The DDA Trouble Free Zone Part 5

[PNO4TE]

Denise, you are in my thoughts. How agonizing it has to be for you and John to have to sit there and listen to porr little Rees and be unable to help him. I am sure it is wearing on you both, as well as BK and Davis. Poor Figs... all of you. Please know that we are all thinking of you and hoping for a quick, more permanent solution to this problem that will allow Rees a more pain free life. And also allow less stress for his Mommy and Daddy.

 

[triplefigs]

Denise, can they give him anything for the pain....an iv with meds?

I sure hope so. That's why if it happens again tonight, we're off to the ER. He doesn't remember any of the stuff before (and neither did BK and Davis). We had to explain to them what was happening and why I was crying. They said they were going to draw Rees picture in blue (his favorite color) to make him better. They were really worried about him.

Tomorrow is their Easter Party at school, and he really wants to go. Send prayers he sleeps well and can go to school, please.

 

[Steamboat Marti]

I have finally discovered the ONE flaw of the DDA - we are just too far apart to help our friends when they need us most.

Denise - we would all fly to Atlanta tomorrow if we knew it would help. You are all in our thoughts and prayers. I wish we all lived closer!

 

[ellenbenny]

DDA, I could use some serious prayers for Rees (and me) please. Here's some background so you'll understand the seriousness of this issue.

Denise, I am just so sorry that your little Rees has to go through such terrible pain. It is just so heartbreaking to see your child, or any child, in pain, and when there is little you can do to ease their suffering. I pray for Rees, and for you, John, Davis and Brantley-Kate, that the doctors can ease the suffering for Rees, and for rest of you to give you the strength to help him and each other through such difficult times. I so wish there was something more I could do to help, and if ever there is, please don't hesitate to ask. For now, our prayers are with all of you.

 

[tinker1bell]

DDA, I could use some serious prayers for Rees (and me) please. Here's some background so you'll understand the seriousness of this issue.

When Rees was born, he was our healthiest until day 2 when he crashed. He was so sick, and the doctor's didn't know if he would make it or not. They could not get him off the ventilator, and it was extremely touch and go. He had horrible time feeding, and was diagnosed with severe reflux (GERD). He literally spent weeks at a time in the hospital, with one stay 45 days just before his first b'day. He vomited up to 40 times per day, was in agony, on all types meds, had so many nasty procedures done it breaks my heart, was on feeding tubes... oh, it was just horrible. We would call the GI doctors at 2am with him screaming in agony, refusing to eat at all, arching his back. We'd end up in the ER, get admitted again, go to the PICU. It was a vicious cycle and some very dark days. Finally at age 17 months he had a major surgery called a Nissen Fundoplication. A Fundo is a drastic and last resort surgery for these kids. They literally go in and wrap the child's stomach around their esophagus to physically prevent any acid for regurgitating out of the stomach. It has lots of side effects, and the kids are unable burp or vomit afterwards, so you must be very careful with stomach flu, food poisoning, swallowing pennies (ok, that is funny). It was MAJOR surgery. He was in the hospital for 10 days, has an incision from his breast bone past his belly button (looks like open heart surgery). Up to that surgery Rees was Failure to Thrive and only weighed 15 pounds. The reflux and long hospital stays and pain are a major reason he is developmentally delayed.

Well, 3 weeks ago Rees started refluxing again. He would wake us up at night saying his tummy hurt and point to his chest. He's back on all his meds, but they aren't helping. Tonight, it was absolutely horrible. He was retching, sobbing, screaming!!!!!!!! in pain for over an hour, arching his back, thrashing around in my arms because it hurt so bad. We finally got some meds to stay down. John and I are both panicked and have been sobbing all night. It has brought us back to the worst time in our lives. It was pure h*** and I can't believe it's starting again. So, it looks as if we will be going to the hospital for an emergency Upper GI in the next few days and possibly scheduling him for major surgery to have the Fundo repaired.

Please pray for my Rees. I can't believe this is happening to my baby again. I am absolutely devastated.

