lori1043
Where IS that EASY button advertised on TV?
- Joined
- Nov 2, 2006
- Messages
- 3,133
Adding trip report to end of pre-trippy.....
Okay, I have not done this before but have read many. I am hoping you will follow along on our journey to a special "spot" in our family's life. By the end of this post, you'll know WHY we need this CELEBRATION so badly!!!! It will never be completely over for us, but we take it one day at a time...
CAST:me(Lori-37, but 38 on our trip!), DH(38) of 14 years, DD almost 10, DD8, Hershey the dachsund(who I still don't know what to do with on our trip!!)my DB(34), SIL(33?), DN3. Friends and possibly some family still(mostly thirty-somethings and thier kids)...
WHEN: February 1-10, 2008 (Mardi Gras for us)
WHERE: POP Century for the lovely AP rate of $49 a night
HOW: not sure yet, I want to drive, DH wants to fly, waiting for a DING!
WHY: well that's it isn't it??? The real reason to go to Disney...so many, but THIS is our ultimate -we are CELEBRATING LIFE, we are!!
WHAT??????
Here is the quick time-line lowdown, backwards...
3/7/2008-DD10,5 official years off of chemo for leukemia
2/1-2/10/08-Our family, Celebrating LIFE, in WDW!!!
12/1/07-DD9 turns 10!
12/25/07-getting passes for Christmas from us.
2/07-???-very disturbing, DD9 has 5th's and then has subsequent hives, constantly for months, even now. She is itchy and has been to many docs, all who put her on tons of antihistamines. One even gives her an antibiotic that has the side effect of causing disorders,WHAT!!! you nut! NOT! anyway, it bugs me... and her, too....
10/14/07-7 years since we were told she was in remission!
10/13/07- my younger DD turns 8!!
alright, alright already... this can get long, I will jump back to September of 2000, to speed this up a bit.....ready?.....................................
September 1, 2000- I have 2 gorgeous healthy little s. They make me beleive in a higher power. I have always beleived, but they have brought it to life for me. The older one is 2 years and 9 months and the younger is 10.5 months old-sweet!!!
September whatever-2 weeks b/f the 15th, 2000-DD2.5 has a wierd fever, high, and unbreakable. It is a Saturday night, we call doc, b/c , like I said, it wouldn't go away-bathing, motrin, tylenol, etc,etc... Doc says give another 1/2 tsp and see if that helps...okay it helps a bit and we can get a little sleep. SUNDAY- she has NO fever, but is very listless and scary. MONDAY- I bring her in w/ other DD. They find nothing wrong with DD2.5 so put it off to being viral. She did have some sporadic tummy aches but doc(not ours) doesn't look into that. She does, however, finds that dd10months has an ear infection(kill 2 birds with 1 stone, right?). Okay, see ya!! Bye!!
September 13, 2000-get a phone call from Montessorri school DD2 is on, saying she is clingy and doesn't want to go outside(not herself at all), DH goes and gets her as I am an hour away. She had been acting a little funny-meaning, she was either sleeping a lot OR bouncing off the walls-no constant anything, but unusual. We get home altogether and I give her mac n cheese or some noodle casserole(my mind is gone, GONE, I tell you!) that she likes, but eats none of. I get her undressed at the table to go THROW her in the tub and notice her belly is huge, no, HUGE and HARD! Then I started calling people to see if she had pooped that day-yep! She has, and a few times, I may add-thank you very much, so no constipation
September 14, 2000-bring her in to the doc, actually got there before the docs at 7:45am. I knew something was wrong, that it isn't normal. But not that. THAT was no where near my mind. Anyway, see our beloved doc- who does labs, pokes her tummy repeatedly, asks other docs to poke her tummy-I am getting nervous here-HEY, anybody see me here??!!! What is going on?! Sends her for a CT. Doc winds up meeting us there to help me since I have a 11 month old baby in a carrier and God knows what is happening to my firstborn! I knew something was terribly not right when she came over to help me. MY DB(not the one going on this trip with us, another 1)was already there taking care of DD11months, while waiting for my DH(he was then an hour away). I thank God my brother was there, working close by... During the CT, I had to bribe her to be still with a princess barbie she saw at walmart, little did I know that I and she , would come to LOVE the happy medicine given before procedures...I didn't want her to have it then, hence the bribery. Doc says"come and see me in ONE hour. The LONGEST hour , no second longest hour of my 30 years here on this earth(at the time). I still have trouble going to that particular Sonic that we sat at trying to choke down some grossly unhealthy nutrition during that hour...That was day 1 of my realization that I am a stress eater!!! When I am in despair, I do not eat, nothing tastes at all... there is a difference! That has happened 3 times in my life, all DD and cancer-related...
