The THYROID Thread

Thanks again everyone. I think my brain has finally accepted this is going to happen. Just had to put on my big girl bloomers and get over whining about it :)

I do wish there were someone but because of distance, logistics and *ahem* family members who would cause more problems than assistance (don't we all have some of those), it really is just us. That being said, DH has a lot of vacation stored up, so at least he can take that time off to be SAHD afterwards. Sheesh. Sure would rather be using that vacation for Disney! I'm afraid we're already in the mobile stage, crawling and creeping like mad, at 8.5 mos he doesn't seem far from walking :faint:

Singingmom, I shudder to imagine your story. Though you are a thoughtful rarity in not telling your story -- when I was pregnant, moms came out of the woodwork to share their horror stories, lol!

As silly as it sounds, another reason I'm think of waiting until the end of September is that part of me wants to be sure I have a voice to sing Happy Birthday at his year birthday. I know voice loss is rare, but my father lost his voice to lung surgery, and 20 years later has just a thin gravely voice still.

I simply can't read the Fault book bc I cannot handle even beautiful but sad stories anymore. I made the mistake of reading The Book Thief in the thick of postpartum hormones and I think I cried every 20 pages. Though to be fair, I can't even stand to read the news anymore.

Such decisions are not easy to make. I wish there was someone other than a magic 8 ball that could tell us what to do.

I have never had any family to help me raise my child either and it stinks. My husband was always out of state with work too so DS got to go to all my doctors appointments sitting in the office with me or in a chair outside if need be. You just have to do what you have to do. Thank God I didn't have to go through all the cancer stuff till my son was a teen. Although he was no piece of cake then either. lol Unfortunately, he got in a car accident and totaled his 2 week old car just over a week after my surgery, begining of hypohell, so I had to drive him back and forth to work till we could find another. There is always something. My Disney vacations are done for God knows how long too since our medical deductible is $6000 I get to spend my vacation money on that. You are not alone.

I actually worked in an OB department and only saw one really bad situation with a birth in the year I worked that department. I think the horror stories are kind of rare from my experience but when they happen they are awful.

If it helps hearing a good story about the voice. I was told after surgery I would have the worst sore throat of my life and not to talk for a day and softly for a couple weeks. I never had even a scratch in my throat with a pain level of 0. It felt the same as before I went in and so did my voice. I started talking right after surgery and never shut up since. lol My friend, husband, and son kept telling me to be quit like the doctor said. Yet they kept asking me questions and talking to me. lol May your surgery go as well as mine.

MrsK,
That is wonderful news. So glad your bloodwork is clean and may it stay that way forever. :yay:
 
Has anyone heard of the PTEN gene testing?

I just read a little article and it said that men with the PTEN gene are 7 times more likely to get a thy ca recurrence.

Um, I am really worried about this because they said my nice little aggressive thy ca is usually found in men.

Well I am going t mention it to the endo at my visit and see if she has heard of it etc.

And in other news. Ds3 took the nursing boards sat. He actually did it so if he fails he can do it again in 45 days so he could stay in the accelerated online class instead of being decelerated to a 2 year class. He will know the results tomm. think.

And in other news I dont want to elaborate. Lets just say I dont handle stress well and had ds take my blood pressure. It was 150/100, yikes! Never a dull moment thats for sure.

Micayla - be thankful for diapers right now, just sayin!
 
So more than a month after my FNA I have the molecular genetic results. Thankfully they were all negative. My endo did say if I wasn't comfortable with the 90 to 95 % sensitivity I can have surgery. I may decide to remove it but for right now, I want to hold onto my thyroid. Thanks and wishing all good health.
 
3DisneyBuggs, I am glad you got good results and hope you can hold on to your thyroid as long as possible.

LMP, What form of thyca were you diagnosed with. Just curious because my form is very agressive as well.

Good to hear about your DS and taking his nursing test. I hope he passes the first time.

Ang
 

3disneybuggs- so glad you got a good report

ang - I have papillary with columnar cell variant


And in other breaking news...ds3 passed his nursing boards:cool1: Proud mom here for sure

I am going t call today to schedule the sono/ultrasound. I was suppose to be on a 6th month schedule but with the harsh winter, ds breaking his foot etc. it never got done, so I will get an appt. before we teach at the vbs.