Oh, and John looked at me when we finally got Rees to bed tonight and said, "forget going back to school or work. Rees and the kids need you much more than we need money. God has you at home for a reason, and that's where you're staying." Thank goodness I have a fantastic husband who puts the kids above anything else. Needless to say, the whole teaching school thing is on hold for a long while. Rees just is too medically fragile for me to be working full-time and not have the flexibility to be with him.

Denise,
My heart goes out to you.

being home with everyone is really the best. The time will come down the road for you to broaden your horizion.

 

[duckyfordonald]

Please pray for my Rees. I can't believe this is happening to my baby again. I am absolutely devastated.

Hello. I don't usually post on this thread because I can't seem to keep up to speed, but tonight I was drawn to read the posts. I came across yours and wanted to share this prayer with your family.

"I said a prayer of healing for you - body, mind, and soul.
That God would bring you comfort to restore and make you whole.
I prayed you'd be surrounded by His awesome love and healing.
Dispelling all anxiety or pain you might be feeling.
Finally, I prayed you'd be uplifted by His grace,
And feel yourself enfolded in the peace of His embrace."

I will continue to ask the Lord for HIS strength, wisdom and comfort for your family as you face the upcoming medical tests, and deal with Rees' pain. There is nothing more difficult for a parent!!!

"But they that wait upon the Lord shall renew their strength; they shall mount up with wings as eagles, they shall run, and not be weary; and they shall walk, and not be faint." Isaiah 40:1

Shana

 

[UP Disney]

Shana welcome! You are always welcome to drop in anytime.

 

[MinnieMouseMom]

Hey Shana! Stick around, we'd love to have ya!

 

[ksoehrlein]

I was just about to post something trivial about all the back reading I've been doing (been away from this thread since our WDW trip mid-March) when I scrolled down to see Denise's post about Rees and all your replies. Denise, my heart is aching for Rees and your whole family. I can't begin to imagine what you're going through. I hope and pray everything goes well with the surgery and that Rees can be pain-free as soon as humanly possible.

 

[Brendita]

DDA, I could use some serious prayers for Rees (and me) please. Here's some background so you'll understand the seriousness of this issue.

When Rees was born, he was our healthiest until day 2 when he crashed. He was so sick, and the doctor's didn't know if he would make it or not. They could not get him off the ventilator, and it was extremely touch and go. He had horrible time feeding, and was diagnosed with severe reflux (GERD). He literally spent weeks at a time in the hospital, with one stay 45 days just before his first b'day. He vomited up to 40 times per day, was in agony, on all types meds, had so many nasty procedures done it breaks my heart, was on feeding tubes... oh, it was just horrible. We would call the GI doctors at 2am with him screaming in agony, refusing to eat at all, arching his back. We'd end up in the ER, get admitted again, go to the PICU. It was a vicious cycle and some very dark days. Finally at age 17 months he had a major surgery called a Nissen Fundoplication. A Fundo is a drastic and last resort surgery for these kids. They literally go in and wrap the child's stomach around their esophagus to physically prevent any acid for regurgitating out of the stomach. It has lots of side effects, and the kids are unable burp or vomit afterwards, so you must be very careful with stomach flu, food poisoning, swallowing pennies (ok, that is funny). It was MAJOR surgery. He was in the hospital for 10 days, has an incision from his breast bone past his belly button (looks like open heart surgery). Up to that surgery Rees was Failure to Thrive and only weighed 15 pounds. The reflux and long hospital stays and pain are a major reason he is developmentally delayed.

Well, 3 weeks ago Rees started refluxing again. He would wake us up at night saying his tummy hurt and point to his chest. He's back on all his meds, but they aren't helping. Tonight, it was absolutely horrible. He was retching, sobbing, screaming!!!!!!!! in pain for over an hour, arching his back, thrashing around in my arms because it hurt so bad. We finally got some meds to stay down. John and I are both panicked and have been sobbing all night. It has brought us back to the worst time in our lives. It was pure h*** and I can't believe it's starting again. So, it looks as if we will be going to the hospital for an emergency Upper GI in the next few days and possibly scheduling him for major surgery to have the Fundo repaired.

