theres an easy way and a hard way guess what we took ??

[buzz for boys]

Apologies for taking so long to update this its just taken me a while to think everything through enough to be able to share what happened in a calm manner.
I also need to write that I appreciate each and everyone of you who have contacted me this week to offer support,sorry if my responses have been a bit stunted x x x

So to Wednesday - the day that was billed as ending our nightmare and looking to the future !

We arrived at the hospital at 3 pm and we left at just after 6!!
Cameron's patch was stuck solid to his face seriously super glue had less hold than the tape they used. Cam started screaming about 10 minutes into the appointment and continued until we set foot back into the house.
When the patch was removed his eye poured like a fountain with blood and it was immediately obvious that the stitches that were suppose to be keeping his eye shut had actually tore through his top lid - leaving his lid looking like it had been cut with crinkle scissors and it was till pumping blood. So the decision was made that the stitches needed cutting out there and then.
By this point Cam had lost all sense of reasoning -his aspergers means he doesn't have much to start with !! Cue Dr's nurses mom dad pinning him to the floor to keep him still enough to be able to cut the stitches. Cameron finds strength that is just unheard of and everyone in that room was exhausted by the time the stitches were out. We then needed to put a new patch on for pressure to try stop the bleed ( its still bleeding today but not as much as it was !)

Now here's the part of Wednesday that blew me sideways - after all this the consultant drops the bombshell that the swab and blood tests that were taken in theatre have revealed that Cam has a bacteria called streptococcal in his blood and his eye socket.
This is a infection which Cameron picked up on his first round of chemo and one that he has had extensive treatment for but yet its still lurking.
The plan is to tackle this infection when he has healed as any treatment is going to stop natural healing and he needs to heal asap to give the operation the best chance of working. To know he still has this infection and to know that its another hurdle he will have to get over is just soul destroying. The chances of him needing this operation again when he we have treated the infection is high as the infection is particularly bad news following surgery. It loves to breed in open wounds and my brave little man happens to have 2 !!
There is a small hope that during the operation they did manage to scrape the majority of the infection out and at the moment that is what we are holding on to !!
Louise x

 

[Dimplenose]

I don't know what to say. You all have gone through so much, you must be so drained emotionally. From what you've told us nothing seems to be straightforward with Cam's condition.

Sending a hug to let you know you're in my thoughts.

 

[Ware Bears]

I'm so sorry, this just isn't fair. I don't know how much more you are supposed to take, please stay strong.

 

[jns]

sending you some and

 

[Tinks1984]

Oh Louise, you must wonder how much more? I hope that the infection has been kept to a minimum for Cameron and that he continues to fight this and I'm sure he will.

It must have been horrific for you to have to put your little man through that at the hospital, but as always, he's a brave little thing and got through it as best as he could. I'm very sure many adults wouldn't have the same courage and strength as he has.

Thoughts and hugs with you all and tonnes of pixie dust in hope things get better very soon

 

[Clare D]

How worrying for you all, I hope that the infection was scaped away - fingers crossed

 

[startrekkie]

aww hun this is terrible sending my love and a hug to you and your little boy

Lauren

 

[joolz1910]

Sending you loads of You are so strong Louise - I don't know how you do it. I hope the infection goes soon. I'm sending Cam

 

[buzz for boys]

Thanks guys I do wonder daily why us ?? and when do we get a break ???
In the 7 years since Cameron was diagnosied we have seen so many families get diagnosied and be discharged all the time while we sit waiting for news on how to get over the latest complication. We knew when we consented to chemotherapy in such a tiny tot that there could be complications but we brushed that aside to save his life. We have now experienced nearly every side effect there was on the list . Retinoblastoma is the normally the easiest cancer to cure and normally has very little follow up treatment so why do we get every complication known and unknown to man. I am sick of hearing the words "we dont know we have never seen it before " or " leave it with us we will ask the states for advice "
Its not fair and I dont wish it on any of the other families we have met but I do want a break now I want to be able to be discharged and get back to living a life without fear and uncertainty

 

[jen_uk]

So sorry to hear about the latest setback, hope Cam gets better soon, big hugs to you

 

[florida sun]

 

[Jets fan]

sending you a big Cam is lucky to have you and Wayne as parents as you're always strong for him. Cam is a true fighter and although he has the odd meltdown, he's a toughie. Have to say, that if I went through what Cam did at the last appointment I would have had a meltdown.

Take care.

Tina
xx

 

[strawberry blonde]

Hang on in there Louise, you're doing a brilliant job. I've no idea where you get your strength from but Cam is so lucky to have you fighting his corner .

 

[mandymouse]

Aww hun, sending you lots of hugs and pixie dust

 

[Lizzy Lemon]

Some families seem to get all the bad luck going. Thought ours was bad enough but no where near what you have had to go through. I know from experience its hard to stay strong, you just go through it at the time and then look back and wonder how the hell you did it. My thoughts are with you and especially Cam who has to deal with all the consquences. Hope you all get a break from it soon.

 

[fav_is_tink]

Here's hoping that things turn good for you all soon, you certainly deserve some good luck with what you've all came through so far, stay strong

 

[chocolateMinnie]

I think we've all been waiting for an update and worrying for you but reality check is that we are far removed from the day to day heartbreak for you.

Really hoping you all get to turn the corner soon and get on with the good things in life rather than this wicked rollercoaster of worry you are going through.

Hope you manage to have a lovely Mothers day tomorrow with your four beautiful children. Lots of love.

 

[irisheyes123]

Sending you some and a

 

[DisneyJo]

I'm so sorry Louise, I really don't know what to say but I am thinking of you all

 

[mikki.young]

No wonder you didn't feel up to posting earlier! That must have been awful for you all. Hope he heals fast and they can then blast that infection. for you all.