The THYROID Thread

[Minerva Mouse]

Arrived this afternoon in WDW - muggy and sprinkles. Dropped off our bags and headed to Epcot in time for dinner & Illuminations. Tomorrow 80 & sunny while we take the Backstage Magic tour. Looking forward to the next 9 days!

Best to all of you!

I'm glad you finally got to some warmer temperatures.

My biopsy is this Wednesday. It was on my mind most of today. I'm trying not to freak out, but..... like I said, it's defiantly on my mind.

 

[SingingMom]

I'm glad you finally got to some warmer temperatures. My biopsy is this Wednesday. It was on my mind most of today. I'm trying not to freak out, but..... like I said, it's defiantly on my mind.

If you are very anxious, maybe call your doctor to tell him? He might prescribe some Xanax to take the edge off.

"SingingMom" ....Sent from my iPad using DISBoards

 

[luvmarypoppins]

Minerva Mouse - I am sure you are feeling anxious. Are you going yourself or taking someone with you? Maybe think of a little treat/reward for yourself when it is over. Like starbucks, ice cream etc. Thinking of you

Singing Mom - how is your trip going? I hope you are having great weather and a great time!

Micayla - I bet you are feeling miserable right now and the bathroom needs to be close for sure! I was always miserable at the end. Hang in there sweetie!

Well I am having so many problems with my legs and I dont know why. First it was my L leg. It was so bad I had to use my grandmas walker that we still have here. Now last night we went grocery shopping I think I overdid it and my R leg was killing me. It was so bad I took some leftover painkillers that I had. I dont know what is going on.

On top of this middle ds has broken a toe in his foot. He is on crutches and needs to go to the ortho. I dont know how he is gonna get around college. I hope he can get a walking boot or air cast. Its his driving foot too so that is not good.

Well I need to get the blood test soon and the sonogram. When all this needs to be done dh will be in Calif. again so I might try to get it done earlier.

Check in when you can.

 

[Nora03]

Minerva Mouse - wishing you the best tomorrow for your FNA. I have mine scheduled for next Monday. I'm not nervous at all. Just happy that I've finally got an appointment after such a long wait. I'll probably be nervous on Monday though.

Hope we both get good results!

I got a crazy fortune in my New Year's fortune cookie - "Hope for the Best, but prepare for the worst"! Isn't that crazy? Of course the first thing I thought of is that I'm not at all worried about my results, but should I be worried?

Let us know how it goes tomorrow. Will be thinking good thoughts for you.

Nora

 

[Christine]

Glad to hear everyone's doing somewhat okay! Minerva Mouse, good luck with the FNA, you'll do great. I went with my friend to hers, just in case she felt odd afterwards but she was okay. She was all flushed when she got out of there because it took so long and she had to hold herself still--but she did fine.

Wish me luck tomorrow. It will be my first day back to work since the shooting. We aren't returning to the building where it occurred but to a temporary location where we will be for about a year. I've been teleworking for 2.5 months and I am VERY anxious about reentering civilization again!

 

[Minerva Mouse]

If you are very anxious, maybe call your doctor to tell him? He might prescribe some Xanax to take the edge off.

Thanks for the idea singing mom, someone at work suggested that as well. But I've never taken that before, so not knowing how I would react, made me decide that this may not be the best time to find out, lol. But I can see how it would help some.

Minerva Mouse - I am sure you are feeling anxious. Are you going yourself or taking someone with you? Maybe think of a little treat/reward for yourself when it is over. Like starbucks, ice cream etc. Thinking of you

Mary, I hope your legs feel better soon.

Minerva Mouse - wishing you the best tomorrow for your FNA. I have mine scheduled for next Monday. I'm not nervous at all. Just happy that I've finally got an appointment after such a long wait. I'll probably be nervous on Monday though.

Hope we both get good results!

I got a crazy fortune in my New Year's fortune cookie - "Hope for the Best, but prepare for the worst"! Isn't that crazy? Of course the first thing I thought of is that I'm not at all worried about my results, but should I be worried?

Let us know how it goes tomorrow. Will be thinking good thoughts for you.