Please pray for my Rees. I can't believe this is happening to my baby again. I am absolutely devastated.

Oh, and John looked at me when we finally got Rees to bed tonight and said, "forget going back to school or work. Rees and the kids need you much more than we need money. God has you at home for a reason, and that's where you're staying." Thank goodness I have a fantastic husband who puts the kids above anything else. Needless to say, the whole teaching school thing is on hold for a long while. Rees just is too medically fragile for me to be working full-time and not have the flexibility to be with him.

Denise to all your family.
Our thoughts are with you.
Many prayer are sent.

Ramiro was born with a defect.
Thank God he only needed 1 surgery.

 

[ksoehrlein]

Can I lighten the mood for just a minute?

Chanon, you must have started posting more around the time I left for my vacation. When I read through some posts from the past couple of weeks, I had to do a double-take when I saw this:

Since everyone is posting pics, I'd thought I'd share from our 2001 trip.

Your DBF is an exact double of my (long-ago) XBF! I was SO relieved when I found another of your posts where you refered to him as "Bob" and not "Sean"! (Trust me, there would NEVER be wedding bells with the latter...) Anyway, please tell Bob he has an evil twin out there somewhere.

 

[my3princes]

I have been fooling around with an xmas design for our trip...what do you think?

Very Cute.

Deb

 

[duckyfordonald]

Thank you so much for the warm welcome! I have to apologize that I have not read through the 1,000+ pages , so I don't know the "history" that you all share. But I do look forward to posting more frequently and getting to know each of you better. You seem like such a caring, generous (and I can't forget TALENTED) bunch!!!
Blessings, Shana

 

[UP Disney]

Thank you so much for the warm welcome! I have to apologize that I have not read through the 1,000+ pages , so I don't know the "history" that you all share. But I do look forward to posting more frequently and getting to know each of you better. You seem like such a caring, generous (and I can't forget TALENTED) bunch!!!
Blessings, Shana

When I joined the thread in December, I also had a lot of history that I never had time to catch up on. They welcomed me with open arms. They are a caring, generous bunch and I'm happy to be a part of them now. Jump right in!!!! The water's fine!!!

 

[tinker1bell]

Thank you so much for the warm welcome! I have to apologize that I have not read through the 1,000+ pages , so I don't know the "history" that you all share. But I do look forward to posting more frequently and getting to know each of you better. You seem like such a caring, generous (and I can't forget TALENTED) bunch!!!
Blessings, Shana

Welcome Shana


You will be hooked soon enough

 

[kc10family]

DDA, I could use some serious prayers for Rees (and me) please.

Denise, I will pray for Rees, you and your family. God has a plan and if I knew what is was for your family.. I would tell you.
I don't know what I could do to help, but I am here if I can help.

 

[monicatb]

DDA, I could use some serious prayers for Rees (and me) please. Here's some background so you'll understand the seriousness of this issue.

When Rees was born, he was our healthiest until day 2 when he crashed. He was so sick, and the doctor's didn't know if he would make it or not. They could not get him off the ventilator, and it was extremely touch and go. He had horrible time feeding, and was diagnosed with severe reflux (GERD). He literally spent weeks at a time in the hospital, with one stay 45 days just before his first b'day. He vomited up to 40 times per day, was in agony, on all types meds, had so many nasty procedures done it breaks my heart, was on feeding tubes... oh, it was just horrible. We would call the GI doctors at 2am with him screaming in agony, refusing to eat at all, arching his back. We'd end up in the ER, get admitted again, go to the PICU. It was a vicious cycle and some very dark days. Finally at age 17 months he had a major surgery called a Nissen Fundoplication. A Fundo is a drastic and last resort surgery for these kids. They literally go in and wrap the child's stomach around their esophagus to physically prevent any acid for regurgitating out of the stomach. It has lots of side effects, and the kids are unable burp or vomit afterwards, so you must be very careful with stomach flu, food poisoning, swallowing pennies (ok, that is funny). It was MAJOR surgery. He was in the hospital for 10 days, has an incision from his breast bone past his belly button (looks like open heart surgery). Up to that surgery Rees was Failure to Thrive and only weighed 15 pounds. The reflux and long hospital stays and pain are a major reason he is developmentally delayed.

