Special Needs

[DizNee Luver]

Since everyone has been so nice & helpful....I thought I'd share a picture of our special girls.

They make us smile everyday!!!

 

[charmama4]

Since everyone has been so nice & helpful....I thought I'd share a picture of our special girls.

They make us smile everyday!!!

They make me smile too as they are so precious!!!

 

[DizNee Luver]

They make me smile too as they are so precious!!!

Thank You!!!!

 

[mechurchlady]

I have SID and sensory issues so ketchup on rice noodles was yummy for me. I even once grossed dad out by eating ketchup on ice cream. It was not very yummy but did get me a laugh.

You have two sweet girls who will love the park. They would be free at Ariel's if you like princesses. If there is anything else you need just holler. If you need a tour guide I offer that to disabled guests on rare occasions for free. I did this tour to get out of the house and answer a lot of questions about the parks that people have.

Thanks for the payment and I think you have change coming back.

Cute kids and thank you for sharing the photos. Good luck with the kids and check out disAbilities. We have a subforum for things dealing with life in general for the disabled like what to do with a kid who is screaming BOK CHOY. Meltdown because he was not fed bok choy for dinner, lol. They have lots of tips that apply to DLR as well as WDW. They are a bunch of nice people.
http://www.disboards.com/showthread.php?t=595713

 

[DizNee Luver]

Thank you for the invite!! I have stopped by & looked before, but it did seem very aimed at WDW.....they should make it for both DLR & WDW. That would be awesome!!! I'll get back & look at it again after our trip.

Thank you for the offer as a guide.....we're pretty familiar with the park (just not with such little ones) but would love to meet you sometime!!!

Won't be on too much tomorrow during the day as we're holding a garage sale for spending cash for our trip!! Pre-sold some today for over $100....hope that keeps going tomorrow!!!

Be on when I can.......

 

[mechurchlady]

http://www.disboards.com/forumdisplay.php?f=20
We get down and dirty there like toenail picking, potty training, wallpaper peeling, meltdowns, and medical things like IBS, OCD, ADD, celiac, sensory issues, autism, best push chairs, diabetes, and food allergies.

Disneyland does not have Sue who is a full time nurse and mother of a disabled daughter. Sue spends a ton of time protecting us from evil while adding more and more stuff like ride photos. Disneyland does not have the fanatics like WDW in my opinion or whatever may be the issue. I can find tons of reviews and disabled things for WDW but it is hard work to find DLR stuff even something simple like where to get churros.

Have fun and if you think of anything else let me know.
hugs
Laurie

 

[DizNee Luver]

Having a nurse does make sense.....thank you for clearing up why DLR doesn't have their own thread for this.

I will definately let you know if something else comes up!!! You're the best!!!!

 

[mechurchlady]

Actually I think Sue does it more out of frustration for her daughter and others she sees. Until Sue started organizing the help FAQs people could not find out where to get special diet help, tricks for dealing with kids in lines, what rides look like, where restrooms are located, and the rights of the disabled.

Sue is a very nice lady who is one of my guardian angels in life. I love helping people and she has taught me how to help people and when to step aside and let others help. I can not ever thank her enough.

From her FAQs I learned about DLR like the GAC, my legal rights, how to get things done using clean communication and manner, and what to look for when researching DLR for other guests. Like your kids are hypersensitive so I sat in the lower level of the Hungry Bear and listened and watched. It is darker and quieter but then thump thump thump. For some SID people that would be too much and others like me don't notice it. So I note that there are people walking overhead. The reader can make their choice. Personally if the food was not subpar I would eat down there and relax for the day there with the ducks, lol.

Sue is a wonderful momma and that is why she has such a great board. We have a behavior challenge thread where anyone in the world can come and ask for help with things like potty training and dealing with special need kids. They have helped me to finally figure out what is wrong with my mother who is hypersensitive to the max. The best way to help your kids is to learn everything you can and read and read. There are others out there who are in the same situation like kids who only eat a few things and SID kids who will not eat. I try to help give the viewpoint on how the neurovariant thinks which helps.

Big hugs and dole whips
Laurie

 

[DizMe]

Oh Diznee, what beautiful, beautiful little girls!!!! Thank you so much for sharing their picture.

mechurchlady, bless you for your fabulous tips and advice!!! I am going to check out the website you provided. My dd has some major issues but no one seems able to figure out the cause or what to do about it. We've stumbled through mostly on our own--I've little patience anymore with "experts," who've led us down one wrong path after another. We seem to do better using parental instinct and common sense. However, it sometimes scares us and we are uncertain what direction to take as she gets older. Her meltdowns would frighten most people if they saw them and she can become self abusive.

 

[DizNee Luver]

Oh DizMe hang in there!!!! I hope you get some real help soon!!!

