The THYROID Thread

[casndan]

Yes thankfully! I actually moved in with my parents right before the deployment started and our house is rented out, I had no idea what a good thing that would be when I did it.

 

[luvmarypoppins]

I really didnt have that feeling either. I actualy felt like like half my neck was gone, but then again it was. (sorry, sometimes I have some strange cancer humor)

I did have a hard time swallowing salad and bread though. But then again my tumor (12.5 cm) was huge and compressed my trachea so I had to get use to swallowing again, so sometimes it felt like things got stuck, but not a constant lump feeling.

I am so sorry you are going through this.Its great you have your parents for support.

So you already know you have to go hypo? Hmm, I guess I am blessed I didnt have to do that and just had 2 thyrogen shots instead etc.

Its a journey but you will get through it, and we are always here for you too!!

Wishing you all the best. Blessings always. (And tell your dh thanks for fighting for our freedoms)

 

[casndan]

Ohmygosh, that is a huge tumor! My largest nodule was only about 2cm.

You know I'm not 100% sure that I'm going to have to go off my meds yet, but I'm pretty sure that my nurse told me that I'd be going on the LI Diet and off my meds, but my doctor doesn't really want to make an official treatment plan until my 6 week ultrasound.

 

[es45]

Does anyone remember how long it took the lump in the throat feeling to go away after surgery? I feel pretty good but it's driving me crazy!

It took about a month for me to get rid of that feeling. It must have taken a good year to get used to wearing a necklace or turtleneck again because of my scar.

 

[casndan]

I was wrong, I DON'T have to come off my meds, they give the thyrogen shots! I'm pretty sure that's good news

 

[mrsklamc]

I was wrong, I DON'T have to come off my meds, they give the thyrogen shots! I'm pretty sure that's good news

That's wonderful news. I didn't realize- I had to be w/o any thyroid meds for 7 weeks following my surgery and I guess I thought everyone had to do that.

 

[luvmarypoppins]

I was wrong, I DON'T have to come off my meds, they give the thyrogen shots! I'm pretty sure that's good news

Cassie that is great news. The lst time I got the shots , shot 1 I had a terrible headache and shot 2 the next day I felt nauseous the whole time, not throwing up etc, just queasy.
This year I asked the rad. onc. for some zofran just to be prepared. Shot 1 I had a strange foggy in the head feeling and shot 2 just a little queasy, (didnt use the pills). At least next year its only 2 thyrogen shots and a blood test, no diet for me, yippee!!

Did they tell you what rad. dose you are getting. I had 200mci.

Its good you are doing the lid in the summer, as you will have alot of fruit and fresh veg. choices. Of course, we all can help you with meal ideas etc!!

When are you starting the diet?

Wishing you all the best.

 

[mrsklamc]

luvmarypoppins, I am taking your advice...we are going to go pick some strawberries and freeze for the LID. I bought an ice cream maker that had a recipe for home made strawberry sorbet so when the time comes DH is going to make that for me from the frozen berries!

 

[luvmarypoppins]

luvmarypoppins, I am taking your advice...we are going to go pick some strawberries and freeze for the LID. I bought an ice cream maker that had a recipe for home made strawberry sorbet so when the time comes DH is going to make that for me from the frozen berries!

Sounds yummy!! I actually tried to eat some semi frozen strawberries and it wasnt the best considering I need alot of dental work. It was too cold. Then I tried to heat up some blackberries in the microwave and put some oatmeal on them (just the oats). I guess I wanted it to be something like a cobbler. Big mistake. I found it a little too choking for me.

I could have went for some home made applesauce. but it was too labor intensive for me.

I was getting sick of all the pots, pans, etc. My plan worked well. The lst week I cooked for them but the 2nd week my dh was away and I told them just to go and buy stuff. I really didnt want to cook and look at the stuff. By the 2nd week it was too emotionally draining for me like denial and wanting it etc.

Micayla, I hope you dont hae to go off your meds again and can just get the 2 thyrogen shots. Its just so much better.

But I think you should WIN the prize here for having to do the diet the longest last year. That was amazing will power and strength!!

 

[NC State]

Can I join in? I found out Monday that I have Graves' Disease. I thought all these months I was going through "the change of life". Cry at nothing, hot flashes, can't sleep at night, weight gain, etc. The doctor put me on Celexa the first of April and told me to take Tyenol PM to help to sleep all night. Two weeks ago she added Wellbutrin. I'm still taking those but now I'm having to take Methimazole. I will take this for six weeks and back to the lab.

I'm just glad I know what is wrong with me. I really thought I was going crazy. I have a wonderful husband that still calls me "Princess" even though I was the "Evil Queen".

 

[es45]

Can I join in? I found out Monday that I have Graves' Disease. I thought all these months I was going through "the change of life". Cry at nothing, hot flashes, can't sleep at night, weight gain, etc. The doctor put me on Celexa the first of April and told me to take Tyenol PM to help to sleep all night. Two weeks ago she added Wellbutrin. I'm still taking those but now I'm having to take Methimazole. I will take this for six weeks and back to the lab.

