This is alarming

Then there's this story. It disgusts me. The thought of MY BASICALLY DEAD BODY, or that of a loved one, being poked and prodded and kept as a human incubator against my will, and against my family's will, for MONTHS makes me sick. This woman was 14 weeks pregnant, so theoretically could be kept alive for 6+ MONTHS.

http://shine.yahoo.com/parenting/texas-father-barred-taking-pregnant-wife-off-life-200600388.html

Per the article, "according to Texas law, life-sustaining procedures may not be withheld or withdrawn from a pregnant woman, — even if she has an advance health care directive (also called a living will) stipulating that she does not want to be kept alive on a machine." And "Texas and 11 other states have automatically invalidated pregnant women's advance directives to refrain from using extraordinary measures to keep them alive, and others have slightly less restrictive but similar laws."

And you have to wonder what will happen to this baby if it survives. Is the state of Texas going to appoint a legal guardian to determine its future, possibly without its father/mother's family? If the baby is born with major health issues (the mother was found blue and without oxygen for a period of time) is the state going to kick in with free and life-long healthcare? And how far along does a woman have to be before the state of Texas, and other such states, takes away all her rights to decide her own healthcare with an advance directive...if she's 4 weeks and just found out she's pregnant, and then suffers a catastrophic illness/accident? 6 weeks? 8? 10? 12? 14, as this woman was? At exactly how many days/weeks gestation does a woman lose all her rights. Honestly, it sounds like some sort of Frankenstein-like experiment.

Thanks for the link, I shouldn't have read it because stuff like that and the other cases just burn my bisquits. You know I learned something last year: my mom ended up having emergency surgery for a blocked intestine(blocked from scar tissue to save her life 41 years before from bleeding internally from a tubal pregnancy, isn't that a kick in the head?) Anyway, the dr. asked about her DNR, I said here it is. He said, well while she is in surgery and if she dies on the table, the DNR is voided while in the operating room. I didn't know that was the case.

But the story you posted, omg!

As I wrote earlier, dealing with an arrogant, no wanting to abide by patient's rights, etc. has made me honestly consider changing what I do for a living. Right now I am taking care of my mom and not working because of her needs and I don't trust anyone else.
 
My niece swallowed a bunch of pills. She then told my DSIL ( brother's wife)who took her to the ER where the doctor told her that she was going to file to have DN taken from her. Thank God, my DBIL (husband's brother) is her pediatrician. DSIL called him, he came in, and put the ER doctor in her place. While doctors do need to evaluate for possible abuse, DSIL and DNA said the doctor had not asked 1 question before jumping to the threat. DN did go for inpatient for a few days and was diagnosed as bipolar. She is continuing outpatient treatment and doing beautifully.
It's scary to think what might have happened if my DBIL had not been able to step in.
 
I read the article and I can't figure out what the hospital is using to justify locking her up. She's 15; she should have a voice in this.
 

I read the article and I can't figure out what the hospital is using to justify locking her up. She's 15; she should have a voice in this.

15 is legally a minor in this state, so no, she doesn't have a voice. I'm glad a less restrictive environment finally had an open space for her - that's another tragedy; we don't have enough pediatric mental health facilities.

I've been following this case - the mother is a whackadoodle, and is getting off on the publicity. She has quite a temper, and I don't see the state letting her anywhere near her child any time soon. There are a lot of holes in this story, ones we will not hear about because of patient confidentiality. I just hope this girl gets the treatment and help she needs.
 
I read the article and I can't figure out what the hospital is using to justify locking her up. She's 15; she should have a voice in this.
We don't know because they can't say. I figured it had to be something significant, though, or they wouldn't have taken it this far. Apparently the courts feel it's warranted.
 
15 is legally a minor in this state, so no, she doesn't have a voice. I'm glad a less restrictive environment finally had an open space for her - that's another tragedy; we don't have enough pediatric mental health facilities.

I've been following this case - the mother is a whackadoodle, and is getting off on the publicity. She has quite a temper, and I don't see the state letting her anywhere near her child any time soon. There are a lot of holes in this story, ones we will not hear about because of patient confidentiality. I just hope this girl gets the treatment and help she needs.


I would be livid if this was happening with my child.

Justina doesn't need to be in a mental health facility. She has mitochondrial disease and needs treatment for that, not the disorder the doctors from BCH diagnosed her with without speaking to her primary doctors.

The hospital has been her caregiver for a year now and her health has done nothing but decline.
 
I feel so sorry for the girl and her sisters. I'm not sure what to make of the parents.

Justina seems like a prisoner to me. I don't like how all of this looks.
 
http://www.foxnews.com/politics/2014/03/03/justina-pelletier-mitochondrial-massachusetts-family/
Latest news on Justina and the doctors should be stripped of their medical licenses for this

Tufts Medical Center diagnosed Justina in January 2012 with Mitochondrial Disease, a rare medical condition that is maternally inherited and caused by genetic mutation, according to Arthur Caplan, director of the Division of Medical Ethics at NYU Langone Medical Center.