Nora

Nora, I've always tried to psych myself up that way. Plan for the worst, and hope for the best, that way you won't be disappointed. I think it's interesting that your not worried about yours, and I've already convinced myself my cancerous. I can't explain it, I've had other medical tests before and I knew everything was fine, and it was. This time, I'm not so sure, I just have this feeling. Maybe I'm wrong, guess I'll know in about week.

Glad to hear everyone's doing somewhat okay! Minerva Mouse, good luck with the FNA, you'll do great. I went with

Christine, I can't imagine how tomorrow might be for you. Stay strong, take it one day at a time, things will get easier.

You all are the best! Thank you, thank you, thank you for the Wishes. My appointment is at 6:30 am. I plan on waking shortly before, heading to the appointment, then returning home for a nap. I took a half day off of work, so I don't have to be there until 1:00 pm and my DF is going with me, so if I don't want to drive, I won't have too. I'll keep ya posted!

 

[SingingMom]

Minerva Mouse - I am sure you are feeling anxious. Are you going yourself or taking someone with you? Maybe think of a little treat/reward for yourself when it is over. Like starbucks, ice cream etc. Thinking of you Singing Mom - how is your trip going? I hope you are having great weather and a great time! Micayla - I bet you are feeling miserable right now and the bathroom needs to be close for sure! I was always miserable at the end. Hang in there sweetie! Well I am having so many problems with my legs and I dont know why. First it was my L leg. It was so bad I had to use my grandmas walker that we still have here. Now last night we went grocery shopping I think I overdid it and my R leg was killing me. It was so bad I took some leftover painkillers that I had. I dont know what is going on. On top of this middle ds has broken a toe in his foot. He is on crutches and needs to go to the ortho. I dont know how he is gonna get around college. I hope he can get a walking boot or air cast. Its his driving foot too so that is not good. Well I need to get the blood test soon and the sonogram. When all this needs to be done dh will be in Calif. again so I might try to get it done earlier. Check in when you can.

Trip is going very well! Happy to know we still have three full days to go! Weather has been nice - last year was warmer, but it is still pleasant. Have had some exceptional meals and met up with special friends. DD20 is enjoying interacting with characters and depending time with us. I really do love it here!

"SingingMom" ....Sent from my iPad using DISBoards

 

[mrsklamc]

Thinking of you today, Christine and Minerva Mouse.

Lmp- I'm not too miserable physically. It does seen like I'm always tired and hungry and have to go to the bathroom! But still a breeze compared to being hypo.

 

[Minerva Mouse]

Hi Everyone

Well, I'm glad that's over. Defiantly not something I want to do again any time soon. I live here in Orlando, so I went to a facility called Sandlake Imaging, this was my third time at this facility, and I really like it. They usually have me in and out, and are very professional.

Anyway, they took me back and the ultrasound tech explained what was going to happen, she then took some images, and passed them on to the tech who would be responsible for stabbing me with needle. She said they have a 96% success rate, so only four out of one hundred patients have to return. I really, really, really hope I'm not one of the four.

The tech was super fast, I was impressed with her speed. The initial numbing needle was a bit of bear, but tolerable, and then I just felt the pressure, and I swear she was like wiggling that needle around my neck. I was good, thru the procedure, until she said the words "We're all done". And then this massive rush of endorphins fled from my body, and my temperature increased to about 4,357 degrees. I became increasingly lightheaded an nauseous, and they could see it on my face.

The tech ran out of the room, "juice, we gotta get this girl some juice" she returned with a bottle of apple juice, which apparently helps to balance your system back out, it took a few seconds, but I almost immediately felt better.

All in all, I was in and out of the office in less than an hour. Its defiantly not on my list of favorite procedures, but its also not at the bottom.

 

[Nora03]

Minerva Mouse - that didn't sound like fun, but it's behind you now. I have this to look forward to on Monday. Did they say when you'd get your results?

I suppose I'm not too worried because I had a FNA about twenty or so years ago and I don't remember it being too bad. Not as bad as some of the procedures or surgeries I've had over the years. Also, my results were good then, so I'm assuming and hoping they will be good this time too.

Christine, I hope you got through your first couple of days back at work. It must be very stressful. What a crazy world we live in now.