back at the docs- we are told she needs to go to an
O-N-C-O-L-O-G-I-S-T, what???!!! My DH cousin had one of those and he died at 26 years of age....
"Bring the labs, bring the CT, meet the oncologist at Children's in New Orleans in admit, RIGHT NOW". But what do I do with my baby, does she come? "no, it would be better if someone could take her for you until you find out what is going on, if possible". But I have to get her the princess barbie doll, wait, WHAT?? I need clothes, baby food, etc, etc...
aaaaahhhhhhhhhhh!!!!!!!!!!!!!!!!
So my dad meets us at my house(he used to live close by) takes DD11months and her stuff that I packed in like 2 seconds and gave him the key to the house, just in case(he may have had one??). We pack 2 outfits for DD2and run in walmart in like 5 minutes(DH STILL teases me , that this was the fastest trip to walmart in HISTORY!-he thinks it should be documented)
At Childrens, as planned, the ONCOLOGIST meets us at admit, and admits us?? I was still confused and befuddled... tells us "I really think it is leukemia, but there is one thing we have to rule out". What?? huh??? What, anything else???? "cat scratch fever"-whoah-what a difference. Then why do you think it is leukemia??? "B/c I have been doing this for years and it looks like it is, but we'll do a BMA(bone marrow aspiration) in the morning to make sure"....
.....great night's sleep there....
D-DAY-our little D-DAY, September 15,2000-a Friday. We KNEW, we just knew, in our hearts, that it was leukemia. We prayed that it was not, but something told us we were dealing with cancer. On that note, I will tell you how much I didn't know- I didn't know leukemia was a cancer, I knew it was bad and kids were bald, but in my moments denial, it wouldn't link. I knew kids died from it b/c of all the St Jude marathons and Childrens' Miracle networks fundraisers I had to change the channel on b/c it broke my heart and I couldn't handle it-what a wuss I have been in my life. All they wanted was a buck or 2-to CURE this crap. My grandmother died from leukemia, I was there the night she passed. I was 15. I met the guy that was to be my DH a year later.
Okay, after her bone marrow aspirate and spinal tap, and all the stuff that goes with telling parents thier kid had cancer-docs, nurses, social workers, family crying in the hall, etc....ONE mom came up to me in the hallway and hugged me so warmly, she said, "God only gives this to the BEST of moms, He will get you through it". My FIRST thooughts were, "well, I wish He though less of me,then."
She gave me a boost I needed. I remember very little of my family's comments to me-but that was profound to me that day. THANK you to that mom, whose child is also still with us on this earth! i see them most Christmas -times at survivor parties...
Then the fun began, the nurse that handle protocols and all the study stuff-remember it ain't cured yet, it is still, all STUDIES and protocols and road maps to what they hope will save your child. We had to sign our life away that day, okay, our child's life, not ours-but the heart was ripping in 2 for both of us. I had no idea what we were doing... "do you want standard treatment or do you want to join in a national study? Here are the 10 pages of each and you can look over it and let us know in the next few hours. We need this today, so she can start chemo ASAP". What the f---? 'scuse my language, as it ain't me, but this was deserving of it. Okay, she was in surgery getting a port-a-cath, so we frantically looked over this stuff and chose a study-she'll at the least, get standard treatment, and possibly better treatment-that was the goal.
That night, the nurse came in with her first chemos- me and DH said, "get this crap out of my baby, NOW". Another word, I beleive, is okay in lieu of the word cancer. The journey began....but i'll just give tyou the highlights and the good things that came from our DD having cancer...there ARE good things in every bad thing that happens to us, sometimes we don't see it till years later.......