What is everyones sono/ultrasound schedule?
 
3disneybuggs- so glad you got a good report ang - I have papillary with columnar cell variant And in other breaking news...ds3 passed his nursing boards:cool1: Proud mom here for sure I am going t call today to schedule the sono/ultrasound. I was suppose to be on a 6th month schedule but with the harsh winter, ds breaking his foot etc. it never got done, so I will get an appt. before we teach at the vbs. What is everyones sono/ultrasound schedule?


Warmest congratulations to your son on passing his boards! Great accomplishment!


You just reminded me I have to go for my ultrasound before my September appointment! My endo does one every other year or so. Never had one with the old endo!

Last day of classes for me. Friday is last liturgy. Then I can pack for mother/daughter WDW trip!

"SingingMom" ....Sent from my iPad using DISBoards
 
LMP,
Thanks I had papillary tall cell variant that I was told was very aggressive as well. I wondered if we had the same.

Congratulations on your son passing the nursing boards, that is awesome. I hear it is very hard to do the first time.

Good luck with sonogram. Right now I am on every 6 months for ultrasound till the next one then one per year with WBS. I am going to do only one more WBS and then tell endo that unless the ultrasound and cancer tumor marker comes back off no more WBS. All that thyrogen and tracer radiation can not be good on the body and after the last thyrogen shots I had the worst monthly of my life. My body definitely did not like the thyrogen.

Singing mom, Enjoy your mother daughter trip.
 
/
ang - my rad onc said - 2 clean scans and that was it. I agree about all the stuff in your body.

Singing Mom - I hope you have a wonderful trip with your dd

Christine - reading anything good? I just finished another amish book that I won from a blog and now I am reading a love inspired romance that I won from Goodreads. After that is another book from Goodreads. I think it was an author Ophrah likes. I dont know.

Well I got a call from the onc office confirming my visit next week. :confused3 I told them that the endo said I didnt have to go to the onc. anymore because all my cancer numbers were good etc. So they cancelled it. But I was upset because the endo said she would take care of this. I see her typing a million miles a minute at my last visit so I thought that was one of the things she was typing. Its all electronic records there. That is why I am also going over each script one by one etc. Lesson learned from last time and all my problems with refills etc.

I just made the ultrasound for June 30, the first they had. I want to get it over with early before my aug. endo visit as my dh is going away for 2 weeks to China and I will have to deal with all the 3 adult ds at once. Gheesh! Then I also have to do my teaching prep work and that is consuming me right now etc. I hopefully might decorate the classroom a little next week. We shall see.

Hope everyone is doing well. Check in when you can.
 
Hi everyone I hope you don't mind me crashing.

I am in the middle of the 'biopsy for a suspicious thyroid' lump roller coaster. Just wishing I had a FP+ for it as it's taking ages!

Booked 14 nights at Wilderness Lodge for Oct 2015 and the planning and researching for the trip is really helping me to focus.

I'm in Scotland and well supported by a great (free) national health service.

Just wanted to say hi
 
Hi everyone I hope you don't mind me crashing.

I am in the middle of the 'biopsy for a suspicious thyroid' lump roller coaster. Just wishing I had a FP+ for it as it's taking ages!

Booked 14 nights at Wilderness Lodge for Oct 2015 and the planning and researching for the trip is really helping me to focus.

I'm in Scotland and well supported by a great (free) national health service.

Just wanted to say hi
 
LMP, Thanks for the info about your endos thoughts on the scans. It makes me feel better about my own decision. My endo leaves a lot to be desired. He is more into the diabetes end of his practice.

FunkyDelia,
Welcome and I wish you patience while waiting your results. I know where I get tests done if I don't hear back right away it means there is nothing wrong. They have always called me within a day of my results when they weren not good and I can wait forever if they are good. lol

Enjoy your trip planning I bet it helps keep your mind off things.

These last couple years I wish I lived where there is universal healthcare. I have medical bills and health insurance payments coming out of my butt and everyone wants their piece of the pie even if you don't have any pie to give. lol
 
Funkydelia - I hope you have good test results!

