Thought i'd share our plans for an (hopefully!) upcoming trip of a lifetime for our family, but mainly for our son Owen.
Owen is 6, he is severely disabled both physically and mentally, his underlying condition is Menkes disease, unfortunately its also terminal and when we got his diagnosis after 2.5 years of tests we were told in a nutshell that he may only live for a few months longer, but he is 6 now and is our little star, the light of our lives and we have pretty much dedicated ours to making his a happy one!
Our hope is to take Owen back to Florida for a wonderful trip, we did visit Florida almost 2 years ago now with Make A Wish which was absolutely wonderful, Owen just loved it and the heat was great for him, unfortunately we only had a week out there and no sooner had we just settled then it was time to head back, so ever since then we have wanted to take Owen back for a much longer stay and to really soak everything up with a trip of a lifetime.
We have had trips to Disney Paris which is great and Owen just adores the whole Disney thing, DLP is so easy for us with the Eurostar which does make is much simpler, long haul to Florida is a different kettle of fish completely!
We have/are fundraising for a potential trip as it will cost quite a bit, due to Owen's severe disability we have no choice really but to go first class, he needs to be able to lie pretty flat quite a bit and things like changing him is not easy on a plane, they just have no disabled facilities at all, last time on his Make A Wish he was much smaller but it was almost impossible to change him, we had to do it on the floor of the galley area with stewardesses holding sheets up so nobody could see, an awful situation really. So the only realistic way now would be first class as Owen is bigger and at home we now have to use hoists to move him around alot.
We are aiming at 16 days sometime next year and staying within Disney itself, we can pretty much leave hiring any kind of car then as the odd days outside of Disney we can just taxi, it makes sense I think as we would need a wheelchair accessible vehicle otherwise which would cost a fair bit.
So there we have it, the unfortunate thing is that we always have to think of these trips away as possibly the last with Owen, his condition will get the better of him in the end and we know he is very much on borrowed time so we try and do our very best for him. Our aim in life is to make his life as happy as can be.
Here is a little piccy of our little star -
also a link to our website for him if anybody wants more info on his condition etc.
www.owenmorrison.co.uk
So hopefully Florida 2013 will become a reality.
Owen is 6, he is severely disabled both physically and mentally, his underlying condition is Menkes disease, unfortunately its also terminal and when we got his diagnosis after 2.5 years of tests we were told in a nutshell that he may only live for a few months longer, but he is 6 now and is our little star, the light of our lives and we have pretty much dedicated ours to making his a happy one!
Our hope is to take Owen back to Florida for a wonderful trip, we did visit Florida almost 2 years ago now with Make A Wish which was absolutely wonderful, Owen just loved it and the heat was great for him, unfortunately we only had a week out there and no sooner had we just settled then it was time to head back, so ever since then we have wanted to take Owen back for a much longer stay and to really soak everything up with a trip of a lifetime.
We have had trips to Disney Paris which is great and Owen just adores the whole Disney thing, DLP is so easy for us with the Eurostar which does make is much simpler, long haul to Florida is a different kettle of fish completely!
We have/are fundraising for a potential trip as it will cost quite a bit, due to Owen's severe disability we have no choice really but to go first class, he needs to be able to lie pretty flat quite a bit and things like changing him is not easy on a plane, they just have no disabled facilities at all, last time on his Make A Wish he was much smaller but it was almost impossible to change him, we had to do it on the floor of the galley area with stewardesses holding sheets up so nobody could see, an awful situation really. So the only realistic way now would be first class as Owen is bigger and at home we now have to use hoists to move him around alot.
We are aiming at 16 days sometime next year and staying within Disney itself, we can pretty much leave hiring any kind of car then as the odd days outside of Disney we can just taxi, it makes sense I think as we would need a wheelchair accessible vehicle otherwise which would cost a fair bit.
So there we have it, the unfortunate thing is that we always have to think of these trips away as possibly the last with Owen, his condition will get the better of him in the end and we know he is very much on borrowed time so we try and do our very best for him. Our aim in life is to make his life as happy as can be.
Here is a little piccy of our little star -

also a link to our website for him if anybody wants more info on his condition etc.
www.owenmorrison.co.uk
So hopefully Florida 2013 will become a reality.