Nora

 

[luvmarypoppins]

Minerva - glad you are done! Now waiting is the hardest part. I think mine took about a week. Just curious were you lying down when they did it? I am also wondering about that you said a tech did your fna? I am glad your body got readjusted but that must have been scary too.

I had the surgeon do mine. I had to sit up in a chair. Another time when I had an infected lymph node I also had him do it too. I picked my endo because they said she does fna too but I have seen that office and honestly I dont know where she would do it that would be comfortable for me. I like her personality much better though.

Nora - wishing you all the best on Monday too. Who is doing your fna?

Christine - how did things go for you. I am sure it was hard on everyone.

Micayla -did the dr. give you an estimate on the babys weight?

 

[Nora03]

Luvmarypoppins - my appointment for the FNA is with a doctor. I looked him up and he is a head and neck surgical oncologist and has a very good reputation. He is at the largest cancer center in our city. I was pleased to get him.

By the way, have you seen "Saving Mr. Banks"? We saw it last week and loved it. Thought you might like it because of your "name". I was disappointed today to see that it received no Oscar nominations. It is an interesting story. I loved seeing Tom Hanks as Walt Disney. He was perfect. Wish Walt could have lived longer to see his dreams come to fruition.

Nora

 

[mrsklamc]

Micayla -did the dr. give you an estimate on the babys weight?

The last time they did that was Monday the sixth. They took three sets of measurements, and the first and last were about two pounds apart (4 pounds and a few ounces to five pounds and I think 12 ounces) so I concluded that I don't think they really know.

 

[luvmarypoppins]

Here is my synthroid story of the day.

I see I need to order a refill. My bottle says no refill. Thats ok because the endo told me that they are switching over to electronic records and all refills will automatically be sent to your pharmacy etc.

So I ask the pharmacist via phone if there is an electronic refill on file from the endo He says oh no. He is now faxing a med refill request to the endo.

I am going to tell the endo this was a big epic fail as one of my ds would say.

They dont give you any paper refills to take with you anymore. I dont do mail order. Sigh.

My ds is going to the ortho today. I hope they dont have to cast his foot. That would be terrible trying to get around the college campus like that.

 

[Christine]

I finished my first three days back in work. I am EXHAUSTED!!! Not used to commuting and being "on" for so long. I probably lost 5 lbs just walking around and fretting so much.

It was nice to be back with people, though, and I'm glad we are moving back to some order. Most people are handling things well but I have one sort of sad story.

Yesterday I had to take a shuttle back to the where I used to work to get my parking pass renewed. I saw one of our Wounded Warrior workers there and he had a seizure dog named Larry that we all just love. Well, Larry was there (he's a yellow lab) and he just looked old and tired. I said to his owner, "Hey, Larry's looking a litte down and out." He said "Yeah, Larry's not doing to well and he's going to retire soon." I asked what was wrong and he said that ever since the shooting, Larry has not been "right" and he can't handle any loud noises. Since he's a service dog, he has to take tests annually and he has failed his "gunshot noise" test. Larry looked so old but his owner said he was only 8 years old. He looked a lot like my 13 year old dog does. That just about broke my heart. Who knew that dogs could suffer PTSD. But I guess he was very close to the shots and they were extremely loud where he was.

I did have my first little panic attack at work today (on my third day, no less) but I don't think it has anything to do with PTSD. I just feel like since they took Levoxyl off the market, I have not been right. I'm on Synthroid now with a TSH of 0.7 so I should be good as gold but I really do have issues.

 

[luvmarypoppins]

Nora - I hope your fna went well today

Well my ds had to get a cast on and no weight bearing. The hosp. misread his xray and its broken in a different place. A hard fracture that takes a long time to heal.

My dh took him and it was a new ortho. We didnt like the old one who took the place of another one who retired. Its still the same group.Well this ortho told them that ds has all the classic symptoms of the syndrome that my sister died from and wants ds to have an echo, blood work since he keeps breaking his bones etc. Wants to check his vit d levels and calcium etc. He has a horrid diet. Refuses to eat vegs. Likes sushi etc. So Micayla,I am totally relating to your genetic lottery comment

This dr. says that even though I had ds have an echo when he was 2 he feels the symptoms manifest more in teen years etc. I have told every one of ds drs. our medical history and no one has ever said anything. I am just so upset. I am praying even though I wanted to throw up at first. We have also been to the best genetic counselor in NYC who knows about this disease and she told us that that they didnt have it etc.