I'm just glad I know what is wrong with me. I really thought I was going crazy. I have a wonderful husband that still calls me "Princess" even though I was the "Evil Queen".

Welcome NC State! I don't know much about Graves' but I'm sure that someone who does will respond soon. I'm glad that you are on the road to recovery and it sounds like you have wonderful support in your DH. It is always my DH who points out when it's time to go back to the endo. I'm not certain if he's just sensitive to my symptoms or if I'm driving him crazy. Perhaps it's a bit of both

On a personal note I just have to say, "Go Pack!"

 

[My2Pixies]

Anyone have a child with hypothyroidism? My 7yodd was just dx with this, with growth delay being her main symptom. Just hoping to hear from someone who has also dealt with this and what to expect. She will be starting Synthroid.

 

[mrsklamc]

Anyone have a child with hypothyroidism? My 7yodd was just dx with this, with growth delay being her main symptom. Just hoping to hear from someone who has also dealt with this and what to expect. She will be starting Synthroid.

I had cancer, so I haven't had this exact experience, but it's my understanding that with synthroid she should have a pretty normal life once they get her dose adjusted.

She may have to adjust again later in life, but as chronic diseases go, once you get thyroid problems diagnosed and treated, they aren't the worst thing in the world, typically.

 

[mrsklamc]

My endo had to cancel my weds. appt. today ...and didn't have open appointments til August. My follow up scan was supposed to be in August so I asked if it could still be scheduled.

Her assistant said it can, she will schedule it next week as soon as she finds out if the Dr. wants to do a thyrogen scan or a total withdrawal scan.

If she does a total withdrawal scan, I will be on cytomel for 4 weeks...can anyone tell me their experiences of how different you felt on cytomel vs.synthroid?

 

[luvmarypoppins]

Anyone have a child with hypothyroidism? My 7yodd was just dx with this, with growth delay being her main symptom. Just hoping to hear from someone who has also dealt with this and what to expect. She will be starting Synthroid.

No experience either. I just take the syntrhoid for cancer too. Wishing you dd all the best.

 

[Christine]

My endo had to cancel my weds. appt. today ...and didn't have open appointments til August. My follow up scan was supposed to be in August so I asked if it could still be scheduled.

Her assistant said it can, she will schedule it next week as soon as she finds out if the Dr. wants to do a thyrogen scan or a total withdrawal scan.

If she does a total withdrawal scan, I will be on cytomel for 4 weeks...can anyone tell me their experiences of how different you felt on cytomel vs.synthroid?

I felt very good on Cytomel. It gives you a different kind of energy than normal. I can't really explain it but when I was taking it I thought "hmmm....maybe a little T3 in my life wouldn't be a bad thing." But then when I tried to take it along with my Synthroid, I didn't feel well.

It is very short-acting so it will go in, you will feel good, and you will then crash. You'll take some more, feel good, and then crash. My last doctor prescribed one of the lower doses and then had me split it up throughout the day. Most docs prescribe it and tell you to take one bigger dose in the morning and that's it. I would get your Cytomel dose and cut it into thirds. Take one/third in the morning, one/third at lunch, and one after dinner. Don't take it after 6:00 p.m. or so because it could make it hard for you to fall asleep (unless you go to bed really late).

 

[luvmarypoppins]

My endo had to cancel my weds. appt. today ...and didn't have open appointments til August. My follow up scan was supposed to be in August so I asked if it could still be scheduled.

Her assistant said it can, she will schedule it next week as soon as she finds out if the Dr. wants to do a thyrogen scan or a total withdrawal scan.

If she does a total withdrawal scan, I will be on cytomel for 4 weeks...can anyone tell me their experiences of how different you felt on cytomel vs.synthroid?

I am so sorry that happened to you micayla. I had to change mine too, it took forever and many phone calls. I felt like I was being treated in a different way from the regular rad. patients who go every day etc.

At least you will have your diet date too.

Your endo must be really popular, busy etc.

How was the strawberry picking?

 

[mrsklamc]

My endo is wonderful, she actually became an endo because she had thyroid cancer at 21 or 22. It was such a relief to see her.

Berries got delayed but we must go soon! Season is going to be short because it's been so warm. I'll let you know!

 

[es45]

Anyone have a child with hypothyroidism? My 7yodd was just dx with this, with growth delay being her main symptom. Just hoping to hear from someone who has also dealt with this and what to expect. She will be starting Synthroid.

At one point my youngest was being tested for thyroid disease. I found the this site helpful:

http://www.magicfoundation.org/www

I don't imagine there are a lot of support groups since childhood thyroid disease is not common.

Sorry that I couldn't be more help; my best wishes to you and your daughter.

 

[luvmarypoppins]

Micayla - I forgot to ask how were you feeling from all the swelling? Just curious what you did to resolve it?

I got the bill accidently for my nuclear scan, this is not for the thyrogen shots or blood tests or rad. onc. visit, I think just the scan itself. It was $1,441.00. Wowsa! I am glad dh policy has no lifetime maximum. We are blessed for sure.