At Tufts, Justina underwent an extensive medical treatment program involving invasive surgery and medication, all related to her Mitochondrial diagnosis. According to Lou Pelletier, Justina’s medical treatment was under the direction of Dr. Mark S. Korson, a respected physician who specialized in metabolic disorders, and all surgical procedures were approved by medical insurance.

But at Boston Children’s Hospital Dr. Jurrian Peters assessed Justina’s symptoms and brought in a psychologist, concluding that her medical problems were brought on by a psychiatric disease called Somatoform Disorder.

Boston Children’s Hospital asked the Pelletiers to sign a form agreeing to cease any further medical treatment in regards to the Mitochondrial Disease. When they objected and demanded to bring Justina back to Tufts where she had been treated for a year, they brought DCF in and stripped them of their custodial rights on grounds of alleged medical abuse.

http://www.huffingtonpost.com/cristy-balcells/first-do-no-harm-how-we-f_b_4843997.html
Justina's parents begged for her to be transferred to Tufts. Their request was refused. Justina's mom started sending a balloon or a card every day to her in the hospital, telling her "I love you so much" and "Don't give up." Little did she know that those balloons would be the first of hundreds to be sent over the following year.

Justina was diagnosed with a psychiatric condition at Children's Hospital, moved to a locked psychiatric unit, and was not treated for her current illness or for her mitochondrial disease, which necessitates a daily regimen of cellular supplements and dietary adjustments. Her body weakened. She complained she could not walk, felt nauseous, and had trouble eating. She was told her symptoms were all in her head, and behavioral therapies are forced upon her.
Justina's doctors -- who had treated her at length -- were never consulted. Family counseling was never offered as she got sicker, and the months went on.

Had her cellphone taken wasn't allowed on the internet wasn't allowed any schooling what is the excuse to deny her any education and just have her stuck in a hospital
http://www.catholic.org/news/national/story.php?id=54445
As more of the details of this case come to light, people are becoming increasingly outraged. It is unfathomable that this barbaric overreach by a state agency is taking place in America - and in the city that launched the fight for American liberty, of all places.

As a Massachusetts ward of the state, Justina has been refused access to education. She is denied visitation by clergy, with no allowance for religious observances, including Easter and Christmas.

Her sisters have rarely been able to see her, and her 92-year-old grandparents have not seen her for 13 months. Justina's parents were only allowed weekly visits for one hour - and that under extreme supervision, including a Massachusetts State Trooper. DCF prevented the parents from even having a cell phone to photograph their daughter.
 
Justina Pelletier can finally go home to her parents tomorrow, per the judge.
 
This whole situation is so very harrowing! I can't begin to imagine what I would do if that had been my child.
The parents wanted to continue treatment under a doctor at Tufts! It's one of the best hospitals in the world. It's not like they wanted to take her to a witch doctor or deny her treatment or keep her locked up and deny her medical care (oh wait... that's what the state did to her...)

I am extraordinarily uncomfortable when the government starts dictating what (if any) medical treatment kids get. Yes, there are extreme cases of medical child abuse, but I would think the most the state can require is that the child be treated by a licensed medical provider (MD, OD, RNP, etc). Beyond that, they don't get to decide. I sure hope this family sues the hell out of Mass DCFS and Boston Childrens. And more than that, of course, I hope the family and Justina are all able to heal and move on.
 
They were telling the family they had to discharge her out of the hospital because of mounting bills, but that ain't nothing compared to the lawsuit most likely coming.
 
This whole situation is so very harrowing! I can't begin to imagine what I would do if that had been my child.
The parents wanted to continue treatment under a doctor at Tufts! It's one of the best hospitals in the world. It's not like they wanted to take her to a witch doctor or deny her treatment or keep her locked up and deny her medical care (oh wait... that's what the state did to her...)

I am extraordinarily uncomfortable when the government starts dictating what (if any) medical treatment kids get. Yes, there are extreme cases of medical child abuse, but I would think the most the state can require is that the child be treated by a licensed medical provider (MD, OD, RNP, etc). Beyond that, they don't get to decide. I sure hope this family sues the hell out of Mass DCFS and Boston Childrens. And more than that, of course, I hope the family and Justina are all able to heal and move on.
That is what is so bad about this case a doctor who is researching a mental disease sees her for 25 minutes and decides the other doctors are wrong. Her health gets worse, she is denied family, friends no internet no education. I mean denying a teen the internet is like denying them everything so many live on the net. What ever happens I doubt that girl will ever trust another mental health doctor again.
 
They were telling the family they had to discharge her out of the hospital because of mounting bills, but that ain't nothing compared to the lawsuit most likely coming.

For real? They made her a ward of the state and then decided she was too expensive and they didn't want to deal with it anymore? Are you kidding me?

I just can't stop thinking about this case. This whole scenario is so seriously disturbing. I truly can't imagine what I would do. I'm pretty sure it would involve physically removing my kid, which wouldn't end well because I'm short and not very strong, so I'd probably be easily overtaken by the guards, get thrown in jail, and end up losing all custody of the kids. But I really don't think I'd be able to sit by and deal with lawyers and paperwork and social workers and crap while they kept my children from me.
 


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