FYI-This WILL get happier, I promise!!! I wasn't sure how to go about it, but there it is!
until then, if i didn't depress you too much, i'll see ya!
Lori
Okay, I have not done this before but have read many. I am hoping you will follow along on our journey to a special "spot" in our family's life. By the end of this post, you'll know WHY we need this CELEBRATION so badly!!!! It will never be completely over for us, but we take it one day at a time...
CAST:me(Lori-37, but 38 on our trip!), DH(38) of 14 years, DD almost 10, DD8, Hershey the dachsund(who I still don't know what to do with on our trip!!)my DB(34), SIL(33?), DN3. Friends and possibly some family still(mostly thirty-somethings and thier kids)...
WHEN: February 1-10, 2008 (Mardi Gras for us)
WHERE: POP Century for the lovely AP rate of $49 a night

HOW: not sure yet, I want to drive, DH wants to fly, waiting for a DING!
WHY: well that's it isn't it??? The real reason to go to Disney...so many, but THIS is our ultimate -we are CELEBRATING LIFE, we are!!
WHAT??????
Here is the quick time-line lowdown, backwards...
3/7/2008-DD10,5 official years off of chemo for leukemia

2/1-2/10/08-Our family, Celebrating LIFE, in WDW!!!

12/1/07-DD9 turns 10!
12/25/07-getting passes for Christmas from us.
2/07-???-very disturbing, DD9 has 5th's and then has subsequent hives, constantly for months, even now. She is itchy and has been to many docs, all who put her on tons of antihistamines. One even gives her an antibiotic that has the side effect of causing disorders,WHAT!!! you nut! NOT! anyway, it bugs me... and her, too....
10/14/07-7 years since we were told she was in remission!
10/13/07- my younger DD turns 8!!
alright, alright already... this can get long, I will jump back to September of 2000, to speed this up a bit.....ready?.....................................
September 1, 2000- I have 2 gorgeous healthy little s. They make me beleive in a higher power. I have always beleived, but they have brought it to life for me. The older one is 2 years and 9 months and the younger is 10.5 months old-sweet!!!

September whatever-2 weeks b/f the 15th, 2000-DD2.5 has a wierd fever, high, and unbreakable. It is a Saturday night, we call doc, b/c , like I said, it wouldn't go away-bathing, motrin, tylenol, etc,etc... Doc says give another 1/2 tsp and see if that helps...okay it helps a bit and we can get a little sleep. SUNDAY- she has NO fever, but is very listless and scary. MONDAY- I bring her in w/ other DD. They find nothing wrong with DD2.5 so put it off to being viral. She did have some sporadic tummy aches but doc(not ours) doesn't look into that. She does, however, finds that dd10months has an ear infection(kill 2 birds with 1 stone, right?). Okay, see ya!! Bye!!
September 13, 2000-get a phone call from Montessorri school DD2 is on, saying she is clingy and doesn't want to go outside(not herself at all), DH goes and gets her as I am an hour away. She had been acting a little funny-meaning, she was either sleeping a lot OR bouncing off the walls-no constant anything, but unusual. We get home altogether and I give her mac n cheese or some noodle casserole(my mind is gone, GONE, I tell you!) that she likes, but eats none of. I get her undressed at the table to go THROW her in the tub and notice her belly is huge, no, HUGE and HARD! Then I started calling people to see if she had pooped that day-yep! She has, and a few times, I may add-thank you very much, so no constipation
September 14, 2000-bring her in to the doc, actually got there before the docs at 7:45am. I knew something was wrong, that it isn't normal. But not that. THAT was no where near my mind. Anyway, see our beloved doc- who does labs, pokes her tummy repeatedly, asks other docs to poke her tummy-I am getting nervous here-HEY, anybody see me here??!!! What is going on?! Sends her for a CT. Doc winds up meeting us there to help me since I have a 11 month old baby in a carrier and God knows what is happening to my firstborn! I knew something was terribly not right when she came over to help me. MY DB(not the one going on this trip with us, another 1)was already there taking care of DD11months, while waiting for my DH(he was then an hour away). I thank God my brother was there, working close by... During the CT, I had to bribe her to be still with a princess barbie she saw at walmart, little did I know that I and she , would come to LOVE the happy medicine given before procedures...I didn't want her to have it then, hence the bribery. Doc says"come and see me in ONE hour. The LONGEST hour , no second longest hour of my 30 years here on this earth(at the time). I still have trouble going to that particular Sonic that we sat at trying to choke down some grossly unhealthy nutrition during that hour...That was day 1 of my realization that I am a stress eater!!! When I am in despair, I do not eat, nothing tastes at all... there is a difference! That has happened 3 times in my life, all DD and cancer-related...