Well, 3 weeks ago Rees started refluxing again. He would wake us up at night saying his tummy hurt and point to his chest. He's back on all his meds, but they aren't helping. Tonight, it was absolutely horrible. He was retching, sobbing, screaming!!!!!!!! in pain for over an hour, arching his back, thrashing around in my arms because it hurt so bad. We finally got some meds to stay down. John and I are both panicked and have been sobbing all night. It has brought us back to the worst time in our lives. It was pure h*** and I can't believe it's starting again. So, it looks as if we will be going to the hospital for an emergency Upper GI in the next few days and possibly scheduling him for major surgery to have the Fundo repaired.

Please pray for my Rees. I can't believe this is happening to my baby again. I am absolutely devastated.

Oh, and John looked at me when we finally got Rees to bed tonight and said, "forget going back to school or work. Rees and the kids need you much more than we need money. God has you at home for a reason, and that's where you're staying." Thank goodness I have a fantastic husband who puts the kids above anything else. Needless to say, the whole teaching school thing is on hold for a long while. Rees just is too medically fragile for me to be working full-time and not have the flexibility to be with him.

Denise:

I'm so sorry for you and Rees. Your story broke my heart. It's so difficult to cope with a child's pain, that I can't imagine what you're going through right now. As a mother you would like to take the pain out of them, but just can't, and it is devastating. But Rees is very fortunate to have a mother like you, as well as a family that supports him whenever he needs them. You'll be in my prayers. Sending you pixie dust too.

Monica

 

[Glynis]

DDA, I could use some serious prayers for Rees (and me) please. Here's some background so you'll understand the seriousness of this issue.

When Rees was born, he was our healthiest until day 2 when he crashed. He was so sick, and the doctor's didn't know if he would make it or not. They could not get him off the ventilator, and it was extremely touch and go. He had horrible time feeding, and was diagnosed with severe reflux (GERD). He literally spent weeks at a time in the hospital, with one stay 45 days just before his first b'day. He vomited up to 40 times per day, was in agony, on all types meds, had so many nasty procedures done it breaks my heart, was on feeding tubes... oh, it was just horrible. We would call the GI doctors at 2am with him screaming in agony, refusing to eat at all, arching his back. We'd end up in the ER, get admitted again, go to the PICU. It was a vicious cycle and some very dark days. Finally at age 17 months he had a major surgery called a Nissen Fundoplication. A Fundo is a drastic and last resort surgery for these kids. They literally go in and wrap the child's stomach around their esophagus to physically prevent any acid for regurgitating out of the stomach. It has lots of side effects, and the kids are unable burp or vomit afterwards, so you must be very careful with stomach flu, food poisoning, swallowing pennies (ok, that is funny). It was MAJOR surgery. He was in the hospital for 10 days, has an incision from his breast bone past his belly button (looks like open heart surgery). Up to that surgery Rees was Failure to Thrive and only weighed 15 pounds. The reflux and long hospital stays and pain are a major reason he is developmentally delayed.

Well, 3 weeks ago Rees started refluxing again. He would wake us up at night saying his tummy hurt and point to his chest. He's back on all his meds, but they aren't helping. Tonight, it was absolutely horrible. He was retching, sobbing, screaming!!!!!!!! in pain for over an hour, arching his back, thrashing around in my arms because it hurt so bad. We finally got some meds to stay down. John and I are both panicked and have been sobbing all night. It has brought us back to the worst time in our lives. It was pure h*** and I can't believe it's starting again. So, it looks as if we will be going to the hospital for an emergency Upper GI in the next few days and possibly scheduling him for major surgery to have the Fundo repaired.

Please pray for my Rees. I can't believe this is happening to my baby again. I am absolutely devastated.

Oh, and John looked at me when we finally got Rees to bed tonight and said, "forget going back to school or work. Rees and the kids need you much more than we need money. God has you at home for a reason, and that's where you're staying." Thank goodness I have a fantastic husband who puts the kids above anything else. Needless to say, the whole teaching school thing is on hold for a long while. Rees just is too medically fragile for me to be working full-time and not have the flexibility to be with him.