I also had a good chromosome lesson in genetics about autosomal dominant things and spontaneous mutations etc.

So tomm. we start a journey I dont want to go on again. I am glad I have my faith. That brings me a lot of comfort for sure. And its suppose to snow up to a foot starting tomm. sigh.

 

[Nora03]

luvmarypoppins - I didn't have my FNA yesterday as there was a mix up with the date. I have to go back on Thursday for it.

I'm so sorry your DS is having medical problems. I hope it is not the genetic illness and that it works out for you. Is he having testing? Sending out pixie dust and good thoughts for you and your family.

One of our little granddaughters was diagnosed with a very rare auto immune disease about two years ago (at age 8). At first they thought it was genetic as her Dad's family has some genetic problems and two of his siblings have serious disorders. However, after much testing it was determined that she contracted this disease from a virus. Very strange. She had a bad flu shortly before she started having symptoms so they think it was that. Long story short is that at some point in her life - could be six months to years - her kidneys will fail. We were all devastated, but we have come to terms with it and are doing what we can to make her life normal. She had about a year of treatments and we (grandparents) took her to lots of them, until they found a drug that has stabilized her. Her kidneys are functioning very well right now. It is very complicated and I don't understand it all, but we feel so fortunate that there is a new drug that is helping her. Because this disease is so rare (only one or two in a million get it) we were concerned that there would be no good treatment. But they are working on trials and doing research all the time on many illnesses.

So, my point is that perhaps they have discovered new and better treatments since you lost your sister to this disease. And, maybe your son doesn't have it at all. Hoping for that. Good luck.

 

[luvmarypoppins]

Nora - best of luck to ou tomm. Thinking of your dgd. I am sure it is hard but it seems like she is getting the best treatment she can at present.

Sat. dh is taking ds2 and I for our blood tests. Tomm. I will call for the sono appt. I didnt want to do it today because we had 13 inches of snow yest and I am sure anyone who came into work today is grouchy.

Well this new dr. thinks that ds is showing some of the symptoms especially the hands. They couldnt do an ekg because they didnt have the right machine and because of his cast. I had ds3 take him and he liked this dr. so he may switch too. Its a female who does thyroid stuff and she is also ordering some thyroid test on ds because it was on moms list .

I will call tomm. and see when m endo visit is too because I forgot.

Micayla - how are you feeling. I was thinking of you in the snow and thinking gosh I hope she doesnt have the baby in the snow. I worried about that too with our Jan. baby who is 24 this week.

Christine - hope you are adjusting to work.

Minerva - thinking of you as you wait for the results.

 

[Minerva Mouse]

Good evening everyone.

It's not cancer. All cells came back non malignant. And no surgery required (at least at this time).

They were able to diagnose Hashimoto's Thyroiditis. Which I'm sure some of you know more about than I do at this point. I was told that with regular blood work, and getting my TSH levels in check, that the nodule should stop growing, and eventually shrink. I'm currently on 88 mcg of Levothyroxine, and scheduled to recheck again in March. My last test, in November (if memory serves) I was only at 75 mcg, and my levels were still well above 4. I may call my doctor and see if she recommends me coming in sooner? 6 months between blood tests, seems way to long, especially when your still trying to get things in balance.

Thank you everyone for going on this journey with me, it's nice because you understand. We may not all be sharing the same cabin, but we're all on the same boat, and it really does help to talk and hear from people battling similar issues.

 

[mrsklamc]

LMP- The big thing here is really the wind chill; but it's funny you say that because during the one big snowstorm we had, DH kept sweeping the snow out from in front of the garage so he could have a 'headstart' if he needed to get a vehicle out. I teased him a little but the next day there was a woman on the news who had given birth at home by herself!

Had my checkup w/ the endo this morning, she said she didn't feel anything in my neck which is a great sign because if there is something there, the pg hormones would have made it grow.

Minerva Mouse- I am SO happy for you!