I can't imagine they would charge us for the one that doesn't eat orally at all....would they?????
My other concern is: one has been recently diagnosed on the autism spectrum & cognatively that of a 6-8mth old. Her twin has not been diagnosed at this point, but an eval is in the works. She does have sensory issues & anything out of the routine sets her off.
We took them for a very short trip last April & I can tell you, we were wiped out & really couldn't enjoy our time in the parks.
I'm really crying out for any suggestions, tips, ideas, etc to help us survive 2 weeks away from home. When at home.......I am very housebound with them, only taking them out for appts. Since we are very new to the world of autism, I can really use some help here.
I do have an email into one of the Disney chefs regarding knowing which foods have eggs in them....as this is an issue for the one twin that eats. I also posed the question regarding paying for the character meals....hopefully I'll hear back soon on this.
Thanx for stopping in on my PTR & feel free to say hello!!!!
Hi DizNee Luver
I don't know about the food issue and I haven't read far enough to see if someone has already answered you, but a friend of mine has an autistic son and when they went to Disneyland the first time he had troubles, but another parent told them to buy him headphones and ponited to their son. They tried it and it worked he was able to block out all the extra and only focus on what he wanted to. I know your girls are a little young, but it's a thought. You should also go into Guest Services as soon as you get there and get a sticker for each of them. I know there is also a booklet you can print at home off the Disneyland site. I can't find the link, but will look for it also. Hope this helps!
Thank you so much!!!I've heard about the headphones.....I don't think I could get either girl to keep them on...but I wonder if earplugs would work?? I think it would be harder for them to pull them out...I think?
I've looked at the Disabilities Guide on line.....he gives lots of great info for wheelchair, blind & deaf services....nothing on autism....but I imagine somewhere in the future, they may include some tips.
Again, thank you for giving me some tips that could help us!!!!!
Laurie, for kicks I googled going to Disneyland with an autistic child. You might be interested in it.
http://www.google.com/#hl=en&source...=f&aqi=&aql=&oq=&gs_rfai=&fp=bf62906be5292fd6
I am sure you thought to do it but just in case I thought it might help.
You know Michele.....I actually hadn't done this yet.....so thank you for reminding me!! lol I sometimes forget the internet does more than the DIS & FB!!
That will be my project for the day.....research!!!
So after a talk with the school about Anthony......they don't think it's an academic issue with him. He's below 3rd grade level in all areas but music, art & PE. They think there's something wrong with him!! She kept saying, I'm not a doctor, but there are times when you can look right thru his eyes. He retains NOTHING!! Which explains him "forgetting" the rules at home all the time. We have an appt with the dr set for April 2nd. I spoke with the gal that was his caseworker & asked if she remembered any head trauma with him & she said no. But we did find out that mom used to take him out partying right after he was born & would put him on the couches & let him roll off....hitting his head. She thought it was hilarious. Now I'm wondering if he has brain damage?? Freaking out a little bit now!!
I'm not sure I'm ready for this!!!
Laurie, take a deep breath. Is this the first time they have told you anything like this at school? Don't stress, wait to talk to the Dr.
Yes & no, he's struggled in school since Kindergarten...but the retention thing makes sense when we think about stuff at home. He knows the rules, but tends to forget them...all the time. I really don't think he's trying to be bad....I really think he lapses & makes bad choices. It's kinda scary, because he's gonna get with the wrong kids & boom! He's in a gang!!!
I sure wish he had a clearer picture on what he went thru the first 13 mths of his life....I know it's not pretty. He also was exposed to things right after his 3rd birthday, when he was sent home for 4 months. He needs some counseling for that....but NO ONE has openings......I just keep calling & trying. A real shortage here.
I just want him to be ok!!!
Woo Hoo....just realized this was my 2000th post!!!!
I'm not sure this is all behaviorial. The reason he's not progressing in school....even with an IEP & one on one help.....he doesn't remember what they did. So if you bring out the same worksheet a couple hours later...he'll stare at it & not have a clue how to do it. We've heard this a few times at conferences but not to this extent. Is it focus?? Some of it yes.....the other part is what has everyone stifled.
He's very social, well liked, but easily swayed into doing things he shouldn't be.
When he gets home from school...I ask...."what did you do today?"....his answer everyday is "I don't remember". I somewhat wrote it off.....but I really believe....he doesn't remember.
Hopefully the dr can give us some help or refer him to get help. I just don't want him to continually struggle at school & get further & further behind. I also want him to be able to play with others without there always being a problem.
thanx for listening & advising Michele.....I really, REALLY appreciate it!!![]()
So the last couple days have been busy, but I did get some Disney stuff done!!
My shirt came in.....very cute (and bright!!)
I paid off our Disney Travel packages!!!!Pretty exciting having that part taken care of!!
I also ordered the 5 Disney Classics cds from Amazon. We are getting a pretty big collection of Disney music...but these have a lot of songs we didn't have. We sat right down & listened to all 5 of them!!
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Anything Disney related just gets me that more excited for our trip!!!! Hurry up July!!!!
I have that set.....it's awesome!!!![]()
Hey Laurie!
I got a few pages behind, March has been a crazy time both at work and at home. Cool new Canon camera you have there, Im sure youll get some amazing pics with it :-] Great that you were able to swing a Disney Debit card to get those Disney perks yay! Great vouchers for the Give a Day/Get a Day promotion, what are yall planning on doing? Oh, and your notebook looks very organized. Nice job on working the reservations to get you back up to the Premium rooms!!!
What a mess at that Elmers. Id tend to blame it on Portland, not Elmers though, as weve had similar dining experiences at other restaurants up there. That manager was just a weasly joke and the customers, especially the jerk in the Tundra, were intolerant, self-centered losers. We eat at the Elmers in Grants Pass on a monthly basis and it is very kid/family friendly and weve never had issues like that even if our kids were being a bit loud. Kids will be kids. How did Doernbechers go btw?
Very cool Mickey head tie-dies you found, me likey! Nice birthday surprise at school for Anthony, youre a great mom :-] Nice presents for him too Bean very much wants one of those hamsters lol. Wow, its already been a year since the twins adoption was finalized?!? Yay for that too!!! And 26 years for you two? Mucho congrats for that too! Well be at 16 years this summer (right about the time yall pack up for the trip to DLR actually) so you got us by a decade
Sorry to hear about the issues with Anthony and his memoryBut good to get him in and find out what he has going so you can move forward with the school to figure out how to best teach him. Good luck with the counseling side of things, I know that can be tough. We finally got my nephew Kris into a good one to deal with his ADHD and anger issues. Hes making slow but steady progress now.
2,000 posts Whoohoo!!!!![]()
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Yay for getting the trip paid off and score on getting those Disney CDs :-]