Suggestions for our trip with HFA son

catnik

DIS Veteran
Joined
Oct 15, 2003
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I have been a lurker for some time on this board but now need some input/suggestions for our upcoming trip. We have 5 children, one of whom has a diagnosis of high functioning autism (HFA). We last took him to WDW when he was very young and did not have any symptoms/challenges. Presently, he is generally able to tolerate new situations but not loud noises or extreme crowds. He is on a gluten free/casein free diet which necessitates advanced planning for meals. He is stable enough that we feel we can now try a family trip to WDW. We are planning to go in October when the crowds and heat are not so unbearable. We will be staying in a 2 bedroom villa so we will have the space and ability to maintain a "quiet zone" for him to relax. We will have a car on site to avoid crowds/transportation delays with the bus system. We will use earplugs for "noisy" environments as needed, as he still can not tolerated head phones/ear buds for music distraction. We are planning to return to the villa each day for a rest period and are prepared that there may be times that one parent will take the other kids back to the parks while the other remains behind with our son. I understand that we can contact specific restaurants directly once we have made ADRs to discuss his dietary needs, yes? We are not planning many outside dining opportunities as we know we will have to be very flexible, but do want to go to a few of the family favorites {Chef Mickey, Sci-Fi (bad food, I know, but the kids love it!), Rose and Crown (Dad's special place), etc)}. So, my questions are as follows:

1) Do I make the ADRs and let them know at that time we have dietary issues? Or do I call each place individually to discuss food availability with the chef?

2) Should we get a guest assistance card ahead of time in anticipation of the meltdowns, or should we try to mainstream initially (I am leaning heavily towards the card with the expectation of using it only as needed....we try very hard not to focus on his challenges and to plan accordingly to allow him to succeed as much as possible, but I am also realistic in the knowledge that he is going to be so overstimulated that we may need the additional assist).

3) We will be preparing a good number of our meals at the villa. I know Garden Grocer delivers but they do not have much in the way of foods our son can eat. Is there a Whole Foods or other natural market nearby that I can buy his food? Our car space is limited and I would prefer to buy his food once we arrive vs bringing it with us (though if need be, we will make the room).

4) What else am I missing? Those who have traveled under similar circumstances, can you give me any pointers, suggestions, things to avoid, etc?

We so much want this to be a special trip for the whole family, but especially for our son. He has missed so many of the "normal" milestones in his life and we want this trip to be something he can enjoy. Thanks in advance for your help.
 
OK, a few suggestions that I've picked up from various places (mainly this board :) ):

For food, see this thread: http://www.disboards.com/showthread.php?t=806868 The main gist of it is that Brenda Bennett is the person to talk to. Her contact details are: [Brenda.Bennett@disney.com] MAGIC KINGDOM Foods 407-824-5967

Yes, do get a GAC in advance. It's much better to have it, and not need to use it, than to need it and not have it. Lots of people on this forum get one at the beginning of their holiday, and use it as and when needed. (See the FAQ if you need more information on GACs)

A lot of people swear by the WDW strollers for kids with sensory issues, as it gives them a safe enclosed space. A few familiar objects in the stroller might help too.

Have a wonderful, magical, special and happy holiday! :tinker:
 
There are several grocery stores in the area, but I'm not sure about their whole/natural food selections, or about whole-food grocers in the area.

Enjoy your trip!
 
Hi! We have 2 children somewhere on the spectrum. One is high functioning and the other kind of sits on the fence between high functioning and SID.
Anyway, yes definitely get the GAC. If you get to the parks at park opening, then head straight to the most popular attractions, that should help.

As for groceris, we've used wegoshop.com and were very pleased.

Have a great trip!
 

If you haven't yet, check out the disABILITIES FAQs thread, located near the top of this board.
I'd suggest you get a GAC - just having it doesn't mean you need to use it. A lot of people keep it as 'insurance', to be used when needed.

You didn't say how old your child with autism is, but if he is younger, you might want to look into the WDW park rental strollers. Many people with children on the autism spectum find them to be very helpful. They are made of a firm (not really hard, but firm) plastic and have solid sides and a canopy.
 
I know my son rely's heavily on his Nintendo DS to "chill" out. The day we went to DisneyLand we forgot it and he was miserable. The GAC for our family, we have two on the spectrum is what makes Disney magical, is a must!
 














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