 

[LavenderPeach]

DizNee, your girls are so cute! Thanks for sharing their picture with us!

DizMe, hope you get the help you need for your little girl soon! I know it's hard to have to figure everything out on your own instead of the "experts" figuring out what's wrong. Have you tried googling the issues you're dealing with? Sometimes I've had some luck googling DS's symptoms to figure out what the problem is. Hope you get some answers soon!

 

[DizNee Luver]

DizNee, your girls are so cute! Thanks for sharing their picture with us!

Thank You!!

 

[mechurchlady]

Her meltdowns would frighten most people if they saw them and she can become self abusive.

Pshaw you aint had an 83 year old neurovariant screaming your name over and over during a meltdown. At midnight I got her her coffee and snack. I sat down and told mom about Joshua. She warned me to be careful or Disney might think I am a pervert. I do not tolerate that thought pattern so I walked away. She then yelled for me but not her normal demanding tone but that of a little girl. It was so sad as she was alone and afraid. She threatened to call 911 and go to a hospital. Finally I came in and sat with her then got me a sandwich and she was better. The meltdowns never go away unless you can train the child early on.

Pickers pick at things out of boredom or to relieve nervous energy. Kids may meltdown because they are over sensitive like my mother who has lived life in the dark 40 watt life. A child may misunderstand like the kid whose mom was cutting the feet off of his pajamas but had to calm the kid down because he thought she was going to cut his feet off too. Nail biting, hair twirling and finger tapping will not go away if the person is releasing nervous energy.

Neurovariations is a giant puzzle to solve. There can be things not related to Autism, OCD, ADD, SID and other stuff that comes to play. One mother in a magazine I read had a sweet angelic perfect child who would turn into a demon child. At breakfast he was fine then from a little after breakfast to almost lunch time he was the demon child. At lunch and dinner he was an angel but other times that demon child. The eventually figured out he had allergies and when he was allergen free he was the perfect angel child 24 hours a day.

It is hard work and a lot of sleuthing but with the help of professionals and with the help of people who have gone through what the child has gone through and people whose family have gone through you can solve a piece of the puzzle.

hgus
Laurie

 

[Disney Dreams]

And people ask me why I like the DisBoards so much..........

 

[SueM in MN]

We have some Disneyland information on the disABILITIES Board, but most of the questions and reports are about WDW.
There is a section on the disABILITIES FAQs thread that is just about Disneyland. As I find useful information, I have been sticking it in post #14 of the disABILITIES FAQs thread (that thread is near the top of the disABILITIES Board, or you can use the link in my signature to get there).

This thread has a lot of good information (much of it due to mechurchlady's excellent information); I am going to post a link to this thread in post #14 of the disABILITIES FAQs thread.

 

[DizNee Luver]

Thank You SueM for the information. Everyone here has been so helpful.....I would have never known that I could inquire about the GAC so the twins could stay in their stroller...which will help immensely!! (the getting in & out stresses them out). I appreciate everyone's input & will report back on Thursday to let you know how things went!!!

 

[mechurchlady]

Hugs Sue

I refer people to the WDW board because a lot of what I tell people about DLR is based off of Sue's WDW FAQs.

 

[DizNee Luver]

Hugs Sue

I refer people to the WDW board because a lot of what I tell people about DLR is based off of Sue's WDW FAQs.

It's a wonderful site...I'm so glad you shared it with us!!! I did get a chance to look over it & will definately spend more time on it when we get back!!

 

[SueM in MN]

Hugs Sue

I refer people to the WDW board because a lot of what I tell people about DLR is based off of Sue's WDW FAQs.

A lot of the attractions very similar at both parks (you gave it a DL twist though).

 

[mechurchlady]

A lot of the attractions very similar at both parks (you gave it a DL twist though).

Thank you and I hope the Tag Fairy don't see that, lol

Even in the mall, grocery store, Knott's Berry Farm, the zoo, or county fair you can get stuff that helps you for your outing. The mom with an autistic child might read your WDW thread then use those tips for while she is at the fair. I person flying to see mom may read your site and know that they can take their service dog on the flight and their rights as service dog users.

The secret to a great trip is planning. Read everything you can find to help you. It may not be for your disability but still may help. I am not autistic but I learned that to handle stress I now demolish plastic straws while waiting in restaurants. Now I am off to dinner in parks probably.

I think the best thing about being disabled is that we tend to be more open to people who are not neurotypical. It is hard being a neurovariant but disabled people and their families tend to put up with me more and are nicer to me. I do not recall being shunned by the disabled and was openly welcomed to disAbilities and then taught how to see the world from other people's viewpoints. Hugs Sue and wishes I could give you a dole whip right now.