back at the docs- we are told she needs to go to an
O-N-C-O-L-O-G-I-S-T, what???!!! My DH cousin had one of those and he died at 26 years of age....
"Bring the labs, bring the CT, meet the oncologist at Children's in New Orleans in admit, RIGHT NOW". But what do I do with my baby, does she come? "no, it would be better if someone could take her for you until you find out what is going on, if possible". But I have to get her the princess barbie doll, wait, WHAT?? I need clothes, baby food, etc, etc...

So my dad meets us at my house(he used to live close by) takes DD11months and her stuff that I packed in like 2 seconds and gave him the key to the house, just in case(he may have had one??). We pack 2 outfits for DD2and run in walmart in like 5 minutes(DH STILL teases me , that this was the fastest trip to walmart in HISTORY!-he thinks it should be documented)
At Childrens, as planned, the ONCOLOGIST meets us at admit, and admits us?? I was still confused and befuddled... tells us "I really think it is leukemia, but there is one thing we have to rule out". What?? huh??? What, anything else???? "cat scratch fever"-whoah-what a difference. Then why do you think it is leukemia??? "B/c I have been doing this for years and it looks like it is, but we'll do a BMA(bone marrow aspiration) in the morning to make sure"....
.....great night's sleep there....
D-DAY-our little D-DAY, September 15,2000-a Friday. We KNEW, we just knew, in our hearts, that it was leukemia. We prayed that it was not, but something told us we were dealing with cancer. On that note, I will tell you how much I didn't know- I didn't know leukemia was a cancer, I knew it was bad and kids were bald, but in my moments denial, it wouldn't link. I knew kids died from it b/c of all the St Jude marathons and Childrens' Miracle networks fundraisers I had to change the channel on b/c it broke my heart and I couldn't handle it-what a wuss I have been in my life. All they wanted was a buck or 2-to CURE this crap. My grandmother died from leukemia, I was there the night she passed. I was 15. I met the guy that was to be my DH a year later.
Okay, after her bone marrow aspirate and spinal tap, and all the stuff that goes with telling parents thier kid had cancer-docs, nurses, social workers, family crying in the hall, etc....ONE mom came up to me in the hallway and hugged me so warmly, she said, "God only gives this to the BEST of moms, He will get you through it". My FIRST thooughts were, "well, I wish He though less of me,then."

Then the fun began, the nurse that handle protocols and all the study stuff-remember it ain't cured yet, it is still, all STUDIES and protocols and road maps to what they hope will save your child. We had to sign our life away that day, okay, our child's life, not ours-but the heart was ripping in 2 for both of us. I had no idea what we were doing... "do you want standard treatment or do you want to join in a national study? Here are the 10 pages of each and you can look over it and let us know in the next few hours. We need this today, so she can start chemo ASAP". What the f---? 'scuse my language, as it ain't me, but this was deserving of it. Okay, she was in surgery getting a port-a-cath, so we frantically looked over this stuff and chose a study-she'll at the least, get standard treatment, and possibly better treatment-that was the goal.
That night, the nurse came in with her first chemos- me and DH said, "get this crap out of my baby, NOW". Another word, I beleive, is okay in lieu of the word cancer. The journey began....but i'll just give tyou the highlights and the good things that came from our DD having cancer...there ARE good things in every bad thing that happens to us, sometimes we don't see it till years later.......
FYI-This WILL get happier, I promise!!! I wasn't sure how to go about it, but there it is!
until then, if i didn't depress you too much, i'll see ya!
Lori