Seizures- Newbie

[fitzpa]

DS with low functioning autism had 1st seizure on Saturday. We leave for Disney on 4/18. Scared he will have one on the plane or the parks. I have no experience with seizures. Any tips for me? Thanks.

 

[lilmissbehaved]

DS with low functioning autism had 1st seizure on Saturday. We leave for Disney on 4/18. Scared he will have one on the plane or the parks. I have no experience with seizures. Any tips for me? Thanks.

No real advice except for make sure he stays hydrated and gets enough rest.. those two things tend to trigger seizures... Did they put your son on any meds for seizures? What kind is he having? DH has them from time to time even with meds and it's just become something we have learned to live with--they do get less scarey to watch over time. I remember being totally horrified the first time.

we had major issues during our first trip 4 years ago and basically had seizures all over disney.. I usually just tried to shield him from public view has much i could and help hold him up. We were always able to get to a safe place because he has a bit of a warning before he has one.. We sorta just learned to live with the fact that they can happen whenever and we have to live our lives anyway

Good luck; I'm sure it will be fine.. sorry you are having to deal with that.. It really does take a toll on the caregiver.!

 

[SueM in MN]

Here’s a link to another recent thread asking about seizures.

If you follow the link in my signature to the disABILITIES FAQs thread, post #3 has some helpful links - including some advice about autism and epilepsy.

Although it may seem like your world has totally changed, it won’t be so strange or scary to you after a while. I am an RN and had seen several hundred seizures before my DD has her first one, but I was not much more prepared than any other parent. It’s much different when it is your own child.
My DD has 2-5 seizures a month and she has had them on the plane and at WDW. She’s pretty noisy when she has a seizure, so people did notice, but it was not a real big thing. On the plane, we just kept her comfortable and then she slept. She can’t walk, so has a wheelchair anyway, but if your child has a seizure and would need a wheelchair to get off the plane, you can ask the flight attendant to call ahead for one to meet you at the gate. Flight attendants are looked at like waiters and waitresses, but they are actually highly trained in first aid and emergency procedures.

At the parks, many of the attractions have wheelchairs very handy, so just let the CM know when you get out. There is a First Aid station in each park, open all the hours the park is open. If your child needs to rest after a seizure, they have cots where he can lie down in a cool, quiet environment.

 

[fitzpa]

Thank you both so much. No meds. for him yet until they do the EEG and MRI. Both very difficult to do because of the autism. The Neurologist said we should still go on our trip, so we are. I'm going to hope for the best, but plan for the worst. Thanks again.

 

[jmartinez1895]

My son has epilepsy so I know how hard this must be for you. Please try not to worry to much and have a great trip. If he should have one while at Disney you can have a CM call the EMS and they will take great care of you. If your child is still small enough for a stroller then you should bring one ( or rent it) and go to guest relations to get a GAC for it. We use our stroller as wheelcahir and it helps very much> By doing this you will be able to have a safe place to put him in case he seizes while in a line. Again, I am sorry that you have to deal with this.