Well tomm. is suppose to be my sono, but ds scheduled some work hours and said I didnt tell him etc, but I did. So hopefully this works out and I forgot the time so I will call them in the morning.

We had the big garage sale yest. I am exhausted. We really didnt make too much money and at least we are getting rid of alot of stuff - trash and donate.

I need a nap for sure!

Christine - saw your comment on the other thread. What type of engineering is your ds doing? Mine just did a general one that you learn about all types etc. I dont know where his future will lead him for sure.

Hope everyone is doing well. Check in when you can.
 
Christine - saw your comment on the other thread. What type of engineering is your ds doing? Mine just did a general one that you learn about all types etc. I dont know where his future will lead him for sure.

Mine is also doing a general engineering degree. The school he attends is in its "infancy" as far as engineering. They have only had the program for about 6 years now with about 400 students at any given time. It is growing. I'm sure one day, they will segment off into specialities, especially since the major is so popular right now in that school.
 
Well the ultrasound/sono is over. I got my usual girl who is nice. I asked her when my last one was because honestly I didnt remember. She said last July, so I missed the 6 month one.

My endo said she would be happy with a yearly one, but I said no every six months etc.

They didnt ask me to stay for any additional pictures so I am gonna go with the thought that all is well in my little cancer world for now:), but of course you just never know and the blood test will tell the tale for sure.
 
Well the ultrasound/sono is over. I got my usual girl who is nice. I asked her when my last one was because honestly I didnt remember. She said last July, so I missed the 6 month one. My endo said she would be happy with a yearly one, but I said no every six months etc. They didnt ask me to stay for any additional pictures so I am gonna go with the thought that all is well in my little cancer world for now:), but of course you just never know and the blood test will tell the tale for sure.


Prayers that all IS well in your world! :-)

I need to make my US appointment!

Packing this week and getting things settled for our mother-daughter trip! Poor hubby has to work, but is very supportive of us going! He is liking forward to Aulani in August!

Next Tuesday we leave on a 6am flight to Disney!!!

"SingingMom" ....Sent from my iPad using DISBoards
 
I have a needle biopsy in the morning and I'm actually really worried about it but I haven't told anyone it's bothering me. I'm just obsessing about Disney to take my mind off it!

I've never had anything done before but have had hshimotos for about 18years. On a huge dose of levothyroxine but have a big lump on the right hand side of my thyroid.
 
I have a needle biopsy in the morning and I'm actually really worried about it but I haven't told anyone it's bothering me. I'm just obsessing about Disney to take my mind off it!

I've never had anything done before but have had hshimotos for about 18years. On a huge dose of levothyroxine but have a big lump on the right hand side of my thyroid.

Everyone freaks out about the needle biopsy. It's really not that bad. You'll be okay--it is mainly anticipatory anxiety. After it's over you'll think "why did I get so worked up about that."
 
I have a needle biopsy in the morning and I'm actually really worried about it but I haven't told anyone it's bothering me. I'm just obsessing about Disney to take my mind off it!

I've never had anything done before but have had hshimotos for about 18years. On a huge dose of levothyroxine but have a big lump on the right hand side of my thyroid.

Christine is so right. I was so worried about my needle biopsy and it was such a relief to just have it over with. It really was not bad at all for me. Keep thinking Disney.

I too have been hypothyroid for about 20 years with hashimotos and have been on a very high dose of levothyroxine. My big lump was on the right had side of my thyroid too. Good luck and let us know the results we will be there for you when you need us.

Ang
 
Well the ultrasound/sono is over. I got my usual girl who is nice. I asked her when my last one was because honestly I didnt remember. She said last July, so I missed the 6 month one.

My endo said she would be happy with a yearly one, but I said no every six months etc.

They didnt ask me to stay for any additional pictures so I am gonna go with the thought that all is well in my little cancer world for now:), but of course you just never know and the blood test will tell the tale for sure.

So glad you got that ultrasound over. Glad there were no additional pictures needed either. Good luck with the blood work too.
 
Glad everything went well with the sono.

I'd never had one so wasn't sure what to expect. Definitely wasn't ready for the needle. Ouch!! Will need to wait 2wks for the results.
 














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