GRUMPY PIRATE
First rule, always!!
- Joined
- Aug 23, 2007
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Everyone ignored this thread yesterday!![]()
DS, letter C, was just diagnosed with Celiac disease. Now all the girls have to be tested, too. Visits set up to the gastroenterologist. And we will all be switching to a gluten free diet.
///Hopefully the girls will all test negative. I can't believe I'm saying this, but I've seen many posts about it on the DIS. I'm sure there will be some who can provide any support and information you need...![]()
He's been having stomach pain for awhile. And diarrhea. We've been trying to figure it out, and finally we have. I think a gluten free diet is going to be more work for me. But, once we get used to it, I'm sure it won't be bad. We aren't supposed to start it, yet. Not until after he sees the gastro doctor. No real doubts that he has it, though. Anything over a 9 on the blood test is celiac's, and he maxed it out at 100. Over-achiever![]()
....See . . . I knew there was a reason I have "kimmar is the queen" in my sig. Instant support!
....awww, shucks...![]()
....YAY, kid got a 100 on his test....bet he takes after his mama...
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...but srsly, at least you found out with a blood test. That wasn't even available 'back-in-the-day'. After 2 years of bouncing around from doctor to doctor and a ga-ZILLION different tests, it was finally diagnosed by endoscopy. Thank goodness lil' C didn't have to have that done!If I could give you 2 pieces of advice, please just indulge me:
1) It isn't simply a matter of keeping him away from 'obvious' products that contain gluten, like cereals, breads, and cookies/cakes. If the product contains 'maltodextrin', 'modified food starch', 'autolyzed yeast extract', chances are that they COULD contain traces of gluten. Also, be very careful for products that contain vinegar, since some vinegar may be made with grains. Look for DISTILLED vinegar (distillation does something to the gluten), which is good news. Today, more and more products list 'GLUTEN-FREE' on the package, which is so helpful. However, you still must read the ingredients. About a month ago, my friend and I were at the Christmas Tree Shop and they have a small 'grocery' section with gourmet and gluten-free items. One particular cookie/candy (I forgot the name) specifically said GLUTEN-FREE on the front. But, when you read the ingredients on the back, the 2nd items listed was wheat!We immediately told the manager, so he removed all the product from the shelves.
2) No matter how hard it may seem at first, adjusting your diet WILL get easier with time. Remember, it's a life-change, and not a temporary thing like a fad diet. Also, the Internet has become my best friend. There are so many sites that have valuable info and other sites that have support groups...![]()
Endoscopy, etc, could still be in his future. The pediatrician said he'll probably get one. Lucky for us, there was a cancellation, and his appointment was moved up a month. He goes tomorrow. Not sure how that's going to work with all the girls since I don't have a sitter, but we'll manage.
Thanks for your advice. I'm sure I'll need all I can get. I know I have lots to learn. He never ate much bread until recently when we pushed him to eat more with hot dogs, hamburgers, and sandwiches. He had always eaten them sans bread. Maybe his body knew he shouldn't eat them. We feel bad for pushing him to eat them. Poor kid.
And, in case you were wondering, B's head IS hard enough to leave my cheek bruised and slightly swollen while she barely noticed she'd hit me at all.
And, in case you were wondering, B's head IS hard enough to leave my cheek bruised and slightly swollen while she barely noticed she'd hit me at all.
PK had an endoscopy when she was 5. 9/11 was on Tuesday and she was scheduled for Friday. You all know how I am.I was beyond basketcase. Crying hysterically. Knew for sure something horrible would happen... she liked being high on the meds they gave her.
She was so funny I had to laugh. Whatever they gave her to get her drowsy beforehand, they had her basically tied to an office chair, wheeling her down the hall to see me and it was the funniest thing I've ever seen in my life. Not so funny when she woke up....