Denise, you are in my thoughts and prayers. I'm so sorry that Rees is going through this! I'll also pray for his doctors and nurses! Keep as positive as you can and remember that it is you and your outlook that Rees will see and feel most. Be as upbeat for him as you can. Come here and scream and cry and vent away, but always have a smile and a hug and a laugh to share with him and Davis and BK. They are going to be affected by this too. Of course, you know all this! Why, oh why don't I live closer!!!!!!! If I could I would be with you at the hospital, holding your hand and praying with you and for you. Please know that I will be doing that all day tomorrow.

Thank heaven for John! You have such a wonderful husband and he is absolutely right! Your babies need you more than other people's babies. There will be time enough for the career after your family is settled. How truly blessed the triplets are to come from such wonderful parents. You two are such wonderful examples to me and to everyone else!


This will have to do since I can't be there in person!

 

[my3princes]

DDA, I could use some serious prayers for Rees (and me) please. Here's some background so you'll understand the seriousness of this issue.

When Rees was born, he was our healthiest until day 2 when he crashed. He was so sick, and the doctor's didn't know if he would make it or not. They could not get him off the ventilator, and it was extremely touch and go. He had horrible time feeding, and was diagnosed with severe reflux (GERD). He literally spent weeks at a time in the hospital, with one stay 45 days just before his first b'day. He vomited up to 40 times per day, was in agony, on all types meds, had so many nasty procedures done it breaks my heart, was on feeding tubes... oh, it was just horrible. We would call the GI doctors at 2am with him screaming in agony, refusing to eat at all, arching his back. We'd end up in the ER, get admitted again, go to the PICU. It was a vicious cycle and some very dark days. Finally at age 17 months he had a major surgery called a Nissen Fundoplication. A Fundo is a drastic and last resort surgery for these kids. They literally go in and wrap the child's stomach around their esophagus to physically prevent any acid for regurgitating out of the stomach. It has lots of side effects, and the kids are unable burp or vomit afterwards, so you must be very careful with stomach flu, food poisoning, swallowing pennies (ok, that is funny). It was MAJOR surgery. He was in the hospital for 10 days, has an incision from his breast bone past his belly button (looks like open heart surgery). Up to that surgery Rees was Failure to Thrive and only weighed 15 pounds. The reflux and long hospital stays and pain are a major reason he is developmentally delayed.

Well, 3 weeks ago Rees started refluxing again. He would wake us up at night saying his tummy hurt and point to his chest. He's back on all his meds, but they aren't helping. Tonight, it was absolutely horrible. He was retching, sobbing, screaming!!!!!!!! in pain for over an hour, arching his back, thrashing around in my arms because it hurt so bad. We finally got some meds to stay down. John and I are both panicked and have been sobbing all night. It has brought us back to the worst time in our lives. It was pure h*** and I can't believe it's starting again. So, it looks as if we will be going to the hospital for an emergency Upper GI in the next few days and possibly scheduling him for major surgery to have the Fundo repaired.

Please pray for my Rees. I can't believe this is happening to my baby again. I am absolutely devastated.

Oh, and John looked at me when we finally got Rees to bed tonight and said, "forget going back to school or work. Rees and the kids need you much more than we need money. God has you at home for a reason, and that's where you're staying." Thank goodness I have a fantastic husband who puts the kids above anything else. Needless to say, the whole teaching school thing is on hold for a long while. Rees just is too medically fragile for me to be working full-time and not have the flexibility to be with him.

Poor Rees. He has been through so much and he is so young. He will be in our prayers as will the rest of your family. I hope that your lives regain some normalicy soon. You have all been through so much.

Deb

 

[Glynis]

I have finally discovered the ONE flaw of the DDA - we are just too far apart to help our friends when they need us most.

Denise - we would all fly to Atlanta tomorrow if we knew it would help. You are all in our thoughts and prayers. I wish we all lived closer!

What she said!!!!!